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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Sorry, I see a typo in my previous post. I meant to type, I'm "just" a moderator and I don't have the ability to delete posts or blogs. That requires full administrator privileges. You need to send a personal message to Scott Adams who is the forum administrator in order to get that done. Scroll to the top of the page and look in the upper right corner. There...
  2. trents
    Send Scott Adams this request using the built-in personal messaging tool ("PM" we call it). I'm must a moderator and to delete things requires full administrator privileges.
  3. trents
    Welcome to the forum, Krisit! I'm not sure what you are looking for in your question. Can you express it in a more focused way? In general, you need to avoid all foods that contain any amount of wheat, barley and rye. Those are the three gluten containing grains. But maybe your are asking for more specific advice about which pre packaged, processed...
  4. trents
    No problem, Jackie. It's just that starting your own thread would avoid the appearance of having hijacked the thread started by the original poster. I hope you will start your own thread. Dairy intolerance is very common among celiacs because of the damage to the small bowel lining.
  5. trents
    My bad. I see what confused me. You quoted the OP who was describing their daughter's symptoms. Anyway, did you notice the poster you quoted said her daughter's symptoms happened whenever she ate something containing gluten, not dairy? Gluten is a protein found in what, barley and rye. Lactose is the sugar in milk. Lactose intolerance has to do with...
  6. trents
    Posterboy, you said: "Which would make Celiac disease an Epigenetic disease....instead....and that "Breaks the Model"...." Instead of what? An autoimmune disease?
  7. trents
    Jackie Garrett, Exactly what symptoms does your daughter get when she consumes dairy? Your only post in this thread seems to be in reply to someone else's post who is describing her daughter's symptoms, not your daughter's. So I'm confused.
  8. trents
    If your daughter has celiac disease there is a 44% chance that her first degree relatives have or will develop it. Many celiacs have the "slilent" form with few or no obvious symptoms.
  9. trents
    I would suspect the culprit is not lactose but the protein "casein" in dairy.
  10. trents
    Or could it be the other way around? Could celiac disease be the underlying cause of dairy intolerance? By the way, Jackie, are you sure your problem is lactose intolerance and not casein intolerance. Many people mistakenly think they are lactose (the sugar in milk) when they are really casein (one of the proteins in milk) intolerant. Also, did you mean...
  11. trents
    It is not atypical for non celiac gluten sensitivity to manifest itself so dramatically. The symptoms are essentially the same as with celiac disease and so are many of the long term health risks. Yes, it is possible for the testing to have been done too soon after the onset of celiac disease in order to give valid results. The guidelines are being on...
  12. trents
    Thanks for the update, Alice. Good news! But you won't be able to represent your community as dairy queen this year.
  13. trents
    It is true that just having the celiac genes does not mean you have or will develop celiac disease. It just speaks to potential. Most people who have the genes never develop celiac disease. It takes both the genes and some triggering event such as a viral infection to move from the latent potential for celiac disease to the active expression of it.
  14. trents
    I do not know of "food sensitivity tests." It's pretty much trial and error - experience. It would likely help if you kept a food diary to be able to connect your symptoms with what you have recently eaten, recently being up to 24 hr. The best way to approach something like this is to establish a baseline where you only consume food that you are positive...
  15. trents
    Someone participating on the forum has corrected what I said about meat glue being biochemically similar to gluten. I guess what I said is technically incorrect but meat glue is very similar to the antibody involved in celiac inflammatory response and causes a similar reaction to gluten: ""meat glue" is MICROBIAL TISSUE TRANSGLUTAMINASE---an enzyme...
  16. trents
    Welcome, leni kate. What do you mean by whole foods? Do you mean no processed food as in mixes and things with ingredient lists containing many chemical names? Only fresh meat, fruit and vegetables? There are apps available that can help with eating gluten free. They scan barcodes. https://www.verywellfit.com/gluten-free-iphone-apps-to-help-you...
  17. trents
    I'm not sure any of the antibody blood tests actually confirm damage to the villi. My understanding is that all of them simply measure immune system reactions to threats. The function of antibodies is to attack invaders. With celiac disease, gluten triggers the immune system to marshal antibodies against the gluten and the war that takes place happens in...
  18. trents
    Is he on a multi vitamin? If so, that may explain why serum vitamin levels are not low but iron is. His total IGA is quite high and so is his TTG-IGA. TTG-IGA is the most specific antibody test for celiac disease. Guidelines for the gluten challenge before the endoscopy/biopsy are being on normal amounts of gluten daily for a minimum of 2 weeks...
  19. trents
    Many or most processed lunch meats use meat glue which, biochemically, is very similar to gluten. There has been a lot posted about meat glue on this forum lately and I would suggest using the forum topic search tool to bone up on it. Try switching to canned tuna and canned chicken and see if you don't get improvement. Or cook yourself a ground beef burger...
  20. trents
    Prednisone loves to cause gastritis: https://www.goodrx.com/blog/what-do-i-need-to-know-before-taking-prednisone/#:~:text=Take it after meals or,cause upset stomach and gastritis.
  21. trents
    J Morgan, what steriod are you on?
  22. trents
    Welocome to the forum, J Morgan! Have you investigated your medications to determine if any of them contain gluten? Wheat starch is sometimes used as a filler in pills. You likely would have to contact the manufacturer to get an answer. Also, what about the Chex cereal? Many cereals use malt flavoring even though the main ingredient may be corn or rice...
  23. trents
    In the past year, there have been many posts on the forum asking if people with celiac disease are at a greater risk than the general population. The consensus from experts in the medical community is that celiacs are not a greater risk for contracting COVID-19. But let's turn that question on end. Will those who have contracted COVID-19 be at greater...
  24. trents
    That confuses me too. I certainly would not close the door on celiac disease but as Scott said, either way, the antidote is the same. In my mind, the main difference would be in the social realm. Celiac disease has a little more definiteness to it and sounds more like a real disease to those not in the know.
  25. trents
    Agree with Scott. Only I didn't think NCGS would give positive antibody tests. Haven't we been saying that there currently is no test for NCGS? Or do we mean to say there is no test to distinguish it from celiac disease apart from a biopsy? The other possibility is that she dies does have celiac disease but the biopsy was not done well or done thoroughly...
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