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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Most people with celiac disease are in fact not ever diagnosed. That is due primarily to the ignorance of the profession with regard to this disease. They are misdiagnosed with other conditions. Another reason is that many people who do have celiac disease have few or only minor symptoms for lots of years.
  2. trents
    Are you saying the genetic test was ordered by your Dr. along with a celiac antibody test? That is not normally done.
  3. trents
    Concerning tests that can be run to detect celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But be aware that any test for celiac disease would require you to be consuming significant gluten (the equivalent of two slices of wheat bread daily) for weeks before testing. This is true both for the blood tests and for...
  4. trents
    " Anti-DGP Screen detects antibodies of both subclasses, IgA and IgG in a single test step, and thus also identifies celiac disease patients with IgA deficiency." https://www.orgentec.com/en/products/alegria/Autoimmune+Disease+Diagnostics/Gastroenterology+Diagnostics/Anti-DGP.html The TTG IGA test is considered to be the primary antibody test...
  5. trents
    Absolutely. Many celiacs are what we call "silent celiacs," meaning they have little or no digestive distress, at least in the beginning. That doesn't mean, however, that damage isn't being done to the small bowel and other organ systems.
  6. trents
    I don't blame you for being confused. A very deficient report from an information standpoint. What lab did this testing? Was this a home test kit that you sent off or was it something ordered by a physician?
  7. trents
    In addition to what GFinDC said, if your celiac blood tests were done at a time when you had been attempting to eat gluten free, that would sabotage the results. Concerning your phobia of things going down your throat preventing you from having a endoscopy with biopsy, just request sedation. The endoscopy/biopsy is considered to be the gold standard...
  8. trents
    Having the genetic markers for celiac disease does not guarantee that one will ever develop an active case of celiac disease. Many or most who have the genes do not develop the active form of the disease. It also takes a triggering stress event that turns the genetic potential for the disease into the active form of the disease. A triggering stress event...
  9. trents
    Well, if it turns out that your daughter does have celiac disease it would be a good idea to get all first degree relatives (you, father of the child and siblings of the child) tested . You also would need to look at converting your house to a gluten free environment. It can be extremely difficult to keep a celiac family member safe when others in the household...
  10. trents
    The gold standard for celiac disease diagnosis is the endoscopy with biopsy of the small bowel to check for damaged villi. The GI specialist may recommend that. By the way, so do you or other family members have diagnosed celiac disease? If so, realize that there is a 44% chance that someone will develop active celiac disease if a first degree relative...
  11. trents
    I must correct myself from what I said in the first post. the high Deaminated IgG can be an indication of celiac disease. The TtG-IGA is considered the most reliable indicator of celiac disease in adults, being the test that combines great specificity for celiac disease with good but not great sensitivity. And that was not positive in your daughter's case...
  12. trents
    Iron supplements can be hard on the gut and cause constipation. Has she been checked for pernicious anemia? That is caused by the inability to assimilate B12 due to a lack of something known as "intrinsic factor."
  13. trents
    Nothing that stands out there with regard to celiac disease but testing for children often gives different results than for adults and is more nuanced. Is she having symptoms that would suggest celiac disease? She has some values for her blood cells that are a little out of whack but borderline. And then there is the platelet clumping which can be caused...
  14. trents
    Did you leave out something in your post? There has got to be something more to the report than what you posted unless we are to take that as saying you do have the celiac genes. DQ2/DQ8 are the primary genetic markers for celiac disease. However, just having the genes doesn't mean you have or even will have celiac disease. It takes some kind of stress event...
  15. trents
    If you can access those celiac blood values it's important to include the lab reference values as the numbers from the tests are meaningless otherwise. Please include the total IGA value. Yeah, it sounds like when they did the endoscopy they stopped when they found the ulcer, especially since the celiac blood tests were negative. Too bad.
  16. trents
    While they were doing the endoscopy they didn't take a biopsy of the small intestine to check for the blunted villi characteristic of celiac disease? Do you have access to the blood work so that you can post the actual tests done and numbers online and the baseline reference values? It is not all that unusual for people who do have celiac disease to...
  17. trents
    Sorry, my bad. My eyes skipped over the word "free."
  18. trents
    I take it you left out "not"?
  19. trents
    Welcome to the forum, Dd89! Why haven't you been tested for celiac disease? Several medical professionals seem to have guessed that you have it but you do not mention every having actually been tested for it. The first stage of testing is simple blood draw sent to a lab to test for antibodies associated with celiac disease. If this blood test is strongly...
  20. trents
    Thanks for the update. Please keep us posted. We are learning that celiac disease/gluten sensitivity symptoms and health related expressions continually defy the neat box we used to put them in. It is becoming increasingly obvious that these gluten-caused diseases manifest themselves with much greater variability than we imagined even just a few years ago...
  21. trents
    This could be connected with celiac disease but could also be due to other digestive maladies. Constipation or diarrhea or an alternating combination of both is common among celiacs. In other words, the consistency of the stool is often not what it should be and motility is often impaired. With bowel impactions or blockages, liquid stool can sometimes...
  22. trents
    We're getting more and more folks on the forum who have developed egg intolerance. Egg is part of your recipe so just thought I should mention that.
  23. trents
    Well, I think that is an exaggeration. Mg is the active ingredient in some laxative products but lots of laxatives use other things, either to soften the stool by drawing water into the colon or by providing some kind of irritation that stimulates evacuation.
  24. trents
    Did you ever have an endoscopy with a biopsy of the small bowel lining? That is the gold standard for diagnosing celiac disease and for distinguishing it from gluten sensitivity. Celiac disease damages the villi that line the small intestine which in turn inhibits nutrient absorption. The villi are tiny finger-like projections that create an enormous surface...
  25. trents
    You might want to take a magnifying glass with you.
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