Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

aidan-802

Recommended Posts

aidan-802 Rookie

Hey guys,

 

    So I have a question that concerns nourishment as well as muscle building. Ive been training pretty hard over the past year or so in excelling my fitness as well as athletic ability. Over the year I have gotten stronger and leaner, also lost a lot of weight (due to hard cardio and celiac) But I noticed I wasn't making any real muscle gains, I thought I had maybe overtrained, I was fatigued and tired a lot.. So I was recently confirmed that I have celiac (as of one week ago actually) and have been gluten free since. I used to do vigorous exercise, to failure at some points, and that combined with malnourishment probably made me lose muscle. I am a very healthy eater, and very fit, yet I have the body of a kid who eats taco bell every day. I really enjoy hard exercise and hope to get back at it. How long do you suppose it takes to heal until I can get back to working hard, and running a lot? (and actually seeing results for the work I'm putting in)

 

Thanks a lot! Any suggestions at all are much appreciated, especially comments from any experienced athlete/weightlifter/sports trainer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Time. It takes time. Everyone heals at a different rate. It took me about a year to feel well enough to start training for events, but 1) I am over 50, and 2) I had fractures (doing nothing) resulting from celiac disease (that will slow you down.....)

You will get better and stronger, but you do not want to cause further damage. If I had continued to push, I could have had heart damage from the anemia. It was better for me to wait until the anemia was resolved and the fractures healed. It was hard for me just to walk or swim carefully. Then I ran, but was a little worried about falling or jarring myself. Took me 9 months to get back on my bike and I am now training for a century ride. It will be my first as a celiac and diabetic. Figuring out my fuel has been the hardest. But it is great to be riding with my friends again!

You are young and should heal very fast. A week is not enough time to heal. Listen to your body. Workout, but do it gently. I will defer to Jamie about the weightlifting. She's an expert in that area.

aidan-802 Rookie

Time. It takes time. Everyone heals at a different rate. It took me about a year to feel well enough to start training for events, but 1) I am over 50, and 2) I had fractures (doing nothing) resulting from celiac disease (that will slow you down.....)

You will get better and stronger, but you do not want to cause further damage. If I had continued to push, I could have had heart damage from the anemia. It was better for me to wait until the anemia was resolved and the fractures healed. It was hard for me just to walk or swim carefully. Then I ran, but was a little worried about falling or jarring myself. Took me 9 months to get back on my bike and I am now training for a century ride. It will be my first as a celiac and diabetic. Figuring out my fuel has been the hardest. But it is great to be riding with my friends again!

You are young and should heal very fast. A week is not enough time to heal. Listen to your body. Workout, but do it gently. I will defer to Jamie about the weightlifting. She's an expert in that area.

Thanks a lot, i do in fact need to just rest a lot, yet since I'm young i do not have any real trouble exercising. I feel fine (even when i push myself sometimes) Am i causing harm if a do just light running and light weights? Thank you

aidan-802 Rookie

Oh and I actually have slightly higher than normal Iron levels, in which we do not know why yet, but does that have any effect on exercise?

cyclinglady Grand Master

Oh and I actually have slightly higher than normal Iron levels, in which we do not know why yet, but does that have any effect on exercise?

No, but make sure you are not taking supplements that contain iron. Doc can keep an eye on your higher iron levels.

cyclinglady Grand Master

Thanks a lot, i do in fact need to just rest a lot, yet since I'm young i do not have any real trouble exercising. I feel fine (even when i push myself sometimes) Am i causing harm if a do just light running and light weights? Thank you

I do not think you will cause harm. Skip interval training for now. No sprints and do not watch the clock! Just have fun.

KCG91 Enthusiast

I ran easy 2-3 times a week for the first three months after diagnosis. I found it was enough to get the endorphins I was used to and to keep me 'fit', I actually improved when I did run 5ks just from the healing that had already taken place. The first time I really trained (between four and seven months gluten-free, it was for a trail race) was totally unrecognisable from the marathon training I was doing just before I got diagnosed, it was so good! Agree with cyclinglady about fuelling, you may need to experiment with it a bit. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
archaeo in FL Apprentice

Hello Aidan,

 

To build muscle, you really have to eat a lot of protein. It can be difficult to eat enough! Some folks recommend 1 g per pound of bodyweight (particularly if you want to build muscle), and you shouldn't get less than 1 g per pound of lean mass (your body weight minus body fat), particularly if you're lifting. I'm doing a fitness challenge through my gym right now and we're working through a lot of that. The best thing would be for you to work with a nutritionist and let him/her know what your specific needs (Celiac) and goals (gain muscle mass) are. As a relatively small woman who's used to trying to limit what I eat (calories and otherwise), adding lots of food to my daily meals - particularly meat - has been tough. I've added a lot of deli meat because it's easy (and because I don't have any problem with blood pressure - the salt in deli meat would make it a more difficult go-to for some folks).

 

I do a variation of CrossFit and we work to failure pretty often. I'm still dealing with what I think is a level of exhaustion that doesn't match my physical effort (so I think something else is causing me to be more tired than I should be), but I am seeing gains in strength - which obviously makes me very happy. SLEEP is super important. It's when your body heals itself, and builds muscle. Let yourself sleep as much as possible - turn off the TV (or computer, or cell phone) and go to bed early. Drink lots of water. I've been diagnosed and gluten-free for about two years, but in the first year I just ran - I couldn't imagine lifting weights I was so tired, and running was something I could do on my schedule and at my pace. I did a half marathon last spring and another last fall and then decided it was time to get stronger.

 

In terms of healing time before you get back to training - just listen to your body. Personally, I never stopped moving - no matter how tired I was - even though I did scale back on length and intensity. If you need two days off after a tough workout, do some stretching or yoga instead of back to back tough training. If you feel great, go for it (but listen to your body again in recovery - after the workout!). If you don't feel ready for tough workouts yet, ease into them. And don't be hard on yourself mentally - remember that you're healing on the inside, and after a while you'll be able to push yourself harder.

 

Please be careful of the high iron - I found out recently that I also have something called hemochromatosis. "Normal" bodies shed excess iron. People with hemochromatosis store the iron, eventually in their organs, which causes all sorts of problems. The good news is that if you can catch it early, it can be monitored and very easily treated (essentially by donating blood or just having it drawn).

 

Hope that's helpful!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...