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sddave

Stomach cramping.

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I get stomach cramps and pain from soy. I usually will use liquid pepto bismal.  It helps in just one dose. Pepto does nothing for D for me.

You may want to keep a diet and symptom log for a bit. Keep in mind that gluten reactions can be delayed so it might be something that you ate or came into contact with days before you get a reaction. The log can help pinpoint any pattern. That said you are early in the healing process and it is not uncommon to have ups and downs for a bit.

Hope you feel better soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I'm positive I didn't have gluten.   I think I'm having trouble digesting my food.   Most meals don't go down easily for me since I started going gluten free....except eggs.  I read about people taking digestive enzymes here.   But don't know if I should try them.

Could be stress related.

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Country Life has some digestive enzymes and they are certified gluten.  I have used their  products.    You won't have to call to insure they are safe.  Amazon carries them and some local food stores.  

When glutened, I become temporarily lactose intolerant and ANYTHING hurts to digest.  Mushy meats, veggies and fruit (yeah, cook it....think applesauce) is easier to digest.  I pull out my crockpot during those times.  

Hope you feel better soon!  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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My doctor said this week because my nausea and loose stool after eating gluten-free cereal with 1% milk I should switch to soy or almond milk.  He said there's an enzyme in cow milk that causes malabsorption.   Wish my GI doctor would of told me this when I was diagnosed three months ago.   Switching seems to be working after a couple of days.   He also said I should increase my calories.  I have dizziness issues especially when I am hungry.   It seems to hit me hard.  Like all of a sudden I'm starving.  Is anyone taking a protein drink to increase calories and can recommend one?   I have very high metabolism and get hungry every few hours.  I would like to take a protein drink to work instead of a gluten-free muffin everyday.

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10 hours ago, sddave said:

My doctor said this week because my nausea and loose stool after eating gluten-free cereal with 1% milk I should switch to soy or almond milk.  He said there's an enzyme in cow milk that causes malabsorption.   Wish my GI doctor would of told me this when I was diagnosed three months ago.   Switching seems to be working after a couple of days.   He also said I should increase my calories.  I have dizziness issues especially when I am hungry.   It seems to hit me hard.  Like all of a sudden I'm starving.  Is anyone taking a protein drink to increase calories and can recommend one?   I have very high metabolism and get hungry every few hours.  I would like to take a protein drink to work instead of a gluten-free muffin everyday.

Yeah, actually, they enzyme to break down dairy is produced by the tips of the villi which are damaged or destroyed first by celiac. Many have to remove dairy for a few years of healing then they can try again later.  When you first start the diet we suggest whole foods only, no oats or dairy. I use 2-3x the dose of super papaya enzymes, some jarrow, and on heavy protein meals extra bromine.

I found coconut, coconibs, almonds, and various other nuts and seeds to be my main calorie intake next to eggs and vegan protein powders. I find having a shake of vegan protein powder, almond butter, coconut yogurt and almond milk blending it and sipping on it during the day helps. I also take the protein powder before bad to prevent muscle loss and help repair while I sleep. I use Nutra Key V-Pro, MRM Veggie Elite as my base blends, I also use MRM Veggie Meal replacement sometimes, and I add in extra proteins from Organ seed Company Pumpkin protein, Jarrow Hemp protein, MRM Sacha Inichi protein to get more balance in there. I sometimes use Naked Pea Protein or Growing Naturals pea protein in cooking and adding some to eggs omelettes or shakes.

PS I started teh cocoa nibs this past month, along with Julian Bakery grain free paleo breads a few months ago. I started putting on weight finally. I get the nibs as a ground version and just get them as snacks, in food, or on top of deserts. Crio Bru makes them as a coffee sub.....I just get the ground cocoa beans the Ecuador and Ghana are my favorites.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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3 hours ago, Ennis_TX said:

they enzyme to break down dairy is produced by the tips of the villi which are damaged or destroyed first by celiac.

Excellent piece of useful information. Great to know.


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

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15 hours ago, sddave said:

My doctor said this week because my nausea and loose stool after eating gluten-free cereal with 1% milk I should switch to soy or almond milk.  He said there's an enzyme in cow milk that causes malabsorption.   Wish my GI doctor would of told me this when I was diagnosed three months ago.   Switching seems to be working after a couple of days.   He also said I should increase my calories.  I have dizziness issues especially when I am hungry.   It seems to hit me hard.  Like all of a sudden I'm starving.  Is anyone taking a protein drink to increase calories and can recommend one?   I have very high metabolism and get hungry every few hours.  I would like to take a protein drink to work instead of a gluten-free muffin everyday.

Something I do is carry a trail mix I made with me everywhere. If I get suddenly hungry, which does seem to happen especially when away from home, I'll just have a small handful. Otherwise I start to get lightheaded. If I forget my trail mix, I'm screwed.

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On 8/11/2017 at 6:04 PM, sddave said:

I'm positive I didn't have gluten.   I think I'm having trouble digesting my food.   Most meals don't go down easily for me since I started going gluten free....except eggs.  I read about people taking digestive enzymes here.   But don't know if I should try them.

Could be stress related.

I downloaded and use Intolerance Food Diary app for android - for everything that passed my lips. Even toothpaste and chewing gum.  It's an awesome way to keep track of what you're eating and finding the culprits. In fact, it taught me how to write food down. Ie, don't just write "steak & potato for dinner". I learned to write down what seasonings were on the steak, what kind of butter I put on the potato, what was in the salad, what was in the salad dressing, etc. It really shows you what you're eating. After a week you'll have a remarkably clear picture. 

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2 hours ago, JoyVale said:

I downloaded and use Intolerance Food Diary app for android - for everything that passed my lips. Even toothpaste and chewing gum.  It's an awesome way to keep track of what you're eating and finding the culprits. In fact, it taught me how to write food down. Ie, don't just write "steak & potato for dinner". I learned to write down what seasonings were on the steak, what kind of butter I put on the potato, what was in the salad, what was in the salad dressing, etc. It really shows you what you're eating. After a week you'll have a remarkably clear picture. 

Thanks for mentioning the Android app.

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On 8/11/2017 at 11:57 PM, sddave said:

I have dizziness issues especially when I am hungry.   It seems to hit me hard.  Like all of a sudden I'm starving.  Is anyone taking a protein drink to increase calories and can recommend one?   I have very high metabolism and get hungry every few hours.  I would like to take a protein drink to work instead of a gluten-free muffin everyday.

I had to make a conscious effort to switch the foods I eat to reduce sugar spikes and the resulting crash. I eat an omelette in the morning, proteins and amino acids in the eggs, veggies in the filling. Keeps me full for longer and I don't have the mid morning crash that used to happen when I just had cereal or similar.

If you can eat something solid with some fibre it will do you more good than a protein shake. You need things which take a little longer to digest to stop the blood sugar spike cycle.

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After switching to Soy milk after doc. suggested to get rid of loose stool and nausea, I suffered massive stomach cramping.  After that, I'm afraid to try almond milk in my cereal.

Now if I could only figure out why I get dizzy so much and have heart palpitations!   None of my blood work has shown any vitamin or mineral deficiencies.

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23 minutes ago, sddave said:

After switching to Soy milk after doc. suggested I got rid of loose stool and nausea, but with soy milk  I suffered massive stomach cramping.  After that, I'm afraid to try almond milk in my cereal.

Now if I could only figure out why I get dizzy so much and have heart palpitations!   None of my blood work has shown any vitamin or mineral deficiencies.

Many Celiacs have issues with soy.....I would suggest a unsweetened almond or cashew milk. Soy REALLY messes with my stomach, cramping is just the start, the end.....yeah lets not go there.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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On 8/13/2017 at 4:40 PM, Jmg said:

If you can eat something solid with some fibre it will do you more good than a protein shake. You need things which take a little longer to digest to stop the blood sugar spike cycle.

Bingo. Just think of why diabetics who have hypoglycemia from not eating, too much exercise, too much med, take orange juice to bring the glucose back up!


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

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