Struggling with symptoms and need some advice

[Fenrir 54]

So they retested you and it came back positive?

[will4318 1]

18 minutes ago, Fenrir said:

So they retested you and it came back positive?

Yes, I eventually had a pill cam test looking for crohn's disease, but instead they thought they saw some villous atrophy so I had another biopsy which was positive this time. 

[Fenrir 54]

Nice! You're lucky. Many people's Dr. give up after the first one and refused to go any further. At least you have your answer. 

It takes time to heal. It took about a month for most of my symptoms to go down quite a bit and about 6 months for a full recovery.

[cyclinglady 1,663]

Thank you for reporting back.  I am sorry that you had to wait two years before getting a correct diagnosed (missed small intestinal damage during the first endoscopy).  Glad the pill camera caught damage allowing for the second endoscopy.

I am going to bookmark your post to show persistence in obtaining a diagnosis and the supporting fact that small intestinal damage can be spotty.  

I hope you recover fast!  

[will4318 1]

2 hours ago, Fenrir said:

So they retested you and it came back positive?

Yes, I eventually had a pill cam test looking for crohn's disease, but instead they thought they saw some villous atrophy so I had another biopsy which was positive this time

 

41 minutes ago, cyclinglady said:

Thank you for reporting back.  I am sorry that you had to wait two years before getting a correct diagnosed (missed small intestinal damage during the first endoscopy).  Glad the pill camera caught damage allowing for the second endoscopy.

I am going to bookmark your post to show persistence in obtaining a diagnosis and the supporting fact that small intestinal damage can be spotty.  

I hope you recover fast!  

Thanks both, I was seeing a private consultant thanks to insurance and he was very persistent thankfully