Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What to look for in a GI Doc?

EasterLily

By EasterLily
in Doctors

Recommended Posts

EasterLily Explorer
EasterLily
Posted

Hello everyone. I have an appointment with my GI on May 10. I was just wondering what I should be looking for in a good GI to help treat the gluten sensitivity. This way I can decide after the appointment if I want to continue seeing him or look elsewhere. I am already seriously considering changing my regular physician after 32 years. He joined a much larger organization and my quality of care has definitely changed. Especially since starting this diet.

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Since your first GI never tested you for celiac disease and might not have taken biopsies during your endoscopy,  I would suggest finding a GI who has diagnosed or works with celiac patients.  Often doctor directories list biographies on each physician.  Look for one who specializes  celiac disease.  Call and ask staff before wasting time and money in an appointment.  Consider asking a local celiac group for a reference.  

Good luck!  

  • 4 weeks later...
Scuff Apprentice
Scuff
Posted

I haven't seen mine yet, but I got a recommendation from a friend who's son has celiac. When I called the large practice, the scheduler recommended seeing another dr who specializes in celiac. Perhaps ask around?

Victoria1234 Experienced
Victoria1234
Posted
2 hours ago, Scuff said:

I haven't seen mine yet, but I got a recommendation from a friend who's son has celiac. When I called the large practice, the scheduler recommended seeing another dr who specializes in celiac. Perhaps ask around?

Sorry, pls specify whether the scheduler was recommending to see someone inside the practice who is different from your original choice, or someone outside the practice?

if it's someone inside who was not recommended, ask your friend if your friend if th know anything about them.

did  you ask why you can't see your first choice?

Scuff Apprentice
Scuff
Posted
3 minutes ago, Victoria1234 said:

Sorry, pls specify whether the scheduler was recommending to see someone inside the practice who is different from your original choice, or someone outside the practice?

if it's someone inside who was not recommended, ask your friend if your friend if th know anything about them.

did  you ask why you can't see your first choice?

My friend's son sees a pediatric GI. She recommended a dr that others liked, but she doesn't have personal experience with him. When I called, the scheduler asked my reasons for the visit and I told her that I suspected celiacs. She recommended seeing another dr in the office that specialized in celiac. After a 2 week headache with getting the referral, I was very pleased to be listened to and felt she was very helpful. My friend says that U of M is great for celiac (and anothere thread here seems to agree.) I've yet to see her, though- appointment's the end of June. I'm hopeful. 

Victoria1234 Experienced
Victoria1234
Posted

Sounds great then!

by the way, are you still on gluten?

Scuff Apprentice
Scuff
Posted

Yes. Went back on it a few weeks ago. I did mess all that up, doing Whole30 for March and April. Thought it was my gallbladder or an ulcer. I am glad I get to keep my organs! ;)  But, oops. I'll be on it 7 weeks by the time my appointment rolls around. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...