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South Florida


ms-sillyak-screwed

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SEFCeliac Newbie
I too am in South FL (Miami) and was recently diagnosed with Celiac. I have done numerous searches on the internet and have found nothing available in this area as well. My search is continuing and I will let you know if I find something!!!

Please try the website [url=Open Original Shared Link for a Southeast Florida Support Group and Website. If you join the group, you will receive local and national newsletters for less than the cost of joining the national group - Celiac Disease Foundation.

Also at 810 University Drive, Coral Springs, Wednesday, May 30th is an event

H2U & Whole Foods Market Special Diet Lecture Series

  • 2 months later...

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DbombRN Newbie
Celiac and secondary food allergy support group....?

Where are all the people?

Too bad no one wants to get involved.

DbombRN Newbie
Celiac and secondary food allergy support group....?

Where are all the people?

Too bad no one wants to get involved.

hi. I will be interested when you start. I live in miramar. Let me know . I'm usually off work on sundays

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    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
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    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
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