Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Response From Enterolab


alanalynch

Recommended Posts

alanalynch Rookie

I emailed the thread 'wary of Dr Fine' Phyliss at Enterolab as she has always been interested in what people have had to say. I thought all those involved in that thread might be interested in her response.

Dear Alana,

Thank you so much for this information. I read it from top to bottom.

Though I would love to provide my own response to many questions on

that

message board, I feel it would be unethical of me to do so (kind of

like

ambulance chasing).

However, if you are supportive of Dr. Fine's research and testing

methods

and would like to direct visitors of that message board to my email

address

with questions, I would be more than happy to answer them. My direct

email

is <enterolab@earthlink.net>. This is the same address that is accessed

from our web site. You may even give out our phone number if you wish,

which is 972-686-6869.

Incidentally, Dr. Fine is extremely spiritual in every aspect of his

life.

He began singing in his synagogue when he was younger, then directed

his

musical talents to uplifting messages of hope and thanks in his two

previous CDs (hence, the Kenny Jude name). More recently, he has

recorded 3

new CDs to help launch a new program called "Get On a Mission of

Nutrition"

aimed at improving nutrition and the overall health in children.

Because of

this and other ventures to further improve society's health, he has not

written for the peer review journals until now. He plans on publishing

EnteroLab's findings early in 2006, which will be a wonderful

accomplishment.

Since I came to the lab full time, after leaving a good position as the

RN

to a certified allergist/immunologist at Baylor, I have increased the

accessibility of the lab to patients and physicians both by phone and

email. Because we are operating under the umbrella of the Intestinal

Health

Institute, a non profit organization for Dr. Fine's research and

education,

we try to keep our operating costs down and do not have a large staff.

We

do work hard, however, to answer all the calls we can and return

messages

as soon as possible. Also, many people do not know that EnteroLab's

proceeds are donated back to the Intestinal Health Institute to help

fund

more research, education, and programs. We are definitely not in it for

the

money!

I'm sorry if this sounds like a lecture, but we are all very proud of

Dr.

Fine's work and the work that EnteroLab does for patients who have been

searching for answers for years only to be ignored by their physicians.

We

pray that more physicians will soon see the value and practicality of

EnteroLab's tests so that more people can be helped earlier in the

manifestation of the disease process.

Thank you, again, for providing me with this information. Please let me

know if I can be of any further assistance to you.

Most sincerely,

Phyllis Zermeno, RN, BSN

Clinical Manager, EnteroLab

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Thanks for sharing that. :)

What a great idea to email that thread to her...now I've learned some things about Enterolab and Dr. Fine that I wasnt aware of before. All good stuff. :)

Bette Explorer

Can you guys post a link to the thread "Wary of Dr Fine". I am so confused at this point, and was considering doing some of his test.But concerned, since A) my insurance will not cover it and B) his work is controversial.

I have been gluten-free now going on 6 months. Not officially diagnosed, only had some elevated antigliadin antibodies, but decided to go gluten free since my daughters diagnoses. She is 11 and has been gluten free since July. GI symptoms have improved dramaticaly for her, but she still has sinus and chronic tonsilitis issues. Some of her other symptoms have disappeared (yeah) I am beginning to question if there is another problem (namely dairy).

I am torn between just removing dairy 100 percent and see how she does (makes sense to me), but I had to fight tooth and nail to get her the proper diagnoses regarding gluten, put her through biopsy and all- not because I wanted to but because of an uncooperative ex who would not go along with a trial of gluten free diet unless the doctors said it was necessary. Now same with removing dairy, it will be a challenge to get him to help with that one too!!!

And as far as I go, I got good results intitialy, but at the 6 month mark, I am really struggling. Is it too late to get a diagnoses from Dr. Fine? I refuse to go back on gluten.Will his test help you to pin a problem with Dairy? Casein intolerance? Lactose intolerance? The more I have read up on intolerances, the more confusing it seems, and there seems to be misunderstandings among the doctors themselves. I also thought about York Labs, but from talking to another person from another message board, her advice was no. She had a bad experience and considered them very unproffesional. :huh:

Rachel--24 Collaborator

Here's the link :)

Open Original Shared Link

alanalynch Rookie
. Is it too late to get a diagnoses from Dr. Fine?

<{POST_SNAPBACK}>

If you access the Enterolab website you will see that 6 months gluten-free is definately not too late to test for intolerance. In regards to the controversy of using Enterolab, the post I put on today mentions their position on the previous 'wary' thread.

Personally I think Dr. Fine is a pioneer in gluten intolerance, and as all the medical pioneers before him experienced he is going to encounter resistance to his ideas. I believe he gives accurate results, (I was diagnosed with gluten intolerance before I went through Enterolab and his results certainly gave me a whole lot more info than my regular doctor). Dr. Fines tests also showed that I have a reaction to casein, which in my case turns out to be quite important because I sometimes feel worse after ingesting casein than gluten!

But its a personal choice as to how much testing you need in order to feel okay about not eating gluten anymore. My sister has Crohns (and almost undoubtledly Celiacs), yet she tells her doctors not to test for Celiacs because she just couldn't stand to eat food without gluten. Thats her choice. I choose, or at least I'm trying, to be gluten free and healthy again. So doctor or no doctor I say, do whatever makes you feel better!! :)

Guest barbara3675

Remember that if you decide to go with Enterolab, you can have some gene testing done and that will give you more clues to your situation. My granddaughter has celiac disease and her dear mother suggested that I get tested. The doctor came up with negatives so I decided to go with Enterolab and they came up with postives for gluten intolerance and I also have the gene. I also tested casein intolerant, however after some time, that went away as it often does when the healing process is complete. I just feel so much better (no tummy pains or diarreah) so I know I am on the right track. This was all found out at the age of 59 so you just never know when it will come about.

Barbara

skbird Contributor

My two cents - I think Enterolab is great for what they are doing. But I got tested at 5 months and was just under the normal cutoff (9, when 10 is positive). When corresponding with Phyllis and Dr. Fine, they both inferred I was likely over the normal limit before going gluten-free, but who knows? Anyway, it is possible your levels will have gone down by 6 months. Then again I think I read here about someone who tested over a year after gluten-free and was still positive so who knows?

Stephanie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442

    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...