Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Question about lab work

Christory77

Recommended Posts

Christory77 Rookie
Christory77
Posted

So I'm new to all of this. I don't really have stomach issues other than occasional heartburn. Went to a gastro Dr and she took some blood samples. There's a test where the range is 0-19. I have no idea what it is called but mine was 62. She recommended an endoscopy and my anxiety has completely taken over. I'm terrified. I know nothing about this other than what came up when I googled celiac. What came up was a lot of scary this is what can happen to you results. I'm beyond afraid and do t know what to do. Reaching out for help. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tessa25 Rising Star
tessa25
Posted

Having celiac means you have to buy brand b instead of brand a. A diagnosis for most people just means they have to go gluten free. Think of it in phases.

phase 1 - eat all of your favorite stuff with wheat, barley and rye until after the official diagnosis.

phase 2 - eat stews and simple foods until your symptoms go away.

phase 3 - eat whatever you want as long as it's gluten free. There's lots of great tasting equivalents to the stuff you're used to. Barilla pasta, Canyon Bakehouse bread, Betty Crocker cakes.

 

Oh, and the endoscopy is easy peasy.

Christory77 Rookie
Christory77
Posted
  • Author

Thank you so much for saying that. I don't deal well with unexpected things and getting a phone call saying hey we want you to go to the hospital for an endoscopy has thrown me for a loop. I googled celiac and everything mentioned cancers, chirosis, and lots of scary stuff. It caused me to go into a panic. 

frieze Community Regular
frieze
Posted

But! you found US. now all will be well.

Christory77 Rookie
Christory77
Posted
  • Author

The labs finally uploaded to my record. I'll post the results. Don't know what any of it means.

Component Results

Component Standard Range Your Value
Immunoglobulin A, Qn, Serum 90 - 386 mg/dL 202
Gliadin IgA 0 - 19 units 62
Gliadin IgG 0 - 19 units 2
T-Transglutaminase IgA 0 - 3 U/mL <2
T-Transglutaminase IgG 0 - 5 U/mL <2
 
tessa25 Rising Star
tessa25
Posted

The first test is used to verify that a low on an IGA test is valid. In your case it is valid. A high on any one of the other 4 tests should lead to an endoscopy to confirm celiac.

ironictruth Proficient
ironictruth
Posted

Yes, endoscopy is needed. The gliadin tests can be false positive with liver issues, connective tissue disease and other autoimmune disorders. Best to rule out or in celiac before going gluten free.

Have you considered the genetic test? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Christory77 Rookie
Christory77
Posted
  • Author

Thanks for the responses. As far as genetic testing goes I wasn't offered that as an option. They ran several labs and everything was normal. We were waiting on celiac to come back and when it did the one marker was high. Not sure who I would talk to about having a genetic test. I did a genesight test for medications and it showed folic acid was questionable. But nothing pertaining to this. Endoscopy is scheduled for Friday. 

cyclinglady Grand Master
cyclinglady
Posted

When I was diagnosed, only my DGP IgA was elevated.  The rest of the celiac panel was normal.  Even in follow-up testing, I only test positive to the DGP IgA.  My biopsies revealed a Marsh Stage IIIB.  Anemia was my only symptom at the time.  

My research finds that the DGP tests are good for very small children and old people.  I was 51 at the time and did not consider myself old, but there you go!  

Open Original Shared Link

Forgot to add....eat some good sourdough bread for me!  Keep eating gluten until you have completed all testing.  Talk to your doctor about take six or more biopsies.  Some doctors goof and just take two.  Big mistake.  The small intestine is vast (size of tennis court) so it is easy to miss patches of villi damage.  

 

Christory77 Rookie
Christory77
Posted
  • Author

Thank you. I'm still navigating this. It's very new to me. I'm Italian. I've eaten pasta and bread pretty much every day of my life for 39 years. 

tessa25 Rising Star
tessa25
Posted

Barilla makes great tasting gluten free pasta, Etalia makes a great artisan style bread, Canyon Bakehouse makes great bagels and sandwich bread so your good to go there. Canyon also makes focaccia but I've never tried it and it couldn't possibly compare to my sisters focaccia.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,108
    • Most Online (within 30 mins)
      10,442
    MiaPiwo
    Newest Member
    MiaPiwo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Symptoms Dismissed

      By Wheatwacked · Posted

      Chronic fatigue in the producer was the inspiration for the episode but I feel it touches on anyone that suffers and is dismissed as psycosomatic. The patient expressed my feelings elequently.  In episode 2 the doctor explains the problem well. I stopped all commercial milk protein like skim milk added to processed foods and in a few days there was a definate improvement in my  gut, bowel movements, discomfort etc. Still drinking several glasses of Pasture Fed grass fed milk with no negative effects.   Specifically, for myself Clonidine is the only medication that lowers my BP and the doctor did not renew it, insisting that I continue Losartan.  I think that she thinks I am abusing Clonidine and the reason the Losartan doesn't work is because I am non-compliant.  Absolutely not. Surprisingly after a few days withdrawal from the Clonidine my fasting blood sugar has gotten under control.  Fasting blood sugar near normal instead of over 160.  Last few days its been below 100.  I still need Glimiperide.  Without the clonidine my pulse rate is around 100 bpm, with it around 60.   Prescription of angiotensin receptor blockers in celiac disease is associated with persistent symptoms and surrogate markers of malabsorption.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12323722/ Angiotensin receptor blocker-associated enteropathy (ARB-e) is an increasingly recognised clinical entity with symptoms and histological findings identical to coeliac disease (celiac disease). There is evidence to suggest immune-mediated mucosal injury in ARB-e with a high prevalence of DQ2/DQ8; however, as IgA anti-tissue transglutaminase (anti-TTG) is usually negative   https://onlinelibrary.wiley.com/doi/full/10.1002/ueg2.12117 NEW research [Nov 2024] presented at the American College of Gastroenterology (ACG) Annual Scientific Meeting suggests that angiotensin receptor blockers (ARBs), a class of drugs commonly used to manage hypertension, may be associated with poorer outcomes in patients with coeliac disease. Findings indicated that patients taking ARBs had a higher likelihood of experiencing persistent symptoms and markers of poor small bowel healing, such as anaemia and iron deficiency.  https://www.emjreviews.com/en-us/amj/gastroenterology/news/angiotensin-receptor-blockers-may-worsen-coeliac-disease-outcomes/
    • mermaidluver22
      Some inflammation in ileum with celiac?

      By mermaidluver22 · Posted

      @BarcinoHi! I am so sorry abt your son but also relieved to know I am not alone! My ttg iga is still mildly elevated but going down. Last time we checked I had some small erosions in my ileum but recently got an MRE that showed no inflammation. Calpro 70. We are still in limbo but we are taking a conservative approach as well. Please keep me updated about his situation and outcomes! I always love to hear others opinions/experiences especially ibd specialists. 
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • BelleDeJour
      Dermatitis Herpetiformis - follow up dermatology appointment coming up

      By BelleDeJour · Posted

      Oh, thank you all so so much! I have found my people.   ❤️ I am so sorry that we have all suffered with this torturous itching and resulting sore skin. Sue, I can relate to what you wrote about the dark thoughts, I have had them, too. It's very tough and painful.  I have now had a 2 day straight run of only minor itching. I woke up this morning and did not want to get out of bed because it is the first time in months that I have felt comfortable and actually been able to appreciate the lovely feeling of the duvet on my skin, rather than just waking in pain and thinking about where I need to put cream on before I dress for work. If I can continue like this, then I think I could manage without medication but every time I say this, I then have a flare up. I plan to be very careful about what I eat over the weekend and it won't be easy as we are out with friends for dinner on Saturday (the pub do have very good gluten-free options, I checked of course!).  I really, REALLY appreciate your words so much and am so glad to have found this forum. I am going to read the articles kindly posted now, thank you Scott.
    • Scott Adams
      Turkey neck

      By Scott Adams · Posted

      I don’t know how common this is with celiac disease specifically, but significant inflammation, weight changes, aging, genetics, and skin elasticity can all play a role. It may be worth talking with both your doctor and a board-certified dermatologist or plastic surgeon to see what options are realistic, from skin-tightening treatments to surgical approaches, while also making sure there isn’t ongoing inflammation, thyroid imbalance, or nutritional deficiency contributing. You deserve support for both the physical and emotional side of this.
×
×
  • Create New...