Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

jajus100

Non-celiac, But Gluten Free....

Rate this topic

Recommended Posts

Well, I tested negatively for the Ttg test. I was postive on the Antigliadin IGG, but that was the only one. My GI basically said that test was worthless. My general was the one who first suspected Celiac and tested me for it. My GI said it was impossible because the ttg was negative. Well anyway, while I was being tested in all kinds of ways from my GI, except for endoscopy, I experimented with gluten. I would go off it for 2 weeks, I would get better. I would eat a lot of bread for 2 weeks and I would get sick.... My GI, basically said, well, he doesn't think that would be it, but if I believe it kind of thing... UGH... Anyway, he has dismissed me, since he couldn't "find the cause."

I have now been gluten free for a little while. ALL of my gastrointestinal symptoms are gone. I now have my energy back. I still don't know what I have, but I guess it doesn't matter if gluten free seems to be the answer...

Share this post


Link to post
Share on other sites

Yeah, its sort of hard to argue with the body. I found out I'm not digesting milk correctly either. Amazing how much better I feel since giving that one up too!

Share this post


Link to post
Share on other sites

Yea, at this point, I've tested neg TTG on the York home test, and low on the IgG and IgA, so I'm pretty much expecting that I'll have a negative biopsy, therefore, not celiac.

BUT, I feel like a completely different person off gluten, and it's obvious to me that my body, my intellect and my psyche are all negatively effected by gluten.

So, the doctors can call it whatever they want. But I'm not eating gluten anymore after the biopsy. I just feel better mentally, physically and intellectually. That's all I need.

In the book Dangerous Grains, they call it non-celiac gluten sensitivity.

I think that when all is said and done, and the doctors, researchers and geneticists all figure all this out, I think that gluten-related disorders will be a group of conditions. Not just celiac-positive or celiac-negative. I figure that 100 years ago there are diseases, medicines and treatments we all know about that they had never heard of. 100 years from now, it will be the same story. Science is an evolution. We just happen to be at the beginning of this particular story.

I think there are tons of people out there who have symptoms of celiac, but were negative on the biopsy and/or blood tests, and are suffering needlessly and still looking for answers because they never tried going gluten-free for a while just to see how they FELT.

Nancy

Share this post


Link to post
Share on other sites
I think there are tons of people out there who have symptoms of celiac, but were negative on the biopsy and/or blood tests, and are suffering needlessly and still looking for answers because they never tried going gluten-free for a while just to see how they FELT.

Nancy

Listening to your own body--I couldn't agree more.

Share this post


Link to post
Share on other sites

My dr agrees with me that the tests just aren't sophisticated enough yet to get all of the answers. But you've proved your point with the diet challenge. I still can't understand why so many dr's want to be able to fix things with meds or surgery or some sort of regime while the diet works wonders!!! It's a good thing you have enough sense to listen to your body. I never had any tests, just the diet challenge and that was enough for me. Later I might get my gene testing done, and my dd's too because she's having some problems and I just want to have a better understanding of what might happen to her in the future.

Share this post


Link to post
Share on other sites

We haven't tested her, but fairly sure my 'better-half' isn't Celiac... but seeing my turnabout, she decided to go gluten/wheat free as well. She started about 1 month behind me, so it's been 4 months. She just turned 50, but she [now] looks 10 years younger from kicking the bread... which is not particularly good for many/most people, IMHO. Especially that made from the current hybrids, processed to death, and made into a near worthless food by the time it reaches "end product".

Where it also makes/made a big difference is; she has Type O blood, which Dr. D'Adamo says do very poorly eating wheat products. Unfortunately, he didn't mention Celiac in his "Eat Right 4 Your Type" book, or I'd known about this disease years ago. But then again, if I hadn't been eating less bread 'cause of his book, I might not be here at all!

:-)

GC

Share this post


Link to post
Share on other sites

For all the education doctors have they aren't that smart, generally speaking I would rather see a veterinarian. Listening to your body is the best idea. The tests are not that good, I had to pressure the doctor to get them to do something in two instances this year. Getting better shouldn't have to be this difficult if doctors would listen. I have been gluten-free just over a month and many people see the difference and tell me how much better I look. I also feel better and my DH is cleared up unless I get exposed to wheat/gluten. On top of that so far I have lost 23 pounds.

Share this post


Link to post
Share on other sites

My blood tests came back negative, but my WONDERFUL GI initially based my diagnosis on the fact that my period, which had disappeared for 3 years, finally returned after only a week on a gluten-free diet. Later, my endoscopy proved it, but only because my mother insisted I have it done :blink: . Listen to your body.

Nadia

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...