Issues with rice

[lilturge]

I was diagnosed with celiac disease in 2017 and have been gluten-free since.  Unfortunately, my symptoms continued.  My main symptom was nausea, but I've also had diarrhea, abdominal pain, headaches, and fatigue.  I have had numerous tests which all come back negative.  I've also cut out dairy and followed the FODMAP diet.  Two years ago I did a total elimination diet, with a doctor's supervision, and my symptoms actually worsened.  My diet mostly consisted of fruits, vegetables, chicken, and lots of rice (rice milk, rice cakes, rice flour, cooked rice, etc.).  Recently it dawned on me that rice contains arsenic.  Although I was rinsing my rice, I was eating a lot of it in various forms.  I decided to try cutting back on the amount of rice and rice products I have each day and my symptoms have gotten better.  I had diarrhea daily and that stopped immediately after cutting down on rice.  Has anyone else had issues with rice?

[trents]

You may also have an intolerance to rice period, apart from the arsenic. Have you had the ALCAT food allergy testing done?

[Scott Adams]

People with celiac disease often have additional food intolerance issues, so keeping a food diary and excluding certain common offenders like soy, corn, eggs, dairy, etc. for a time, then adding them back to your diet, is a good way to discover the culprit. These additional intolerances may be temporary, and once your leaky gut situation heals you may be able to add item back to your diet, but not always.

[knitty kitty]

@lilturge,

Welcome!  

Please keep in mind that Celiac Disease results in malnutrition because the area of the small intestine where damage is done prevents us from absorbing nutrients properly.  

Thiamine is a B vitamin that helps us digest and turn carbohydrates, fats, and protein into usable energy for the body.  

When thiamine is low, we may have difficulty coping with carbohydrates like rice.  Sometimes our bodies don't cope so well with a heavy carbohydrate load and low thiamine, so diarrhea occurs to rid the body of food it can't utilize.  Diarrhea, nausea, abdominal pain, headaches, and fatigue can all be symptoms of subclinical thiamine deficiency.   Subclinical thiamine deficiency can go on for years.  

Thiamine is used in heavy metal chelation by physicians.  Thiamine will bind with heavy metals to make them harmless and remove them from the body.  Thiamine will chelate arsenic and lead.  

Thiamine is one of eight B vitamins that may not be absorbed properly.  The eight B vitamins all work together, so supplementing with a B Complex and some extra thiamine (minimum 300 mg to 1000 mg a day) may be beneficial to you.  Discuss this with your doctor.  The B vitamins are water soluble and nontoxic. Any excess is excreted in urine.  

Thiamine and B Complex vitamins are often low in Celiac patients.  There's not accurate testing available for vitamin stores in the body.  Blood tests reflect mostly how much was consumed in the previous twenty-four hours.  The World Health Organization (WHO) says that thiamine deficiency can be diagnosed if, after taking 300 mg of thiamine for several days, there is improvement.  

I was extremely low in thiamine and I experienced improvement within hours of taking thiamine supplements.  I started with thiamine hydrochloride (thiamine HCl) but I found Benfotiamine, a fat soluble form, is beneficial for intestinal healing.  Allithiamine is another fat soluble form that crosses the blood brain barrier and helped me with headaches and thinking.  

Doctors are not well versed in vitamins and my doctors missed my deficiency symptoms.  Please make sure you're getting all the nutrients your body needs: the eight B vitamins, the four fat soluble vitamins (A, D,E, and K), Vitamin C and minerals like magnesium and calcium.  Liver is a nutrient dense food containing all of these.

I hope this is helpful to you!  

[JR]

I continued to have terrible issues after going gluten-free for 5 years. I saw a dietitian and nutritionist (same person) who did a mediator release test. I can’t eat rice or corn (the standard substitutes in recipes for celiacs) and a long list of other foods, including onion and garlic. I now can’t eat out or travel, except in our camper where I fix all of my own food. It’s been quite depressing because so much of our society’s gathering and celebrating revolves around food. It gets old gathering and having only tea. I’ve been contaminated so many times trying to order food that I think will be safe. 

[lilturge]

6 hours ago, JR said:

I continued to have terrible issues after going gluten-free for 5 years. I saw a dietitian and nutritionist (same person) who did a mediator release test. I can’t eat rice or corn (the standard substitutes in recipes for celiacs) and a long list of other foods, including onion and garlic. I now can’t eat out or travel, except in our camper where I fix all of my own food. It’s been quite depressing because so much of our society’s gathering and celebrating revolves around food. It gets old gathering and having only tea. I’ve been contaminated so many times trying to order food that I think will be safe. 

I did have the LEAP mediator test done but rice was non-reactive (as was wheat and barley, and I'm celiac).  I'm not sure how accurate that test is.  Some reactive foods were ones I had questioned myself but others don't give me a problem. 

On 2/10/2022 at 5:06 PM, knitty kitty said:

@lilturge,

Welcome!  

Please keep in mind that Celiac Disease results in malnutrition because the area of the small intestine where damage is done prevents us from absorbing nutrients properly.  

Thiamine is a B vitamin that helps us digest and turn carbohydrates, fats, and protein into usable energy for the body.  

When thiamine is low, we may have difficulty coping with carbohydrates like rice.  Sometimes our bodies don't cope so well with a heavy carbohydrate load and low thiamine, so diarrhea occurs to rid the body of food it can't utilize.  Diarrhea, nausea, abdominal pain, headaches, and fatigue can all be symptoms of subclinical thiamine deficiency.   Subclinical thiamine deficiency can go on for years.  

Thiamine is used in heavy metal chelation by physicians.  Thiamine will bind with heavy metals to make them harmless and remove them from the body.  Thiamine will chelate arsenic and lead.  

Thiamine is one of eight B vitamins that may not be absorbed properly.  The eight B vitamins all work together, so supplementing with a B Complex and some extra thiamine (minimum 300 mg to 1000 mg a day) may be beneficial to you.  Discuss this with your doctor.  The B vitamins are water soluble and nontoxic. Any excess is excreted in urine.  

Thiamine and B Complex vitamins are often low in Celiac patients.  There's not accurate testing available for vitamin stores in the body.  Blood tests reflect mostly how much was consumed in the previous twenty-four hours.  The World Health Organization (WHO) says that thiamine deficiency can be diagnosed if, after taking 300 mg of thiamine for several days, there is improvement.  

I was extremely low in thiamine and I experienced improvement within hours of taking thiamine supplements.  I started with thiamine hydrochloride (thiamine HCl) but I found Benfotiamine, a fat soluble form, is beneficial for intestinal healing.  Allithiamine is another fat soluble form that crosses the blood brain barrier and helped me with headaches and thinking.  

Doctors are not well versed in vitamins and my doctors missed my deficiency symptoms.  Please make sure you're getting all the nutrients your body needs: the eight B vitamins, the four fat soluble vitamins (A, D,E, and K), Vitamin C and minerals like magnesium and calcium.  Liver is a nutrient dense food containing all of these.

I hope this is helpful to you!  

Thank you for your response.  I'll discuss this with my doctor.  I recently had a series of blood tests done and everything was normal but I don't see thiamine as one of my test results.

[knitty kitty]

9 hours ago, lilturge said:

Thank you for your response.  I'll discuss this with my doctor.  I recently had a series of blood tests done and everything was normal but I don't see thiamine as one of my test results.

It's been my experience the only vitamins doctors check routinely are B12 and Vitamin D.  

  Erythrocyte Transketolase test is a test that may be used to measure thiamine.  

WHO has a field test for thiamine insufficiency:  can you rise from a squat?  People suffering from thiamine deficiency cannot rise from a squat or have difficulty rising from a squat.  

 

[Awol cast iron stomach]

I had to drop rice and white potato for a few years after my gluten challenge. I had multiple intolerances after my scopes etc. I introduced quinoa  and sweet potato when I had to drop rice and white potato. In time I was able to reintroduce them. 

Best wishes 

[trents]

12 hours ago, knitty kitty said:

WHO has a field test for thiamine insufficiency:  can you rise from a squat?  People suffering from thiamine deficiency cannot rise from a squat or have difficulty rising from a squat.  

 

Why is that knitty kitty? Lower extremity muscle weakness?

[knitty kitty]

1 hour ago, trents said:

Why is that knitty kitty? Lower extremity muscle weakness?

Yes, muscle weakness and also it's the nerve signalling from the brain.  Thiamine is needed for nerves to transmit messages.  

[Maztergee-ga]

On 2/10/2022 at 4:25 PM, lilturge said:

I was diagnosed with celiac disease in 2017 and have been gluten-free since.  Unfortunately, my symptoms continued.  My main symptom was nausea, but I've also had diarrhea, abdominal pain, headaches, and fatigue.  I have had numerous tests which all come back negative.  I've also cut out dairy and followed the FODMAP diet.  Two years ago I did a total elimination diet, with a doctor's supervision, and my symptoms actually worsened.  My diet mostly consisted of fruits, vegetables, chicken, and lots of rice (rice milk, rice cakes, rice flour, cooked rice, etc.).  Recently it dawned on me that rice contains arsenic.  Although I was rinsing my rice, I was eating a lot of it in various forms.  I decided to try cutting back on the amount of rice and rice products I have each day and my symptoms have gotten better.  I had diarrhea daily and that stopped immediately after cutting down on rice.  Has anyone else had issues with rice?

Hi, I have always seemed to have an issue with rice, and rice products, it makes me sweat and feel cold for one.    I had a Hair analysis food sensitivity test done, and Rice was on list of high reactivity list along with Wheat and Gluten.  Where as Corn and Gluten Free Oats, Sorghum, Psuedo-Grains (apart from Quinoa) were fine..  I have been eating a lot of Gluten Free oats and oat products,, for a couple of months and behold I'm fine with them..   Had some rice tonight as a test, soaked over night..  boom,, not good :)..  

It's trial and error for some,, but worth getting some sort of Food Sensitivity test done.