Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


Archived

This topic is now archived and is closed to further replies.

Mitchie K

Needed To Connect.

Recommended Posts

Hey there,

 

Just needed to connect with someone I guess. 

Diagnosed with Celiac disease almost 2 months ago but have battled it without the official diagnosis for 10 years. 

Today I ripped into a bag of Lays chips that had the supposed "seal" of approval and I sat down in the chair and slept the day away. Guess I react to "20 parts per million"  Running a slight fever now and dealing with the terrible other things that go along with glutened. 

I hate sleeping the "sleep of the wheat" as I like to call it. It's not restful sleep it feels like my body is shutting down. 

Honestly I just wanted to connect with other people like me. I feel so alone sometimes, nobody truly gets how awful this feels unless you live the life. 

And I get so upset. Sometimes I just want to go a restaurant, I want to be able to shave without getting 100's of cuts on my legs because of all the bumps, I want to sit down to a family dinner without questioning every ingredient. And I want to stay awake for an ENTIRE day, not part of it.

Just been a hard day, I'm sorry I don't mean for this to get anyone down, it's just so beyond frustrating, And who better to understand then all of you? 

 

Mitchie. 

Share this post


Link to post
Share on other sites

Join eNewsletter


Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


You can vent anytime, we all have been there...I will make a suggestion ... you are very new to the gluten-free lifestyle.... your body hasn't got to a healing point but it will. While this process is an ongoing one I suggest trying to eat a very naked/clean diet to help the healing along....Try to stay away from the processed gluten-free stuff.. eat healthy fruits, veggies, meats .. If you need junk try popcorn or gluten-free pretzels...ice cream if not dairy intolerant.....

As you improve your body will let you know how sensitive you are... I also recommend Probiotics & digestive enzymes to help heal & digest....

Being gluten-free isn't convenient but it is the best disease to have no deadly drugs, no chemo, no radiation, just a food change....

Remember people go through a grieving process just like loosing a love one, this maybe what you are experiencing today...anger, denial, bargaining, sadness then comes healing , hope & a healthy life....hugs

Share this post


Link to post
Share on other sites

Join eNewsletter

Eek the dreaded shared production lines in shared facilities. When I was new I got hit by that and it was horrible, but over time you will learn to pick those things carefully. As for this place it's an amazing site full of helpful people who "get" it and have been there. It was almost a year ago I came here freaking out asking hundreds of questions and working massive Google-fu to find help. Hang in there it does get better over time.

Share this post


Link to post
Share on other sites

Join eNewsletter

Thank you so very much for responding, It's nice to be able to talk freely about these issues with people who truly understand. I had suspected that I had celiac disease for many years, but after being "officially" diagnosed by a Dr a few short months ago, I guess that just makes everything real. I think I am going through a bit of depression, maybe I always wondered in my own mind if i REALLY had it, or maybe that feeling so ill all the time was normal. Sounds pretty stupid when I think about it now. 

  I also now understand that my healing isn't just physical, but psychological as well. I'm definitely grieving my past life, Thank you all for the support. 

Share this post


Link to post
Share on other sites

Join eNewsletter

I struggle with believing I have it, too, despite all of the evidence to the contrary -- how weird are we??  LOL 

 

Vent away, and maybe consider finding a professional to talk to if you don't start feeling better emotionally, it can really help, in my experience.

Share this post


Link to post
Share on other sites

Join eNewsletter

You are way too early into the healing process to label yourself as sensitive, so don't lose hope in that department.  If you ate the Lay's that are marked as gluten free and tested, it does not mean there are 20ppm's in the product.  It could be zero or it could be 5.  Lay's lists on their website which products are tested and then have a separate category for "no gluten containing ingredients".....which isn't the same thing as tested.  Potato chips also contain a lot of fat and that can be hard to digest in the beginning.  Have you tried digestive enzymes?  They can really make a difference in the beginning when you need help with digestion.

 

I know this is hard right now but it's probably because you aren't feeling well yet.  It gets so much easier the longer you do this and down the road, you will be able to eat a lot more foods without feeling sick.  That's the way it is for most of us so there is plenty of hope and good days to look forward to!  Hang in there!  :)

Share this post


Link to post
Share on other sites

Join eNewsletter

I just wanted to chime in about the fatigue and sleeping. At only three weeks gluten-free, it is a big deal for me too, so I wanted to extend cyber wishes that you feel better really soon. Best of luck to you.


Celiac Disease, diagnosed April 1, 2015

Migraines, Esophagitis/Gastritis, Lower Digestive Issues, Osteoporosis, Anxiety, Arthritis, etc--some improving.

DQ2.2 and DQ2.5 trans

Share this post


Link to post
Share on other sites

Join eNewsletter

I think I felt much the same as yourself when I first went gluten-free, and although it is hard to believe you will definitely feel better over time, but it doesn't happen overnight, and some days I still mourn the fact that I cannot just stop at a bakery and buy a chocolate eclair or eat out with friends, and so there is definitely a sense of loss which you have to come to terms with, and as I said, it takes a bit of time, and then once your body starts to heal and you look and feel better you will wonder why you were so bothered about going gluten-free in the first place. 


Diagnosed Ulcerative Colitis Feb 2014 (in remission)

Diagnosed Lichen Schlerosus May 2014

Diagnosed GERD Aug 2014  

Gluten free from Sept 2014

Dairy free from Dec 2014

Sulfite free from Sept 2015

 

 

Share this post


Link to post
Share on other sites

Join eNewsletter

I've been gluten-free for about a year now. I feel better than I did a year ago. All my issues are not resolved, but I'm 60 ... So I have a lot of damage to overcome. And some things that may not resolved, but that's a different story.

I know that when I feel gluten, I bump up my intake of water. I want to flush my system as quickly as possible. I drink 4 ounces of aloe vera juice. And if I need to sleep, I sleep. Cellular repair happens when we sleep, so I think of it as restorative.

Share this post


Link to post
Share on other sites

Join eNewsletter



Join eNewsletter