Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Not Sure If This Is Truly Celiac Related, But...

BethM55

Recommended Posts

BethM55 Enthusiast
BethM55
Posted

A friend asked me the following, and I'm not sure what to tell her.  I did suggest she look in to leaky gut syndrome.  Other than that, any suggestions?  (Yes, I know... I'm puzzled also about her use of  the term 'regular bread products', as opposed to whole grains.)  Thank you in advance!

 

"Nutrition question:  do you know of anything in the outer coating (the rough parts) of grains like wheat that would be an irritant or allergen?  Sean has never been good with whole grains, but he has no trouble with regular bread products.  It finally became obvious when we shared a whole-grain muffin that was very soft and finely-ground, but still made his stomach upset.  It has me baffled."

 

Thanks, 

-Beth.

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Is this person Celiac.  It sounds like he does not know what to avoid to be gluten-free.  If he is a silent Celiac he may be starting to get reactions as it sounds like he had eaten gluten regularly and continuing to incur damage.  If she has allergies to a food, that is complete different.  If she is NCGI then I would question if a problem exists.

 

At any rate, it is hard to be sure of what she is actually talking about.

 

Colleen

BethM55 Enthusiast
BethM55
Posted
  • Author

gluten-free Lover, he is not celiac that I'm aware of, although he's not been tested.  I've suggested in the past that the entire family try being gluten free because of multiple health problems, but they're not amenable to this.  NCGI is a possibility too.  If he is NCGI, why do you question if a problem exists?

GF Lover Rising Star
GF Lover
Posted

do you know of anything in the outer coating (the rough parts) of grains like wheat that would be an irritant or allergen

Wheat Grass?  My opinion is that you should not eat it due to possible contamination.  What other rough parts would you eat...I don't know of any.

 

he has no trouble with regular bread products

What regular bread products is eating?  Does he have any other intolerances?  Is he eating gluten free bread?

 

 we shared a whole-grain muffin that was very soft and finely-ground, but still made his stomach upset.

A whole grain muffin?  Was is gluten free?  What was in the muffin?  the grinding of grains should make no difference.

 

It seems unclear exactly what he is eating...rough parts?  The comparison of bread products to a finely ground product?  I'm not sure they understand exactly what they need to do to be gluten free.  I emphasize 'understand'.  Is only the one person eating gluten-free with the rest of the family kind of gluten-free?  That will make a difference right there.  There really is not enough information to figure out what exactly is going on.  Basically, It is unclear to me if the person in question is eating gluten-free  or just does not like 'whole grains'.

 

Colleen

cyclinglady Grand Master
cyclinglady
Posted

I would never recommend for someone to go gluten free without first getting tested for celiac disease. If the tests are negative and the person wants to try the gluten-free diet to see if it eliminates their symptoms, then fine. The gluten-free diet is a huge commitment not only to food changes but lifestyle changes as well. I can see why your friends would resist.

There is no way that I would have gone gluten free to resolve my life-long anemia. Heck, it took me over a year of being on the diet to see results. I personally needed proof that gluten-free was the cure for my illness. There was also no way that I would have given up so many carbs after my celiac disease diagnosis without proof that I had diabetes either. It is hard to disregard lab results!

BethM55 Enthusiast
BethM55
Posted
  • Author

Thank you all for your responses.  I will have to talk more with my friend to get more specific information.  Her son may be gluten intolerant, or there may be other issues to address.  Hard to tell.  Again, thanks!

RMJ Mentor
RMJ
Posted

I think the outer coating would be the wheat bran?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...