Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

My Symptoms Rant.

xOuchie911x

Recommended Posts

xOuchie911x Newbie
xOuchie911x
Posted

I have not been tested for Celiac disease yet. But I decided to start a new topic about some of the symptoms I have so that I can learn.

 

Not sure if this is a symptom of Celiac or not but it's something that is an annoyance to me. Tinging. I get tingling in my left upper thigh mostly. It happened while I was sitting down eating my pasta and it happens a lot when I lay down. I also get tingling in my hands, but not as frequent as the thigh tingling has been.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


greenbeanie Enthusiast
greenbeanie
Posted

Another poster here gave me a great tip a few months ago - hopefully she'll be along to say more about it herself. The tip was that tingling can be caused by magnesium deficiency. I had awful tingling in one leg and sometimes in my arms for years and years, and I'd been to several specialists about it but they couldn't find the cause. It kept me awake at night and was constantly distracting. Well, by my third day on magnesium supplements the tingling was hugely improved! It was mostly gone after about a month on 600mg of magnesium per day. I went back and looked at some of my old blood tests from a few years ago, and lo and behold I did have low magnesium (plus low potassium and calcium) then, but my doctor at the time had said not to worry about it and never mentioned that it could cause the tingling. I was just retested and my magnesium is now in the normal range. 

 

I'm sure there are other causes of tingling too, but magnesium deficiency is one possible cause. I've since learned that anyone who's had diarrhea for years (whether from celiac or anything else) is quite likely to be low in magnesium, so it's definitely worth investigating. I never would have thought of it if someone hadn't mentioned it here. 

xOuchie911x Newbie
xOuchie911x
Posted
  • Author

Another poster here gave me a great tip a few months ago - hopefully she'll be along to say more about it herself. The tip was that tingling can be caused by magnesium deficiency. I had awful tingling in one leg and sometimes in my arms for years and years, and I'd been to several specialists about it but they couldn't find the cause. It kept me awake at night and was constantly distracting. Well, by my third day on magnesium supplements the tingling was hugely improved! It was mostly gone after about a month on 600mg of magnesium per day. I went back and looked at some of my old blood tests from a few years ago, and lo and behold I did have low magnesium (plus low potassium and calcium) then, but my doctor at the time had said not to worry about it and never mentioned that it could cause the tingling. I was just retested and my magnesium is now in the normal range. 

 

I'm sure there are other causes of tingling too, but magnesium deficiency is one possible cause. I've since learned that anyone who's had diarrhea for years (whether from celiac or anything else) is quite likely to be low in magnesium, so it's definitely worth investigating. I never would have thought of it if someone hadn't mentioned it here. 

Thanks Green. I actually didn't know that. Are there any food that can help increase my magnesium levels?

And also wanted to ask, I once had a thyroid test done but it was in the ER years ago and I am sure that they did it the quickest way possible. I wanted to know what tests I should be asking my dr for in order to get an accurate result whether negative or positive?

greenbeanie Enthusiast
greenbeanie
Posted

Thanks Green. I actually didn't know that. Are there any food that can help increase my magnesium levels?

And also wanted to ask, I once had a thyroid test done but it was in the ER years ago and I am sure that they did it the quickest way possible. I wanted to know what tests I should be asking my dr for in order to get an accurate result whether negative or positive?

 

Dark leafy greens, nuts, and seeds tend to be high in magnesium (I'm sure there must be a more specific list online somewhere). I was already eating lots of those things but apparently wasn't absorbing them well, though. 

 

I'm not sure about thyroid tests. My doctor wouldn't order more than a basic TSH for me. But I've seen a lot of discussion on here about thyroid issues, so you may be able to find more info by using the "Search forum via Google" box at the top.

0range Apprentice
0range
Posted

Here's a list of foods that are high in magnesium: Open Original Shared Link

 

 

I'm not sure about thyroid tests. My doctor wouldn't order more than a basic TSH for me. But I've seen a lot of discussion on here about thyroid issues, so you may be able to find more info by using the "Search forum via Google" box at the top.

 

Here is a comprehensive list of thyroid blood tests you can request: Open Original Shared Link

 

Please take this with a grain of salt as I'm not a medical professional, but I would recommend requesting these 4 if you're unable to get all of the above tests done and strongly suspect a thyroid issue: 

TSH, free T3, free T4 and antibodies test (anti-TPO/TgAb, TSI/TRAb)

 

With the exception of congenital hypothyroidism, thyroid cancer or a pituitary gland problem - most of us have a family history of thyroid disease and it is usually autoimmune in nature (Hashimoto's thyroiditis or Graves disease). Like Celiac disease, it can be notoriously hard to diagnose especially if you are not a clear-cut case. For e.g. many people will have "normal" TSH results but textbook thyroid disease symptoms - remaining undiagnosed for years since it does not show up on labwork, while accumulating non-specific symptoms such as weight gain and depression. Usually, in this case, their antibodies are high (i.e. so the body is actively attacking the thyroid) but have not completely deteriorated the thyroid gland, so the other tests look ok. Many doctors do not treat thyroid disease based on antibodies alone, and wait until the diseases results in full-blown hypothyroidism or hyperthyroidism. It's also important to remember that the TSH is not a thyroid hormone, but is in fact, a pituitary gland hormone that works to tell the thyroid gland how much to produce - to know how much thyroid hormones is actually being produced, doing the T4/T3 test is important.The scale for TSH (0.3 - 3.00), as well as T4/T3 is also very subjective. My friend feels great at a TSH of 1, whereas I start having hyperthyroidism symptoms (heart palpitations, blurry vision, etc.) at that number. You can also have hypothyroid symptoms even when your results are in 'range', especially if they are in the mid to lower-end of that range. 

xOuchie911x Newbie
xOuchie911x
Posted
  • Author

Thank you for such detailed answers Green and 0range. I will look into foods with magnesium and also ask my dr about a possible thyroid issue.

 

Another question I had was, do any of you have an issue with bladder infections? I get many of them for some reason. Also, I have had on and off kidney pain (not now thank goodness) but have had a history of calcium buildup on my kidney which was painful. The CT scan didn't show stones...just a buildup of calcium. Is that normal?

0range Apprentice
0range
Posted

No problem! Regarding the UTI's: I know this is anecdotal evidence, but many women with Hashi's report having recurrent UTI's before their diagnosis. I have had 2 (once before my dx and one after) and hopefully never again! I'm really sorry to hear that you are getting them often. Could your recurrent ones be related to any of these factors?: Open Original Shared Link

 

Did the doctor ever explain why there was a build-up of calcium in your kidneys? if it is a chronic problem, high levels of calcium deposits or levels in your blood can be indicative of hyperparathyroidism. Not to scare you! But something to look into. Best of luck and keep us posted =)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,082
    • Most Online (within 30 mins)
      10,442
    Joe B
    Newest Member
    Joe B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...