Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What is a Celiac to Trader Joe's 20 PPM gluten-free?

Capt-Lyon
 Share

Recommended Posts

Capt-Lyon Rookie
Capt-Lyon
Posted

Trader Joe's gluten-free Products - Celiac - I was diagnosed in 1996 and have studied constantly for years. My opinion that I state often to my medical practitioners is this. You can call it a disease if you chose to, but you cannot catch it, you cannot give it to anyone and you cannot cure it! It is a genetic disposition that you are born with. If you remove Gluten from your diet you lead a normal life! I do not have a disease! I have a genetic makeup that will not tolerate Gluten. I found this site when asking about Trader Joe's gluten-free products. I since have gone onto the Trader Joe's site and see that they only adhere to 20 PPM which if you are a celiac will cause problems. The Feds in their wisdom have created a maelstrom of issues for celiacs. Certified is the only choice for me! 5 ppm. When you eat out you also need to tell your server that you are a Celiac and it is not a diet choice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Capt-Lyon Rookie
Capt-Lyon
Posted
  • Author

I am new to this site and just figured out how to post a topic! Different than "Ask a question".

Trader Joe's gluten-free Products - Celiac - I was diagnosed in 1996 and have studied constantly for years. My opinion that I state often to my medical practitioners is this. You can call it a disease if you chose to, but you cannot catch it, you cannot give it to anyone and you cannot cure it! It is a genetic disposition that you are born with. If you remove Gluten from your diet you lead a normal life! I do not have a disease! I have a genetic makeup that will not tolerate Gluten. I found this site when asking about Trader Joe's gluten-free products. I since have gone onto the Trader Joe's site and see that they only adhere to 20 PPM which if you are a celiac will cause problems. The Feds in their wisdom have created a maelstrom of issues for celiacs. Certified is the only choice for me! 5 ppm. When you eat out you also need to tell your server that you are a Celiac and it is not a diet choice!

Scott Adams Grand Master
Scott Adams
Posted

Many celiacs go for certified gluten-free products due to the higher standards, but the current FDA standard is considered by those in the scientific community to be perfectly safe for nearly all celiacs. Also, 20 ppm does not mean that the products actually contain that much gluten, this is a threshold where companies would have to recall a product should their product exceed that level. There are many in the celiac community that portray this level as if companies are fortifying their products with gluten so that they will be right at that level, when just the opposite is likely happening--should a batch show any measurable gluten, for example 10 ppm, they are likely back tracing everything to find the culprit.

In any case, all celiacs are free to choose their path on how strict they want their diets to be, but I haven't seen any specific evidence yet that indicates that products that have been certified gluten-free are any safer than those that use the "gluten-free" claim on their labels under the current FDA regulations. It would be interesting to test 100 of each to see which contains less gluten.

Capt-Lyon Rookie
Capt-Lyon
Posted
  • Author

Scott:

When I was diagnosed I was in finally stages, had lost 60 lbs in three months and if it was not caught I would have died. My cilia were completely gone! I now lead a normal life with all the meat and fresh farm produce and diary with no issues. If I eat a non certified gluten-free processed product it can be a problem! My post was that gluten-free at Trader Joe's is all listed as 20 PPM and my experience to date is that TJ's causes problems.

Scott Adams Grand Master
Scott Adams
Posted

Understood, but I think Trader Joe's is citing 20 ppm because that is the FDA standard to be able to label a product gluten-free. It does not mean that Trader Joe's products actually contain that level of gluten. Hopefully you understand the difference. 

I was also very sick when I was diagnosed, but continue to eat Trader Joe's gluten-free products without issues.

DJFL77I Experienced
DJFL77I
Posted

so all "Certified" gluten free is 5 ppm?

cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, DJFL77I said:

so all "Certified" gluten free is 5 ppm?

Yes, 5 ppm or below.  That is as low as the equipment can detect.  So, it can be zero.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RMJ Mentor
RMJ
Posted

GFCO certification limit is 10ppm.

Listed under program history

Capt-Lyon Rookie
Capt-Lyon
Posted
  • Author
11 hours ago, RMJ said:

GFCO certification limit is 10ppm.

Listed under program history

You are correct and I stand corrected! 10 ppm

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

      After reading the study on Mucosal reactivity to cow's milk protein in coeliac disease I stopped eating processed foods that have milk as an ingredient. Though Gluten Free, "in a fraction of coeliac patients, Cows Milk protein challenge may induce an inflammatory reaction of the same magnitude, as did gluten challenge". After three months my lower belly...
    2. Wheatwacked
      - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.
    3. cristiana
      - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi @CC90 Ah... that is very interesting. Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time? I could be wrong, but I would not be at all surprised if they find something on the next attempt. Coeliac damage can be very patchy, as I understand...
    4. CC90
      - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi Cristiana Yes I've had the biopsy results showing normal villi and intestinal mucosa. The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.
    5. Wheatwacked
      - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives. An elevated level means your immune system is reacting to gluten. Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis o...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,197
    • Most Online (within 30 mins)
      10,442
    Caron Ervin
    Newest Member
    Caron Ervin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      The Struggle Has Overtaken Me

      By Wheatwacked · Posted

      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...