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Celiac or non celiac gluten sensitivity

Life499

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Life499 Newbie
Life499
Posted

I have been dealing with various symptoms for most of my life. Over time my symptoms got worse and the number of symptoms increased.  I have had about 20-30 symptoms everything from depression and brain fog to joint pain and severe abdominal gas pain. I have been eating gluten free for a while now but if I eat gluten I will get a delayed reaction that will start in 12-48 hours. It usually starts with mental symptoms and fatigue if I continue to eat gluten things will get worse and other symptoms will appear like abdominal gas pain. Does the worsening of symptoms over time indicated celiac or non celiac gluten sensitivity or can it be either?

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Irene Joanne Explorer
Irene Joanne
Posted

Lots of people with celiac have a delayed reaction. 

SLLRunner Enthusiast
SLLRunner
Posted
1 hour ago, Life499 said:

I have been dealing with various symptoms for most of my life. Over time my symptoms got worse and the number of symptoms increased.  I have had about 20-30 symptoms everything from depression and brain fog to joint pain and severe abdominal gas pain. I have been eating gluten free for a while now but if I eat gluten I will get a delayed reaction that will start in 12-48 hours. It usually starts with mental symptoms and fatigue if I continue to eat gluten things will get worse and other symptoms will appear like abdominal gas pain. Does the worsening of symptoms over time indicated celiac or non celiac gluten sensitivity or can it be either?

Have you shared this with your doctor and asked for a referral to a GI doctor? 

If gluten affects you as you indicate, you need to be tested for celiac. Keep in mind, however, that you have to eat gluten for a certain amount of time prior to testing. 

 

cyclinglady Grand Master
cyclinglady
Posted

Unfortunately, there is no test to diagnosis Non-Celiac Gluten Sensitivity.  It is a process of elimination (namely, eliminating celiac disease and other intestinal illness (e.g. SIBO, Crohn's)).  Since you have been gluten free, you would need to consider a gluten challenge:

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Here's more about testing:

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Remember, celiac disease is not an allergy.  It is a autoimmune disorder that is triggered by gluten (unlike Lupus, RA, MS, etc. where triggers are not known for sure).  A tiny amount can set off a chain of events that can last for days, weeks, months, or years!  

I hope this helps! 

Life499 Newbie
Life499
Posted
  • Author

I'm not going be to be able to do the gluten challenge, going to have to wait for the new tests that are being developed that does not require a person to eat gluten to test positive for it.

Is there anyway to distinguish celiac and non celiac gluten sensitivity?

squirmingitch Veteran
squirmingitch
Posted
1 hour ago, Life499 said:

I'm not going be to be able to do the gluten challenge, going to have to wait for the new tests that are being developed that does not require a person to eat gluten to test positive for it.

Is there anyway to distinguish celiac and non celiac gluten sensitivity?

Not without doing the celiac testing. 

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