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Dozey

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Dozey Apprentice
Dozey
Posted

Hope no one minds the constant questions. But do thes sound like symptoms too?

Ringing in head/ears

Feeling faint even when resting

Burning itching feet

Disturbed sleep/ disturbing dreams

Strange blurry vision, almost like being underwater.

Trembling in limbs and some times whole body shaking

Typing words wrong way round

Feeling exhausted by conversation

Dry mouth/ sticky nasty taste in mouth

Thank you

Jo

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IrishHeart Veteran
IrishHeart
Posted

Hi Jo

 

Well, they sound like gluten-related symptoms to me. (I had almost all of those, too) but they could also be

 

caused by something else, so it is difficult to say for sure.

 

Here is a list of possible celiac- related symptoms and conditions.

 

Open Original Shared Link

 

 

I know you are awaiting your test results, so you may wish to read a little bit while waiting.

Hang in there!

Dozey Apprentice
Dozey
Posted
  • Author

Hi Jo

Well, they sound like gluten-related symptoms to me. (I had almost all of those, too) but they could also be

caused by something else, so it is difficult to say for sure.

Here is a list of possible celiac- related symptoms and conditions.

Open Original Shared Link

I know you are awaiting your test results, so you may wish to read a little bit while waiting.

Hang in there!

Hi IrishHeart

I know they are also symptoms of b12 def which I have, but I am clutching at straws here ☺. I am also being tested for vit D def and I don't know what else as the nurse said the doctor had asked for several tests. She said he is very thorough so I am hopeful of some answers this time. Sounds crazy but In a way hope it is Celiac, then at least I will know something.

Jo

IrishHeart Veteran
IrishHeart
Posted

Not crazy at all! I was THRILLED to learn it was celiac after years of living in hell. It was something treatable

and I was not "making things up" and I got to do the "I told ya so" dance! :D .

 

Believe me, many of us "get that part". 

nvsmom Community Regular
nvsmom
Posted

Yep... the "I told you so dance". Did you notice Irishheart even has it in her signature?  LOL

GottaSki Mentor
GottaSki
Posted

The "I told you so dance" is nice -- validation is huge and sadly many of us had to fight far too much to obtain it.  This above all else is why I hang around celiac.com -- when I stumbled in four years ago -- others that were already dancing helped me.

 

Welcome Jo!

 

I hadn't seen your other questions...but keep reading and keep asking questions.  Good Luck with your results :)

Dozey Apprentice
Dozey
Posted
  • Author

Thankyou IrishHeart, Lisa and Nicole. This is a lovely forum and I have found some welcome comfort here. And even if I am not Celiac I hope I can still keep visiting. Yes I had noticed that happy little dancer!

Jo

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IrishHeart Veteran
IrishHeart
Posted

hey guys, Jo is in the midst of a gluten challenge, so we are cheering her on!

 

https://www.celiac.com/forums/topic/101386-anyone-feels-worse-in-the-morning/?hl=%2Bdozey#entry865664

 

and yes, I am dancing because at one point, I could not even walk without assistance. Lisa was in the same boat, Jo and she and I

are both so much better!

 

..........so do not despair. Healing happens!

Dozey Apprentice
Dozey
Posted
  • Author

Thanks Irish Heart. I can't walk very far which of course isn't helping the agoraphobia. My husband insisted on getting a wheelchair and although it just doesn't feel right being in it, it does mean I can get a bit further without worrying about ending up on the floor. So, when I feel well enough I try to go a bit further each outing. If I do too much I pay for it the next day, so I am trying to pace it.

I had my blood test yesterday but typical for me can't get to see my new doc until next Friday. I am dreading him saying I need an endoscopy because there is no way at the moment. I nearly passed out at the surgery and that's only two miles away. The hospital is 23 miles. An epic journey for an agoraphobic!

Jo

IrishHeart Veteran
IrishHeart
Posted

But for you to get to the bottom of this and stop the madness and get your life back, you may well have to do this, Jo.

 

I am not a drug pusher, but maybe you can ask the primary care doc for a small dose of xanax to calm you enough to get you to doctor visits. IMHO

Dozey Apprentice
Dozey
Posted
  • Author

But for you to get to the bottom of this and stop the madness and get your life back, you may well have to do this, Jo.

 

I am not a drug pusher, but maybe you can ask the primary care doc for a small dose of xanax to calm you enough to get you to doctor visits. IMHO

I know this sounds as though I am being negative about everything but I can't take drugs. Even ordinary painkillers have an effect on me. I was given Diazepam some years ago and it just knocked me out for a few hours, then I felt worse when I woke up. So now I am afraid of taking drugs of any kind.

Jo

IrishHeart Veteran
IrishHeart
Posted

I have similar issues with drugs, which is why I put up with chronic pain rather than take the stuff they give me,

so no need to explain. The one that did not make me yucky for days was when I took just  a teensy bit of xanax

before a dental surgery that was going to last over an hour. Without it, I may have balked at doing it and it had to be done..

 

I am just suggesting it as a therapeutic measure to get you out of the house.

Certainly, you should always do what's best for you. 

Dozey Apprentice
Dozey
Posted
  • Author

I have similar issues with drugs, which is why I put up with chronic pain rather than take the stuff they give me,

so no need to explain. The one that did not make me yucky for days was when I took just  a teensy bit of xanax

before a dental surgery that was going to last over an hour. Without it, I may have balked at doing it and it had to be done..

 

I am just suggesting it as a therapeutic measure to get you out of the house.

Certainly, you should always do what's best for you.

I appreciate that. Maybe it's going back to the car crash we had in 2004, although I recovered from that and have driven myself about since, even did a stint as a taxi driver. Lately I just have difficulty going anywhere in the vehicle. I don't think we wil crash or anything but maybe it's just general anxiety.

Jo

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