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AmandaD

By AmandaD
in Coping with Celiac Disease

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AmandaD Community Regular
AmandaD
Posted

Anyone else here know that at one point they have or have had low Vitamin D?

And, what did you do about it?

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Jnkmnky Collaborator
Jnkmnky
Posted

Get out into the sun!

jerseyangel Proficient
jerseyangel
Posted

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.

AmandaD Community Regular
AmandaD
Posted
  • Author

Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.
jerseyangel Proficient
jerseyangel
Posted
Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Amanda--I use Carlson. The lemon flavor. It tastes fine--not fishy or greasy at all, really. It has just a light lemon flavor. It's best to keep it in the fridge--and it tastes better cold. Let me know if you deceide to try it, and how you like it :)

happy4dolphins Enthusiast
happy4dolphins
Posted

I had no idea I was vit. d deficient until I had blood work done at the rheumy's this winter. Though, living in Michigan, it's understandable. I was so low that she perscribed 50,000 ius once a week and I"Ve been taking that for at least three months now.

At first when I took it I hurt more then I did for about 12 hours and this happened for three weeks in a row, but the 4th week, all of a sudden the muslce pains were gone. I no longer felt like I was going to have charlie horses in my legs or arms.

Nicole

mouse Enthusiast
mouse
Posted

My Rheumy found that my D was very low. He said that I just entered the chart. I take 50,000 iu's twice weekly. When my 6 weeks is done, I then get another blood test. The end of last summer my Fibromyalgia started to bother me again after 1 1/2 years with 80% pain reduction. At the same time I started getting more tired. The tiredness and the pain both just kept advancing. I am hoping that this D will work wonders in both departments.

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AmandaD Community Regular
AmandaD
Posted
  • Author

Ok - so my doc is having me take 400 IU's twice a day. Is that just simply way too low?

Hmmmm....what do you think?

mouse Enthusiast
mouse
Posted

I think you have to trust your doctor on this one. It would depend on where you were on the chart. I assume he will do another blood test after a certain length of time.

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

2tired Apprentice
2tired
Posted
I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

I was taking 50.000 iu of Vitamin D weekly in the beginning, but I am down to once a month. According to my dr. I may have to take it for the rest of my life.

Carriefaith Enthusiast
Carriefaith
Posted

Salmon is very high in vitamin D. You can get over 100% of your daily intake of vitamin D in one serving!

Open Original Shared Link

Shrimp is also a good source of vitamin D:

Open Original Shared Link

AmandaD Community Regular
AmandaD
Posted
  • Author

Interesting. I love both salmon and adore shrimp....guess who's going to stock up on those today?

Thank you, thank you, thank you.

mamaw Community Regular
mamaw
Posted

Please make sure you eat wild salmon not the farm raised ...........................

mamaw

there are many places to order from. SEABEAR for one or WHole Foods carries Alaskan salmon

AmandaD Community Regular
AmandaD
Posted
  • Author

I've heard that before - that they add chemicals to the farm raised to keep the coloring...

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      Hypoglycemia, ketones in urine and weight lost. I need advice.

      By Aretaeus Cappadocia · Posted

      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      Hypoglycemia, ketones in urine and weight lost. I need advice.

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      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
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