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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Chrissy. How were you diagnosed with Celiac at age 7? Do you remember if they actually ran any tests or were they going on symptoms alone? How old are you now if you don't mind me asking. Just trying to get a handle on what kind of testing might have been available when you were 7. Have you been tested since then? Have you...
  2. trents
    The Taco Bell items listed in this article as not purposely having gluten but subject to cross contamination is the kind of situation where a product like GliadinX comes in handy.
  3. trents
    I have not heard of this specific symptom connected with celiac disease but it doesn't sound too far fetched as the spleen filters out old and damaged red blood cells. One of the common offshoots of celiac disease is anemia. I'm thinking that severe anemia can result in red blood cells not forming correctly or dying too early. At any rate, please get this...
  4. trents
    Yes, it is typically overwhelming at first. The hardest part is the limitations it typically places on your social life with regard to eating out and eating at other people's houses. There are still many people who simply cannot accept that celiac disease is a real thing and just consider it to be the latest medical paranoia or fad diet. Over time you develop...
  5. trents
    Welcome to the forum, Linny H. The difference between how the various apps rate the safety of various processed foods with regard to gluten likely is due to whether or not the food item may have used ingredients, though naturally gluten free, could have come in contact with gluten containing grains in the growing, transport, storage or manufacturing...
  6. trents
    I think your hubby should consider going gluten free for your sake at least. It is very difficult to avoid being glutened when others in the household are still using wheat products. Has he been tested for celiac disease? I mean essential tremors are a neurological phenomenon of, according to the medical community, unknown cause. And you both have tremors...
  7. trents
    So what do you feel was the mechanism of glutening in this situation? Breathing the fumes? Transdermal from contact with any batter that might have been on the spatula handle? Could it have been coincidence?
  8. trents
    Unfortunately, any test done at this point may not be accurate. The guidelines are daily consumption of gluten equivalent to two slices of wheat bread for 6-8 weeks before the sero antibody test and at least 2 weeks for the endoscopy/biopsy. So your options would seem to be go back on gluten and gut it out (excuse the pun) until you can be retested or have...
  9. trents
    Welcome, Dorothy! Have you been checked for SIBO?
  10. trents
    Gluten sensitivity as opposed to celiac disease is a possibility. Many of the symptoms and healgth risks are the same. The difference is that with gluten sensitivity there is no damage to the villi of the small bowel. If you have a first degree relative with active celiac disease there is a 44% chance you will develop active celiac disease.
  11. trents
    Yes, but the issue is that apparently not all the gluten can be removed. Apparently, traces remain that may be enough to trigger reactions in some more sensitive celiacs. Apparently, as you would realize if you have followed this forum for a good amount of time, we are seeing the same phenomenon with distilled liquors.
  12. trents
    Definitely do not share a toaster with other household members who are still using it for gluten containing bread or other foods! Toasters are probably the worst source of gluten cross contamination ("CC") in any shared kitchen. You should also not be sharing cast iron cookware with other household members. Check your medications and supplements for...
  13. trents
    https://www.healthline.com/nutrition/erythritol#TOC_TITLE_HDR_3 We are finding that some celiacs/gluten sensitive people react to products made from gluten that has supposedly been broken down into smaller peptides and technically are "gluten free." That said and as others have pointed out, sugar alcohols give a lot of people digestive distress who do...
  14. trents
    So this is the name brand medication, not generic diphenhydramine sold by Walmart or Costco or some third party. Correct? Found this at: https://www.verywellfit.com/gluten-free-allergy-and-sinus-medicine-4172456 "According to Benadryl manufacturer McNeil Consumer Healthcare (a division of Johnson & Johnson), the only product considered gluten...
  15. trents
    Can you confirm apart from your symptoms that those Benadryl pills in fact have gluten and that your weren't reacting to the Benadryl itself, the dye used to color them or some other ingredient added in the manufacture? Did you contact the manufacturer? What brand were you using? It could be that some manufacturers use gluten as a filler or binder but others...
  16. trents
    The B-vitamins are all water soluble so don't worry about overdosing on those. What your body doesn't use is peed out. You might want to consider taking extra B12 and adding magnesium. But don't go overboard on the magnesium and choose a formulation that is very assimilable in order to prevent the laxative effect magnesium can have.
  17. trents
    Is the physician currently managing your care a GP or a GI doctor? Please keep in mind that the medical community as a whole is woefully ignorant of celiac disease/gluten sensitivity. Most of us have reached the conclusion we have to do the research, come armed with information and take them by the hand to get done what we need done, i.e take control and...
  18. trents
    Are you currently taking any vitamin and mineral supplements? You should get not only you hemoglobin levels checked but your ferritin levels checked.
  19. trents
    IGA is not used to detect allergies. IGE is used for allergies. What's going on with your heart? That is not a common issue with either celiac disease or NCGS. Is the heart issue related to a vitamin or mineral deficiency? Sounds like you need to get a thorough analysis of vitamin and mineral levels. But realize there are limitations to that since they...
  20. trents
    Welcome to the forum Makky! How long have you been on a gluten-free diet? Do you have a date scheduled yet for the endoscopy/biopsy? Have you experienced significant improvement in your symptoms since going gluten-free? Is there a particular reason you need to have an official dx of celiac disease or gluten sensitivity? The biopsy would distinguish...
  21. trents
    There is also the possibility of transdermal glutening from lotions and cosmetics. I'm not sure if this has been scientifically studied but a number of forum participants have reported such expeiences.
  22. trents
    NCGS does not blunt the villi. That is how it is distinguished from celiac disease as many of the symptoms and long term health risks are the same. You have been on a gluten-free diet now for what, six months? It typically takes about two years for the gut to heal completely but if you have been eating gluten free for 6 months there may be enough healing...
  23. trents
    Allergies? Do you mean to say you have been diagnosed with celiac disease or gluten sensitivity? I ask because many people do not realize that celiac disease is not an allergy. It is an autoimmune disease. To answer your question, gluten can be removed but if the product comes in contact with gluten during processing on equipment used to also process...
  24. trents
    BeckyB821, I'm sure that greater medical community knowledge, awareness and better dx procedures are a major player that is driving up celiac dx rates but one has to wonder if other factors having to do with manipulation of grain genome structure and other lifestyle factors also are driving the phenomenon as well.
  25. trents
    Welcome to the forum Karly! To be seronegative and still have villous atrophy is a thing! We have occasional reports of that in adults by forum participants. The gold standard of diagnosing celiac disease is not sero-antibody testing but biopsy of the small intestine lining. We also know that CMP (cow's milk protein) can cause villi damage in some individuals...
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