Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Natural Approach To Increasing Bone Density/help With Reading Results


BelleVie

Recommended Posts

BelleVie Enthusiast

Hi everyone. Hope I'm posting this in the correct forum.

 

I had a DXA scan done last week and got the results today, and the doctor told me I have extremely low bone density in my lower back. From what I understand, if your T score is -2.5 or more, that puts you in the category for a diagnosis of osteoporosis, is that right? Mine was -2.6, with a Z score of -2.0. It says:

 

Spine AP BMD (L1-L4): .925 g/cm (squared) (79% of Age Matched normal), Z score (-2.0) 

 

The doctor told me to start a calcium supplement and add more protein to my diet, but then I did more research and it seems that a lot of newer research on osteoporosis and bone density suggests that calcium supplementation doesn't do much to fix low bone density, and that things like K-2 supplementation and vitamin D supplementation are more important. 

 

The doctor did not try to put me on a prescription medication, which makes me think that it's not too severe, if she thinks supplementation can help, but I'm confused about what exactly I should do. 

 

I'm just wondering what my fellow forum folk think about this, and if any of you have had any success with a more holistic approach to treating bone density issues?

 

Also, how long before I should get another scan to see if what I'm doing is working? Should have asked the doc, but it slipped my mind!  

 

Also, what kind of weight bearing exercise would be good to help this? I've always been extremely active, so it's so surprising to me that I have such low density. Is adding more walking into my routine enough, or should I be doing more? 

 

Thank you. :) 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BelleVie Enthusiast

Also, just wondering if there any dancers out there who would know if it's okay to dance on pointe? I dance, and I'm wondering if I should stop dancing pointe because of the added stress on my feet. I definitely don't want to fracture anything! 

Link to comment
Share on other sites
1desperateladysaved Proficient

My calcium levels are good.  I have been asked NOT to take calcium by my functional medicine nurse.  She said that it tends to make digestion worse.  I don't use dairy products, but I may be able to in the future.  I have been taking magnesium, vitamin D, and vitamin K in multi-vitamin.   I eat meat, veggies, nuts, and fruit.  I also use coconut and olive oil.  I don't eat foods that are for entertainment.  If you give your body all of the nutrients to heal, I believe your bones will heal too.  I believe that spiritual life is important for bone density too.

 

For exercise I do daily squats, push ups, and sit-ups. This is functional exercise and I would like to learn more about this type of exercise.  I also do exercises for my back recommended by my chiropractor.  I walk up and down stairs several times a day and walk many hours making meals.  In the summer, I do gardening.  I like to jump on my mini-tramp to music when I can find my music disk.

 

Twenty five years ago, my dentist became upset about my teeth.  He called my doctor.  On my next visit the doctor told me that she believed that my bone mass was 5 % of normal.  I had been a milk lover while young and into gymnastics and ice skating, so this news didn't make sense at age 25.  She told me to take Tums for Calcium, so I tried. This gave me tummy cramps and nausea, so I did not keep it up.

 

I believe you can redo bone density tests.  I remember reading that someone noted their progress, so I hope people will tell about their experience.

 

D

Link to comment
Share on other sites
IrishHeart Veteran

Belle Vie,

 

My doctor and I felt that taking 1200 calcium, with 600 magnesium and 2000 ius D were the best approach for me at the beginning as we both did not want me on medications. My bone density scan of 2011 was borderline osteporosis in the hips and lumbar spine

and this year, it had improved a lot (yaay!) :)

 

so I am on the right track.

Part of this improvement was also because I could finally exercise and use weights. (double yaay!) 

 

He told me I could back off the calcium supps once I had a substantial increase in bone density. He suggested 6 months or so of supplementing, but now that I eat more of a paleo-type diet, I get tons of greens, so my calcium intake is pretty good.

 

 

According to the National Osteoporosis Foundation, the best exercises for building and maintaining bone density are:

  • Weight-bearing exercise, such as Open Original Shared Link, that makes you work against gravity while staying upright.
  • Muscle-strengthening exercise, such as Open Original Shared Link, that makes you work against gravity in a standing, sitting, or prone position.

Nonimpact activities such as balance, functional, and posture exercises also may benefit people with osteoporosis. Although these exercises don't build or maintain bone density, they may increase muscle strength and decrease the risk of falls and fractures.

If your doctor determines that it's not safe for you to perform high-impact weight-bearing exercises, he or she may recommend low-impact weight-bearing exercises that are less likely to cause fractures and also build and maintain bone density. These include:

  • elliptical training machines
  • low-impact aerobics
  • stair-step machines
  • walking (either outside or on a treadmill machine)
  • Programs that maintain muscular strength can slow the loss of bone mineral density associated with osteoporosis, and may help prevent fall-related fractures. Examples of muscle-strengthening exercises include functional movements such as standing and rising on your toes, lifting your own body weight, and the use of equipment such as:
  • Experts recommend performing strength-training exercises two to three days per week.

    Nonimpact Activities for Osteoporosis

    Certain nonimpact activities can improve your coordination, flexibility, and muscle strength and reduce your risk of falls and fractures while increasing your mobility and overall quality of life.

    Balance exercises such as Open Original Shared Link can strengthen your leg muscles, and help you stay steadier on your feet. Posture exercises can improve your carriage, reduce the "sloping" shoulders associated with osteoporosis, and decrease your risk of fractures, especially in the spine. Functional exercises can improve your ability to perform everyday activities such as getting in and out of bed and chairs, and climbing stairs.

    Balance, posture, and functional exercises can be performed daily.

     
     
     

    Although exercise can benefit almost everyone with osteoporosis, it's important to remember that it's only one component of an overall treatment program. Other essential lifestyle recommendations include a diet rich in Open Original Shared Link and Open Original Shared Link, maintaining a normal body weight, and avoiding tobacco use and excessive alcohol consumption"

Hope this helps!

 

PS Dance all you want, but not on pointe, IMHO. risk of fracture and all. Give it some time, hon.

I dance all the time--loud music, like a mad woman, energetic stuff --and I do not care who sees me. LOL

Dance lessons for 15 years as a kid and I still "got it" 

Link to comment
Share on other sites
cyclinglady Grand Master

Sorry, am trying to get out of the house early this morning (teach a class).  That said, I fractured a vertebrae in June 2013 doing NOTHING!  It was just a few months after my diagnosis.  My bone scan showed osteoporosis in my back and osteopenia in my hips, etc.  I am schedule for another scan in about two years.  It does take that long to show improvement (if any), especially in women my age.  

 

I have been taking Vit. D, calicum and magnesium daily.  I have just started hormone replacement therapy (HRT) to help me build bone (just one year out of menopause).  I think this is my best shot for building bone.  

 

I don't want to take any drugs for osteoporosis.  My research indicates that it build bone well, but in the bone-building cycle, the drug does not encourage the body to clear away the dead bone and then re-build on a good foundation.  Too many women have been experiencing spontaneous fractures (e.g. thigh bone) just walking around.  Drugs have side effects and I'm always the one to have the worst reactions!  

 

After my fracture, I walked.  Walked. Walked.  I was devastated after my fracture as I am a cyclist, runner and swimmer!  I really miss my road bike!  

 

So, bought a comfort bike and am riding just around 30 miles.  No century rides until I can get back on my road bike (a hunched over position is too much pressure on my T-9 vertebrae).  Started running again in October -- carefully, watching every crack.  But emotionally feeling much better!

 

The risk of fracture is high, so I have compromised but cutting back on exercise.  I swim a lot to keep in shape too though that's not great for my bones. I use light weights at home.  Thinking about going to the gym (which I hate) after the holidays. 

 

I would dance, but not on pointe.  Wait.  Be patient.  And I know that is so hard to do!

 

Got to go!

Link to comment
Share on other sites
ynot Newbie

Hi everyone. Hope I'm posting this in the correct forum.

 

I had a DXA scan done last week and got the results today, and the doctor told me I have extremely low bone density in my lower back. From what I understand, if your T score is -2.5 or more, that puts you in the category for a diagnosis of osteoporosis, is that right? Mine was -2.6, with a Z score of -2.0. It says:

 

Spine AP BMD (L1-L4): .925 g/cm (squared) (79% of Age Matched normal), Z score (-2.0) 

 

The doctor told me to start a calcium supplement and add more protein to my diet, but then I did more research and it seems that a lot of newer research on osteoporosis and bone density suggests that calcium supplementation doesn't do much to fix low bone density, and that things like K-2 supplementation and vitamin D supplementation are more important. 

 

The doctor did not try to put me on a prescription medication, which makes me think that it's not too severe, if she thinks supplementation can help, but I'm confused about what exactly I should do. 

 

I'm just wondering what my fellow forum folk think about this, and if any of you have had any success with a more holistic approach to treating bone density issues?

 

Also, how long before I should get another scan to see if what I'm doing is working? Should have asked the doc, but it slipped my mind!  

 

Also, what kind of weight bearing exercise would be good to help this? I've always been extremely active, so it's so surprising to me that I have such low density. Is adding more walking into my routine enough, or should I be doing more? 

 

Thank you. :)

 

I think you are right to consider K2 supplementation. If you haven't already found it, the Weston Price foundation has some good articles on K2 ( the x-factor ). I cannot personally attest to its ability to help with bone density, but out of all the vitamins I take, K2 is one of the few that I can say with confidence has a positive and real effect. Since taking it my teeth always seem clean. No more gunk building up and no more film waking up in the morning. I take both butter oil ( mk-4) and a mk-7 supplement. Definitly worth a shot in my opinion. Don't forget Vitamin A ( not betacarotene ) and Vitamin D. All three are suppose to work synergistically. 

Link to comment
Share on other sites
kareng Grand Master

The thing with calcium is - the levels can be fine in your blood - that doesn't mean you are getting enough.  Out bodies take the calcium out of the bones to maintain a good level in the blood. That is why they say to add calcium to help with bone density.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

The thing with calcium is - the levels can be fine in your blood - that doesn't mean you are getting enough.  Out bodies take the calcium out of the bones to maintain a good level in the blood. That is why they say to add calcium to help with bone density.

 

This is exactly what my GYN and GI guy said...and they used the term "calcium leeching" in terms of long undiagnosed celiac. 

Link to comment
Share on other sites
BelleVie Enthusiast

Oh thank you all so much for responding. I'm glad to know other people have avoided the pharmaceutical route as well. 

 

Desperateladysaved, I like what you said about not eating foods for entertainment. That's a good way of thinking of it. I don't do that too often, though I have really been enjoying this Ghiradelli hot chocolate that my mom mailed to me a few weeks ago! 

 

As far as exercise goes, I go to dance class two nights per week right now. I think in a couple of months I'll try and increase to three or four. The elliptical seems like a good idea as well. 

 

Cyclinglady, I actually thought of you after first talking to my doctor! It's lucky that I caught it, because otherwise I fear that something similar to what happened to you might have happened if my density got any lower. I still can't believe how crazy it is that you had that fracture! But I'm so glad to hear things are looking up for you and you're able to exercise again in the way that you enjoy. 

 

Yeah, the calcium leeching thing is absolutely true. I had bloodwork done back in October that showed perfectly normal calcium levels. Yikes. I just wonder how many other people are in a similar boat, with doctors telling them everything is fine when it's not. :(

 

Thanks to all of you for your continuing, amazing support. You silly yaks are great. 

Link to comment
Share on other sites
1desperateladysaved Proficient

Many perhaps have not heard of a new kind of blood test for nutrient levels.  It became covered by my medical insurance this year and also Medicare will now cover it . It had not been recognized the year before.   I heard this from the functional medicine nurse.  This test recognizes that the blood serum can steal the nutrients from cells, so cells can be quite depleted while serum appears well.  It tests the white blood cells to discover what the nutrient levels within body cells are.  The test is called Spectra Cell. 

 

I have not asked if white cells are getting nutrients whether bone cells will too.  I don't care to have my bone cells tested, except maybe my fingernails.

 

D

Link to comment
Share on other sites
kareng Grand Master

Many perhaps have not heard of a new kind of blood test for nutrient levels.  It became covered by my medical insurance this year and also Medicare will now cover it . It had not been recognized the year before.   I heard this from the functional medicine nurse.  This test recognizes that the blood serum can steal the nutrients from cells, so cells can be quite depleted while serum appears well.  It tests the white blood cells to discover what the nutrient levels within body cells are.  The test is called Spectra Cell. 

 

I have not asked if white cells are getting nutrients whether bone cells will too.  I don't care to have my bone cells tested, except maybe my fingernails.

 

D

Fingernails aren't made of bone, FYI.

Link to comment
Share on other sites
1desperateladysaved Proficient

You're right. That makes me doubly sure I wouldn't want to test my bone cells.  Just to be clear though, nobody offered me a test to do that. 

Link to comment
Share on other sites
BelleVie Enthusiast

Funnily enough, leaving the grocery store this evening I slipped on a patch of ice and fell hard right on my bum. Sigh. After all that care not to fall down. Thankfully, I think I'll just have a pretty bruise.  :rolleyes:

Link to comment
Share on other sites
IrishHeart Veteran

Funnily enough, leaving the grocery store this evening I slipped on a patch of ice and fell hard right on my bum. Sigh. After all that care not to fall down. Thankfully, I think I'll just have a pretty bruise.  :rolleyes:

 

My bum is where I have the most padding at this moment. But I have fallen hard on my tailbone before. It hurt like hell.

 

Sat on a bag of frozen peas for hours... Hope you are okay!

Link to comment
Share on other sites
kareng Grand Master

Many perhaps have not heard of a new kind of blood test for nutrient levels.  It became covered by my medical insurance this year and also Medicare will now cover it . It had not been recognized the year before.   I heard this from the functional medicine nurse.  This test recognizes that the blood serum can steal the nutrients from cells, so cells can be quite depleted while serum appears well.  It tests the white blood cells to discover what the nutrient levels within body cells are.  The test is called Spectra Cell. 

 

I have not asked if white cells are getting nutrients whether bone cells will too.  I don't care to have my bone cells tested, except maybe my fingernails.

 

D

A bone density test doesn't take bone cells....it's an X-ray. Very simple and painless. Here is an explanation.

Open Original Shared Link

Link to comment
Share on other sites
  • 3 weeks later...
blmoreschi Apprentice

I've been reading the advice about dancing on pointe with great interest. My 11 year old celiac daughter with Osteoporosis (-3.4 in her spine, -2.8 in her hip, so pretty severe) is a dancer and all the doctors have said that dancing is the absolute best exercise for her to help build her bone density. She has been gluten-free 9 months now. She does take lots of calcium and vit D supplements because of the bone leeching issue. Her blood calcium levels have always been just fine, and prior to the Celiac Diagnosis, she was spilling all the extra calcium out in her urine (which I was having trouble getting doctors to acknowledge). A new 24 hour urine test after being gluten-free 6 months was much better - the calcium was at a normal level in her urine. Which shows that her body is absorbing it properly now, presumably.

 

She is about a year away from being tested for pointe shoes. I'm absolutely dreading having to be the mean mom and telling her she has to wait until her bone density improves more, but if that's what we have to do we'll do it. :( She has dreamed of the day she gets her pointe shoes since she was about 5, and is thrilled to finally be in a pre-pointe class this year.

Link to comment
Share on other sites
BelleVie Enthusiast

blmoreschi, 

 

Who knows? Her density may have improved since then, and she may be just fine to start pointe! Especially since she is so young. I'm sure her body is eagerly re-building bone, making up for lost time. And if she can't begin pointe as quickly as she wants to, then she'll be all the stronger when she actually can begin. Also (I'm not a doctor, so you would definitely have to check with someone on this,) beginner pointe is all barre-focused, mostly with basic releves and echappes--nothing too jarring for the body. I think that even if her bones have not healed completely, she might be able to at least do the basics, to start building strength. Center work, maybe not, but then again, it usually takes a few months of barre work before being able to move into the center! 

 

I was sad to let my pointe shoes go, but my body was telling me that it wasn't a good idea. I was just too stubborn to listen. :) I'm glad that I got the bone test results and changed something before I ended up fracturing my feet! Maybe someday I can go back, but until then, I'm just as happy dancing on demi. :) 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Julie Riordan replied to Julie Riordan's topic in Traveling with Celiac Disease
      3

      Any ideas for travelling

    2. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    3. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    4. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    5. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      3

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,495
    • Most Online (within 30 mins)
      7,748

    Zofosho
    Newest Member
    Zofosho
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
×
×
  • Create New...