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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Make sure you included the reference ranges. Different labs used different reference ranges.
  2. trents
    Do you have access to the blood test results and can you post them. We would like to see exactly what tests were run and what the values were. The experience of the celiac community on this forum is that relatively few gen practioners, and more than a few GI docs, are not very knowledgeable about Celiac Disease. And yes, we have forum members whose blood...
  3. trents
    You may have developed histamine intolerance. Wines and many foods are naturally high in histamines. If your body does not produce sufficient DAO to break histamines down then you could have problems such as you describe. Also look at SIBO. Both conditions are common in the celiac community.
  4. trents
    It often takes two years or more for the gut to completely heal after going gluten free. If blunting and symptoms persist after going gluten free and there has been sufficient time for healing, something else is causing the blunting. Recent studies reported by NIH have shown that the mile protein casein can cause blunting in some individuals and some medications...
  5. trents
    Processed food manufacturers can and not infrequently do change the formulations of their products. You may be eating something that used to be safe for you but is no longer gluten free.
  6. trents
    DGP is usually run when total IGA is low. Low IGA can give invalid results for Ttg IGA and other IGA based tests. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Gluten free/gluten free certified processed foods typically utilize many texturing substitutes that our digestive systems are not used to and may not handle well....
  7. trents
    I am not aware of stool tests for celiac disease but there is a finger prick home test kit available: https://www.imaware.health/ Another option would be to put your child on a strict gluten free diet for a trial period and see if the symptoms improve. But be aware that he must be consuming gluten regularly for any celiac disease test to be valid. Many...
  8. trents
    I also wanted to say that it is possible you have gluten sensitivity rather than celiac disease. The positive blood work but negative biopsy while you were still on gluten may suggest this. At the current time, there is not a non invasive way of distinguishing the two and there is a great deal of overlap between the two symptomatically speaking. The two share...
  9. trents
    Welcome to the forum, Golfguy21! "TTG IgA (27.0 CU) REF RANGE <20 CU" This particular IgA test is the least sensitive but the most specific for celiac disease and it returned a definite positive value. When it does comeback positive it is a strong indicator of celiac disease. "My GI doctor said he would get the endoscopy scheduled as soon as...
  10. trents
    Oh, colonoscopies are not used to diagnose celiac disease. For that, an upper GI endoscopy would be used. Celiac is a disease of the small bowel. So, no bowel laxative prep necessary for an upper GI!
  11. trents
    Your thinking here is certainly reasonable. The proof is in the pudding, as the old saying goes. If you adopt a gluten free diet and your symptoms improve, you have your answer.
  12. trents
    Unless they were staples, basically living off them, I wouldn't worry about niacin deficiencies from eating corn or sorghum based gluten-free products. Sorghum has some wonderful nutritional benefits when used in a balanced diet. It might be a good idea to take a gluten-free B-complex just to cover the bases.
  13. trents
    Well, our dentists here in the USA seldom use sedatives either. They would only use sedatives (Nitrous Oxide, I think) if they were doing major dental surgical procedures such as multiple tooth extractions or impacted tooth removal.
  14. trents
    It's like many health risks, I guess. Take smoking, for instance. People who smoked heavily for 20-30 years and then quit cannot necessarily expect to avoid future consequences. Most of us who have been diagnosed with celiac disease/gluten sensitivity lived with the toxic effect of gluten on our bodies for quite a few years before diagnosis. Should we expect...
  15. trents
    Do you mean to tell me that where you live the dentists don't use a local anesthetic when drilling in your teeth?
  16. trents
    Are you sure you were not sedated at all, not even conscious sedation? Well, did a little research and indeed colonoscopies are sometimes done without sedation, particularly outside the USA. But in the USA, "Most often, either moderate sedation or deep sedation with the anesthetic propofol are used for colonoscopies. An anesthesiologist is sometimes present...
  17. trents
    If the diseases are not gluten related then I wouldn't think the symptoms would improve on a gluten-free diet.
  18. trents
    Why do you say that? Did you experience complications with the endoscopy? For me the actual procedure in both cases was a tossup but there was no nasty prep for the endoscopy, just no eating for 8 hr. before. You are sedated for both so what's the diff?
  19. trents
    It would seem then we are throwing weight back to the importance of the endoscopy/biopsy, since there was a trend to rely only on the blood tests. Just seems to be common sense to me that testing for a disease in multiple ways is going to be a more reliable diagnostic methodology.
  20. trents
    Get a new doc. If my doc was that ignorant and stubborn I would switch in a minute. And welcome to the forum, Crescentmoon!
  21. trents
    Scott, you'd better read what you wrote.
  22. trents
    Do you have celiac disease or gluten sensitivity that has been diagnosed? Trying to figure out here why you posted this in a forum about celiac disease.
  23. trents
    Sounds like it could be or maybe not celiac but gluten sensitivity. All of the symptoms you describe are common to those with celiac disease and also with gluten sensitivity. Celiac disease is not an allergy it is an autoimmune disease and involves a completely different pathway in the immune system than do allergic responses. High eosinophils would indicate...
  24. trents
    Welcome to the forum, mizar552000! Just make sure you have been eating gluten daily for at least two weeks leading up to the scope and biopsy. The equivalent of a piece of bread each day should be adequate. Many people make the mistake of trying to eat gluten free leading up to testing and that will compromise the results. For the blood antibody test...
  25. trents
    I would take that one to mean, "We don't intentionally include known gluten sources in this formulation but we aren't addressing the possibility of cross contamination," which is probably the equivalent of "Gluten Free."
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