Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Low On Antibodies For Celiac?

Cisforcelina

Recommended Posts

Cisforcelina Newbie
Cisforcelina
Posted

So I recently went to see a gastrointestinal doctor thinking I had IBS or Celiac disease and he put me on an IBS diet and ordered a blood test and Celiac disease was negative but I was low on the antibodies which attach to the antigens that basically are Celiac disease. My doctor told me that because of that I may actually have Celiac disease. The IBS diet really made a difference so my doctor recommended that I stay with it for a month and then visit him. I can feel weird feelings in my gut and bloating still though. I think my possible Celiac disease and definite IBS may be symptoms of a larger problem;Thyroid disease. I noticed getting cold all the time, moodiness,irregular periods,insomnia ( almost 4 am). Does anybody here think it's worth checking on? I feel like I may be just over reacting?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

The doctor probably meant that you are low in total serum IgA. If that is the case, all tests that use the IgA are going to be inaccurate. That includes the tTG IgA, DGP IgA, EMA IgA and AGA IgA. You need to be tested with the tTG IgG, DGP IgG, AGA IgG, and EMA IgG if they have it.

 

Celiac, IBS (often a misdiagnosis of celiac disease around here), and thyroiditis all go hand in hand. If you get your thyroid checked ask for TSH (should be near a 1), free T3 and free T4 (should be in the 50-75% range of your lab's normal reference range), and TPO Ab. Make sure you get copies of all your labs as doctors are notorious for saying all is normal when in fact, it may not be for you. Get all the tests I mentioned so that you get a full picture of your thyroid health.  Good luck.

0range Apprentice
0range
Posted

No, no, if you feel like something is off - get it checked out! Don't think you're a hypochondriac for doing so, it's your body and you want to feel better as anyone would :) thyroid disease is very sneaky. The only reason I was dx was because I do an annual blood test. When my thyroid gave up, my symptoms were very non-specific: I was getting a puffy face, and sleeping a lot! Based off of that, you'd think I was your average university student with a bad diet! Take care and good health to you. 

Cisforcelina Newbie
Cisforcelina
Posted
  • Author

I should check it out but I hate having to bug my mom with all my symptoms but I can't stand to annoy my boyfriend with my crazy mood swings after not eating for an hour. Seems like hyperthyroidism but because of this being a possibility should I be concerned about Celiac with a low IgA? Also I was informed that they only test 3 of 16 levels in your blood in every state except one lab in California. So basically I may never know?

Cisforcelina Newbie
Cisforcelina
Posted
  • Author

I also noticed on my blood test that some of the other things were slightly low or high. I know he's the doctor with the degree but he said that it was okay. Should this be a red flag for a rotten doctor?

cyclinglady Grand Master
cyclinglady
Posted

I also noticed on my blood test that some of the other things were slightly low or high. I know he's the doctor with the degree but he said that it was okay. Should this be a red flag for a rotten doctor?

Not necessary.  On a CBC test (general blood test), my red blood cells are tiny.  That's because I have a genetic anemia (thalssemia).  Brings down my hemoglobin -- but there's nothing to do about it.  Might the same in your case.  But can't tell since you haven't provided the results.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,082
    • Most Online (within 30 mins)
      10,442
    Joe B
    Newest Member
    Joe B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...