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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Were these canned or frozen? Do all the family members who ate those beans have celiac disease? I'm thinking the illness was caused by something else besides the green beans and if it was the beans causing the illness that it was not due to gluten but some kind of bacterial contamination.
  2. trents
    Perhaps, I am wrong about NCGS producing essentially the same long term health risks as Celia Disease. I certainly was guilty of an over statement at least. Found this: "In addition to experiencing GI symptoms, patients with NCGS most often experience a complex of extra-intestinal symptoms, including a “foggy mind”, which is described as an inability to ...
  3. trents
    Hi, Sharon, and welcome to the forum. It would be more proper forum etiquette if you were to start your own thread and ask this question. We would be glad to help you but we don't want to derail the thread started by Makky.
  4. trents
    Oh, yes. Concerning low IGA. Low IGA will skew the results of the blood antibody tests and many times create false negatives. It also needs to be said that the same tests used for diagnosing celiac disease in adults are not as reliable when used with children. Young body systems just react in different ways to the same disease processes. https://www...
  5. trents
    Welcome to the forum, Gpcoop93. Unfortunately, we here this same story over an over about physicians failing to inform their patients that they should remain on normal amounts of gluten until testing is complete. There generally is much ignorance in the medical community about gluten-related maladies and many doctors still have a dismissive attitude...
  6. trents
    Well, if wheat didn't trigger a response then that rules out celiac disease or gluten sensitivity for the present. A recent study involving around 400 related people showed a 44% chance that the first degree relatives of those with celiac disease will have or will develop celiac disease. It takes both the genetic potential and some kind of stress trigger...
  7. trents
    Thyroid hormone levels, like blood pressure readings, are very variable and it can be difficult to pin down by one blood test done at a point in time. Symptoms may be a better indicator.
  8. trents
    Your son with FPIES, has he been tested for celiac disease? One of the things to grasp about celiac disease is that it is not an allergy. It is an autoimmune disease. It is IGA mediated, not IGE mediated, just like FPIES. I'll take a wild stab at the food sticking in the esophagus issue. So here goes. One of he common health spinoffs of celiac disease...
  9. trents
    QLisa, welcome to the forum! I hope you had not already started trying to eat gluten free before the blood draw as that may invalidate the results. Reflux/GERD is common among those with celiac disease. The gold standard for diagnosing celiac disease is the endoscopy with biopsy of the small intestine lining. Celiac disease damages the lining...
  10. trents
    Itchy anus can be caused by many things. I have this sometimes but it's always associated with a little leakage of stool. One thing that can contribute to this is caffeine. Caffeine is thought to relax the sphincters in our digestive system and can cause both GERD and itchy butt. After I cut out coffee it got a lot better. Coffee and tea are also very acidic...
  11. trents
    Welcome to the forum, GFfireman! You mentioned you had some food intolerance testing done. Have you specifically been tested for celiac disease as opposed to gluten intolerance? They are not the same even though both involve problems with gluten. There are specific blood antibody testes that can be run to diagnose celiac disease vs. gluten intolerance...
  12. trents
    They do not naturally contain wheat, barley or rye so they should be gluten free. Are you concerned about cross contamination?
  13. trents
    He could also have NCGS (Non Celiac Gluten Sensitivity) for which there is currently no diagnostic test per se. It is diagnosed by symptomatically reacting to gluten consumption similarly to those with celiac disease when the celiac tests are negative. In large part, the symptoms are the same, the long term health risks are the same and the antidote is the...
  14. trents
    First, I want to be clear what you mean by saying your hubby is doing the "gluten challenge." We normally use that term to mean that someone who has been on a gluten free diet is temporarily going back on gluten in order before testing in order to ensure that the tests are not invalidated. People with upcoming celiac disease testing need to be eating regular...
  15. trents
    Are you serious? What flavor?
  16. trents
    The gluten free Oreos have been out for months but may not be carried by grocers in your area.
  17. trents
    Well you know, the other side of that question is "what is constipation." For some people, not having a good poop every day means they're constipated. Other people get along just fine without needing to have a BM every day. If you get less fiber in your diet it stands to reason that you aren't going to poop as much but is that necessarily bad? We've been...
  18. trents
    If it's got any gluten then I suppose they consider it bread.
  19. trents
    Earline, what do you do for fiber in your diet? Is constipation an issue?
  20. trents
    If you really want to fond out if you have celiac disease vs. gluten sensitivity, you need to have blood tests done such as described in this article: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The most important of those is the TTG-IGA. Some doctors will only order that one blood test when checking for celiac disease. If...
  21. trents
    Specifically, what blood work did he do? What were the names of the tests done from the blood work? Do you have a record of what were involved in the bloodwork? If so, could you post it? If he was looking at your scalp it sounds like Dr. Osborne may have been a naturopathic physician. I asked this above but you did not answer, how can we help you?
  22. trents
    I'm not Catholic but I'm guessing the Church's rational for insisting on gluten being in the host comes from the fact that when Jesus said, "I am the bread of life," (John 6) and “Take and eat; this is My body" (Matthew 26) he was referring to and using real (wheat) bread. Catholics believe that when consumed, the bread mystically turns into the body of C...
  23. trents
    Are you creating your posts from a cell phone? They are hard to understand. What kind of tests did Dr. Osborne run? Celiac disease (celiac syndrome?) is not an allergy. It is an autoimmune disease. It engages the immune system through an entirely different pathway than an allergy would. I'm not sure how they are classifying gluten sensitivity and...
  24. trents
    Welcome to the forum, Andrea! We need some clarification here. When you say you were told when you were born you had celiac syndrome, I assume you mean that sometime after your were born you were told that you have had celiac syndrome from birth. Otherwise, I would find it remarkable that you understood and remembered what you were told at the time...
  25. trents
    This is a great resource.
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