Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ode To Celiac


NoGlutenCooties

Recommended Posts

NoGlutenCooties Contributor

Feelin really blue today

I wish this thing would go away

Thinkin’ of Celiac every day

Just tired of Celiac.

 

My friends all talk about it

My fam all talk about it

I just want to forget it

Just tired of Celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

A few years after DX

you'll see it's all just BS

it's no big deal to be us...

You're just a celiac.

 

 

Just stay the course and eat well

You'll heal and all will be well

it's not the be-all/ end-all

To be a celiac.

 

 

Okay...listen to me, now  I can't come up with any rhymes when I know you're hurtin.  So I am going to speak honestly.

 

It's not who you are, hon. It's just something we live with. It doesn't define you, confine you or make you "different" unless you let it.

 

Why are you blue today? Something causes that. Tell us. Maybe we can help.

 

 

NoGlutenCooties Contributor

Okay...listen to me, now  I can't come up with any rhymes when I know you're hurtin.  So I am going to speak honestly.

 

It's not who you are, hon. It's just something we live with. It doesn't define you, confine you or make you "different" unless you let it.

 

Why are you blue today? Something causes that. Tell us. Maybe we can help.

 

Thanks Irish - just tired of talking about it, thinking about it, explaining it, shopping for it, planning around it, etc. etc.  It's become the usual topic of idle conversation with people... kinda like talking about the weather used to be.

I'll shake it.  It actually helped just to add it to the ongoing "Ode".  :)

IrishHeart Veteran

Then, stop talking about it with people. Even us, if it is too much. It's okay.

 

We all take vacations from it.

 

In my "real life", I never talk about celiac. :D  I just live.

 

I talk about it on here because I am helping. Otherwise, it's just "normal" life.

 

Time. Heals. All.

moosemalibu Collaborator

Then, stop talking about it with people. Even us, if it is too much. It's okay.

 

We all take vacations from it.

 

In my "real life", I never talk about celiac. :D  I just live.

 

I talk about it on here because I am helping. Otherwise, it's just "normal" life.

 

Time. Heals. All.

 

Yes.. sometimes you need a break from talking about it. Just live. I needed this reminder, too. Thanks Irish.

NoGlutenCooties Contributor

I think because it is so new for people that know me they're still thinking about it a lot... which is actually pretty sweet.  I've already gotten 3 gluten-free cookbooks for XMas and my boyfriend keeps spotting gluten-free options on various menus, etc. that he never noticed before.  It's just part of me is like...  Enough.  Already.  I took it in stride... why can't you?  (How about those Green Bay Packers??)  :)

(And if my mother leaves me one more voicemail about food, or nutrition, or Celiac, or symptoms... I'm gonna scream.  Either that or the phone is getting launched out the window...)

GFinDC Veteran

Hi GC,

 

It sounds like you have  some people in your life who want to help in some way.  That's pretty neat really.  No need to shut them down right away IMHO.  Maybe you can get some free gluten-free cookies out of the deal! :)

 

I hope you don't mind some additions to your ode of love...

 

The newbies are confus-ed
They don't know what whole foods is
They feed their gut bugs sugar
and call it gas attack!

The oldsters try and tell 'em
Don't feed those nasty villians
Stick to the plain and simple
Food for us celiacs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Hi GC,

 

It sounds like you have  some people in your life who want to help in some way.  That's pretty neat really.  No need to shut them down right away IMHO.  Maybe you can get some free gluten-free cookies out of the deal! :)

 

I hope you don't mind some additions to your ode of love...

 

The newbies are confus-ed

They don't know what whole foods is

They feed their gut bugs sugar

and call it gas attack!

The oldsters try and tell 'em

Don't feed those nasty villians

Stick to the plain and simple

Food for us celiacs.

 

:)  Love it!

 

and you're right... they're only trying to be supportive and helpful... just needed to vent - better to vent to you guys than tear someone's head off for trying to be nice  :ph34r:

IrishHeart Veteran

:)  Love it!

 

and you're right... they're only trying to be supportive and helpful... just needed to vent - better to vent to you guys than tear someone's head off for trying to be nice  :ph34r:

 

There are more celiacs and NGCSers who get NO support than those who have family and friends who give a shyte enough to

take it seriously and want to show support, so

yes, consider yourself blessed. :) My best peep gets it and there's no gluten being served during her 4 course dinner tomorrow.

I helped making some of the dishes and all the desserts and none of the guests even care it's all G F.

 

Some family members make this very, very difficult for celiacs and Christmas is going be a pain in the butt for those poor peeps.

 

(Thank the heavens booze is gluten free).

 

Merry Christmas and God Bless Us, Everyone. ;)

NoGlutenCooties Contributor

Merry Christmas all you Celiacs

Safe eats, drinks, and healthy snacks

No D, no C, and no Yaks

Merry Christmas Celiacs!

 

:P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,794
    • Most Online (within 30 mins)
      7,748

    MarciO
    Newest Member
    MarciO
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Manaan2
      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...