Jump to content

trents

Moderators
  • Posts

    8,474
  • Joined

  • Last visited

  • Days Won

    513

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by trents

  1. Welcome to the forum, livycat! All of us in this community can relate to the social/emotional part of your experience to one degree or another. As to your physical symptoms, your are still very early in the healing stage. I would also suggest you look for other foods you may have become intolerant to over time. Chief among the candidates would be...
  2. Welcome to the forum, Valerie! Your inconsistency in avoiding gluten is preventing your healing. If you have celiac disease or non celiac gluten sensitivity the key is not cutting down on gluten but avoiding it altogether. At the least, in preparing gluten-containing foods to please the rest of your family you are getting small amounts of gluten ingested...
  3. Is she still consuming dairy? Many celiacs cannot tolerate the protein casein in dairy and other intolerances such as to soy, corn and eggs are also common. Celiac disease is all about the dysfunctional development of the immune system pathway that guards the gut.
  4. The biopsy is the gold standard of celiac disease diagnosis. Especially when the blood work is inconclusive. Yes, you are correct about my mistake with the TTG-IGA. My bad. I didn't look closely enough. It is also possible your daughter has non celiac gluten sensitivity which has most of the same symptoms as celiac disease but does not damage the small bowel...
  5. You mention weight loss after going gluten free but have the other symptoms also improved? You may have non-celiac gluten sensitivity.
  6. Before I forget, I hope your daughter has not been trying to eat gluten free since her blood tests were done. Doing so may have allowed healing of the small bowel villi and cloud the biopsy test results. The centerpiece of the blood antibody labs is the tTG-IGA. It is the most specific for celiac disease and is positive. The other antibody tests are...
  7. It is also possible that you have non-celiac gluten sensitivity which has many of the same symptoms as celiac but does not damage the villi of the small intestine, although a biopsy would be the only real way to distinguish the two. And the antidote is the same: total avoidance of gluten for life. Yep, your doctors totally botched that one and it is obvious...
  8. Here you go. This is just a screenshot of the product advertisement pictures from Amazon. It definitely does contain some derivatives of wheat and barely. If you have a question about something containing gluten, try "googling" it buy typing "Does ____________ contain gluten?" The product name would go in the blank. Googling has become a general term for...
  9. It is hard to accept that wheat, universally considered to be the staff of life, can be harmful to us. Everyone who has been diagnosed with celiac disease or non celiac gluten sensitivity has struggled with that. Believe me, you have a lot of company in that regard. And when your health issues have already forced you to eliminate a lot of non gluten containing...
  10. Noel, I believe I remember reading posts on this forum of others who reacted after eating Werther's products but I can't remember which ones. I think the original Werthers do contain gluten. My wife was giving them to me to wet the whistle in church when I got a coughing spell and then we read the ingredient label and realized they contained wheat.
  11. Appendicitis doesn't always hit suddenly and without warning. That is a common misconception. Many people have chronic appendicitis that comes and goes and eventually there is an acute crisis that can be life threatening if not addressed in time. Concerning dairy intolerance, it often is not in response to the lactose, which is the sugar component of...
  12. Many celiacs are intolerant of dairy. After significant healing of the small bowel lining has occurred then sometimes celiacs are able to resume dairy consumption without issue. It can take around two years for full healing of the bowel but significant improvement in symptoms often happens within weeks. Having said that, has anyone checked your brother...
  13. Welcome to the forum, EdmBkn! Three days is not long enough to tell anything. Is right sided abdominal pain the only symptom he was experiencing before his diagnosis? How much time elapsed between his diagnosis and his going gluten free? Are you sure he is truly eating gluten free? There are many temptations for a 13 year old celiac to cheat on the gluten...
  14. It's overwhelming at first, isn't it! Just think, the next trip you take you have that food list already made up. Be prepared for the skeptical reactions you will get from some family and friends who just don't understand and don't want to. There are always hold outs.
  15. Welcome to the forum, Jessica! The social impact of celiac disease is something every celiac finds difficult to cope with. But let me assure you, you will adjust and your family and friends will adjust over time and eventually it will become the new normal. Have you googled, "Celiac support groups in North Carolina"? I think there might even be a resource...
  16. It sounds like something that should be taken to a higher level in the company than just the local franchise. Ideally, you could procure a sample and send it to a lab for testing to possibly get some evidence that it is not gluten free. In the mean time, I would not eat that complimentary snack anymore.
  17. There would be two advantages in getting tested later on: 1. The first is psychological. An official diagnosis helps many people stay on track with their gluten free diet. If there is doubt in your mind about whether or not you have a problem with gluten then it is easier to rationalize not being consistent. 2. The second is sociological. It might...
  18. Welcome to the forum, Gaynor99! The real question is has the kitchen staff learned from this mistake and discontinued cooking the "gluten-free" snacks in the same fryer as foods containing wheat. Have you inquired if they have made this change?
  19. Welcome to the forum, Olivercito! The guidelines for pre testing gluten challenge are daily consumption of gluten in the equivalent amount of 2 slices of wheat bread for at least 6-8 weeks before serum antibody testing and at least two weeks before an endoscopy/biopsy of the small bowel. Even after one week of gluten free eating it is possible that your...
  20. Recent studies have shown that most people who claim to be eating gluten free are actually practicing lower gluten eating because they aren't aware of the myriad of places gluten is tucked away in processed foods or inadvertently introduced through cross contamination. The studies show this is especially true of those still dining out. Truly getting to the...
  21. So, it may depend on how sensitive to gluten you are. 20 ppm is enough to elicit a reaction for some celiacs.
  22. Were your serum antibody tests run after you started trying to eat gluten free? If so, that would likely explain the low positives. Testing needs to be done while consuming normal amounts of gluten.
  23. Welcome to the forum, Lauraclay! All of the symptoms you describe are very common to the celiac population. Some of what you describe we refer to as "brain fog." Not every celiac has all of the symptoms you describe but they are all common to the celiac community as a whole.
  24. You should get a follow-up biopsy at about the end of a year from starting the gluten free journey. I think this is the preferred method of followup as opposed to retesting serum antibodies. This would be for the purpose of checking healing progress and consistency in eating gluten free. Keep in mind that it typically takes two years of consistent gluten...
  25. Asian food typically has soy sauce and wheat is an ingredient in most soy sauces. We also know that autoimmune diseases tend to cluster. Celiacs are at a higher risk for Crohn's than people in the general population. It is also true that celiacs tend to develop intolerances to other, non-gluten foods that can mimic the celiac symptoms. Soy, dairy...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.