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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Equivocal lab results
trents replied to elm1214's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is also NCGS (Non Celiac Gluten Sensitivity) that causes many of the same symptoms as celiac disease and some of the same long term health risks but does not cause villi damage. There is currently no diagnostic test for NCGS but can be assumed if eliminating gluten from the diet brings relief. By the way, your daughter needs to be eating gluten... -
Equivocal lab results
trents replied to elm1214's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac disease damages the "villi" that line the small bowel. Depending on the extent of the damage and the resolution of the scope, experience of the doc doing the scoping, etc. this damage may not be visible to the naked eye. That's the purpose of the biopsy which is then sent to a lab for microscopic analysis. An experienced GI doc will take at least four... -
Equivocal lab results
trents replied to elm1214's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, an "equivocal" TTG-IGA can certainly leave the door open for a celiac disease diagnosis. In fact, I would say it is more likely than not. In fact, not infrequently we have people with negative TTG-IGA values who wind up getting diagnosed as having celiac disease because their symptoms still point that direction and are later confirmed to have celiac... -
Yes. And not just to nuts. The development of food allergies/sensitivities of various kinds over time is a typical experience of the celiac. celiac disease results in a dysfunctional, hyper vigilant immune system.
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Mix your 2% milk with skim and slowly ween yourself off onto fat free milk and dairy. You can get used to anything. I remember switching over to nonfat milk years ago and it tasted like chalk water. But after drinking it for a few months, when I would drink whole milk it felt like I was drinking cream because skim had become the new normal. You can buy...
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How do I know that I am celiac
trents replied to Addy86's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most welcome! -
How do I know that I am celiac
trents replied to Addy86's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Correct. But I would pursue testing for celiac disease first so you don't sabotage the test results by having gone on a gluten-free challenge. -
How do I know that I am celiac
trents replied to Addy86's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is more common to be underweight with celiac disease but yes, some go the other way because their body tells them to eat more in order to try and make up for nutritional deficiencies. celiac disease causes poor absorption of nutrients. I'm wondering if you might have NCGS. -
Chicken, pork roast, lean beef, fish (not the oily, cold water ones like salmon), vegetables and fruit, rice and potatoes. Nothing with wheat, barely rye because of the celiac disease. Gluten is found on those three grains. Heavy creams and whole milk would be contraindicated if you are trying to avoid fatty food. How about skim milk? You might...
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How do I know that I am celiac
trents replied to Addy86's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Addy86, welcome to the forum. The first stage of celiac disease diagnosis is a blood test to for antibodies typically produced by celiac disease. The most important test is the Ttg-IGA but since it is very specific for celiac disease but not particularly sensitive, it is wise to have a more complete celiac panel blood test done as described here: https... -
I believe the Costco rotisserie chicken at our Costco in Tumwater, WA is labeled gluten free but I'll try to remember to check that next time we get one. It doesn't seem to cause me problems. I'm not a particularly sensitive celiac so minor amounts of gluten as you might get in cross contamination may not trigger a noticeable reaction in my case.
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Not a good long term solution. If you continue to skip meals like that to the tune of 90 lbs. per year your husband may be cooking for himself before much longer. Have you had a conversation with him about your need to eliminate wheat (and barley and rye) from your diet? Is he in denial about the reality of celiac disease as a medical condition? I realize...
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Do we know how many of the total screened population were female and how many male? Unless we know that number we cannot say whether female first degree relatives of celiacs are more likely to also have celiac disease.
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Yes. Many celiacs are what we call "silent" celiacs. That is, they have few or no classic digestive distress. That's not to say, however, they will never develop it. Floating stools suggest you are not digesting fat properly and that is a classic symptom of celiac disease. It's related to the damage done to the small bowel villi by persistent inflammation...
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Gluten free 3 years, still fatigued
trents replied to lhu7's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What about histamine intolerance? https://www.healthline.com/health/histamine-intolerance#symptoms -
Gluten free 3 years, still fatigued
trents replied to lhu7's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So are you saying you have been checked for SIBO or for ARFID? -
Gluten free 3 years, still fatigued
trents replied to lhu7's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
"arfid"? Have you been checked for SIBO? -
I realize this is anecdotal, but one of the frequently reported vitamin deficiencies by those who are newly diagnosed celiacs on this forum is D3. I also found this, a little dated however: "There is increasing awareness of celiac disease among non-European populations, including those in the Middle East. The disease was considered uncommon in the developing...
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I think you meant "silicon" instead of "silicone." Silicon is a mineral (most of what sand is made of) whereas silicone is a synthetic rubbery material.
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Plant sterols
trents replied to Barb15's topic in Gluten-Free Foods, Products, Shopping & Medications
You would need to contact the company to get that information and even then, the source of the sterols may be various plants from time to time. -
laynuh, welcome to the forum! How long ago were you diagnosed with celiac disease? It can take two years or longer for complete healing of the small bowel villi after going gluten free. What do you mean by "scalloping"? That term is not familiar to me? I wonder if you wouldn't benefit from steroids, at least short term, to quiet your immune...