Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

15 yr old daughter celiac?

monicameme

Recommended Posts

monicameme Rookie
monicameme
Posted

I've been here for a couple months because my son was just diagnosed with celiac.  So we all got tested.  My daughter is 15 and for a few months she has not been consuming much gluten at all.  So i'm not sure how accurate these tests are but it looks like she may have celiac as well.    Here are her labs, please help me interpret them. 

Endomysial antibody Iga- negative

t-Transglutaminase (tTG) <2    range 0-13 negative

Immunoglubulin A, Q, Serum  274   high,  range 51-220

Antigliadin Abs, IgA, Deamidate Gliadin Abs, 21 high,   range 20-30 weak positive

Antigliadin Abs, IgG, Deamidate Gliadin Abs, 3,  range 0-19 negative. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RMJ Mentor
RMJ
Posted

The immunoglobulin A is a control test, not a test for celiac.  Of the celiac tests, she just has one that is barely a weak positive.  You may want to have her eat more gluten (perhaps away from home) and retest in 6 to 12 months.

monicameme Rookie
monicameme
Posted
  • Author
28 minutes ago, RMJ said:

The immunoglobulin A is a control test, not a test for celiac.  Of the celiac tests, she just has one that is barely a weak positive.  You may want to have her eat more gluten (perhaps away from home) and retest in 6 to 12 months.

Thanks, I've put a call into the GI and i suspect she will say the same.  I can try to have her eat more but she naturally just doesn't want many things with gluten.  Does the control test suggest a different auto immune disease maybe?

 

squirmingitch Veteran
squirmingitch
Posted

No, the control test is to verify that she will react to that particular type of test. If she didn't, then certain of the bloods would not be applicable to her. They would be false negatives.

As far as tests being weak positives, that's like being a little pregnant. A positive is a positive. Period.

Since she does have one positive that is enough to move forward with an endoscopic biopsy but you really need to make sure she eats at least a 1/2 slice of gluten bread per day for a minimum of 2 weeks before the endoscopy. 

 

cyclinglady Grand Master
cyclinglady
Posted

Your daughter does not have a strong positive.  I suspect that the GI might do as RMJ suggested which would be to load her up on gluten for six months and retest.  On the other hand, with a diagnosed sibling and a very mild positive, your GI might recommend the endoscopy or run the test again to make sure there were no errors.      Together,  you and your doctor can decide what is best for your daughter.  

My daughter tested negative but she had been consuming gluten daily.  I still make sure that she consumes gluten at school and while away from home.  If she wants a donut, she eats it on the porch!  When we test her again, it can not be after a summer because she has been on very light gluten diet.  

The control test?  It is elevated, but not a lot.  So, I would not worry.  Your lab range might be have a lot of people with a lower IGA.  At my lab, the range max is around 400.  

ironictruth Proficient
ironictruth
Posted

Yes, that could easily be a false positive.  there is plenty of research on folks with perfect biopsies, even those who are genetically negative for celiac disease, with positive DGP results. By the same token, the test also picks up a lot of folks with celiac.

 

But as others have said, with a family history it is good to load up on gluten and pursue the endoscopy. How was your son diagnosed? Many folks here will testify to the fact that reactions to gluten can be much much worse when you have finally given it up. But that DGP IGA test  is likely to come back negative if run again  and you don't want to put your daughter on a strict diet for no reason.

 I was like that as well before my first gluten challenge, I didn't eat that much of it. I would like pizza and pasta but only occasionally.  After I gave it up I had to do two gluten challenges In two years, the second one was three months long. I ate donuts, cookies, pizza, pasta, you name it.  if she doesn't want to do that you could probably get away with a piece of toast or waffle with peanut butter on it in the morning.

Good luck! 

monicameme Rookie
monicameme
Posted
  • Author

thank you guys.  I'm hoping the Gi will call back tomorrow.  I'm getting  the kitchen totally gluten free, except for a few things my sister who is a bit disabled is going to have.  But no bread, flour, pasta and most other things will not have gluten.  And my daughter doesn't go to school, she does homeschooling so her opportunity to eat gluten won't be great.  So it sounds like i will have to try to keep something little for her also to eat daily.  Hopefully it's a false positive!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...