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Rachel--24

Omg...i Might Be On To Something

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I reacted really bad again last night because of something and I got upset, but I had these spearamint candys from paul newman that are organic. I had three and it calmed me down. I was upset, crying one minute and totally fine the next.

I totally remember having so many "episodes" exactly like that. I would just be completely out of control either in a rage or crying....like a total meltdown....and then it would just stop. :unsure:

That happened ALOT before I figured out most of the triggers. Those episodes would drain me...my mom would tuck me in every night and tell me everything would be ok....even though I'd just had some crazy tantrum that noone in their 30's should EVER be having. :ph34r:

I have those same Paul Newman mints....they dont have any chemical ingredients or corn syrup so I bought them and I've been carrying them around for months now.

I dont know why I bought them because the mints are extremely high in salicylate....I doubt I could even tolerate one of them. :rolleyes:

Funny how the mints calmed you down....I think for me it would have the opposite effect. I'd probably end up having a meltdown if I ate 3 of them. :P

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So Great Plains said that my OAT results arent in yet. It takes around 3 weeks so I guess its been a little over that since they recieved the kit. Hopefully, I'll hear something this week. I'll be very sad if my sample got lost or something...it's been a loooong 3 weeks as it is. :rolleyes:

I got invited to go to Disneyland in October. You guys know how long I've been talking about going to Disneyland!! I think I was talking about it before I even started this thread! I wanted Mickey shaped gluten-free pancakes! :D

So yeah...I gotta get some improvement with this food issue since its really the only thing stopping me from going places. I wanna start planning for Germany...but until I can go there without having to stress over food and even water (they dont have Penta :( ) its just all on my "wish list" and not really coming true yet. :(

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Sherry, sorry you are discouraged :( I really don't know enought about the SCD to say if the loose stools are a positive or negative sign. There are several threads on the forum dedicated to the SCD, if you have time you might want to do a search and read over other's feedback. Just a thought. Hang in there with it :)

Thanks Julie, and everyone else for your encouragements. I figure the transit time for the green beans was 36 hours, so it's not like I am getting bad "D" and nothing is staying in the system long enough.

Carla, I ordered another round of humaworm today, LOL! I'm not going to wait 6 months to do it again. I saw another small roundworm today.

I did read one of the SCD threads but didn't glean a lot of information, I'll go looking again. Thanks for the thought, April.

Some of this is likely herx...as charcoal helps some.

Sherry

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I did find an old thread on the SCD that is very helpful--Julie, thanks for the tip. It will take me awhile to read it.

Sherry

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Paula,

I agree with the others......you are not a bad mom! Don't feel bad for your times of rest. You are a very busy person all the rest of the time.

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Dear Donna,

It is such wonderful news to hear your surgery went well! :) I am sorry to hear Tuesday was so rough.

There is a good possibility the medications and supplements just did not mix well. How wonderful you have been sleeping better, too! :D Take it easy!

Sorry to hear about your ampulla being pre-cancerous. That is scary! Our thoughts are with you! We all will pray and keep our fingers crossed. Your GI doctor sounds nice.

Dear Sherry,

The loose bowels may not be from the SCD. They could be from the worm being expelled. Carla had a herx when she took Humaworm at first. She even ran a fever! Shortly after that, she began expelling the six-foot long worm! :o

Some foods I eat come out undigested as well. This concerns me. It is not surprising, though. Between the nausea, stomach cramping, and gas, it is obvious something is bad wrong. Legumes may be a problem for me now. I do not feel bad as long as I do not over consume the peanutbutter, but Bob's Red Mill Pancake Mix has bean flour as the main ingredient, and it makes me nauseous. If only eat one or two pancakes, I am okay.

Dear Rachel,

I do feel something is wrong with the brown blood. It could be diet related, but I have no clue for certain. All I know is, the odor is strong. Mom said yeast caused hers to get like that, and I have a raging case of Candida.

Metals are probably keeping it there.

What a disappointment about your OAT results! :( We are all on the edge of our seats, here! Someone needs to threaten them so they will give them up! :lol: Lisa can do it. Remember when she was going to hunt down that lab that lost Kassandra's blood? :lol: Was it Lab Corp?

I knew peanutbutter was moldy, but all of the other stuff in it is even scarier! No wonder it caused such a bad reaction in so many people! If one thing does not get you, something else will! Between the salicylates, amines, oxalates, copper, and aflatoxins, no one is safe. Why does everything that is so tasty have to be so bad for you?

I have never tried those mints. They sound fairly healthy. Going to Disneyland would be neat. I have never gotten to go there, either. Germany is awesome! My best friend went there in 2002, and she brought home a bunch of German chocolate, which is the best!

Zeolite sounds like something good to have on hand. In case you indulge once in a great while, it can reduce the nasty troubles peanutbutter can cause. That type of thing is best off as a rare treat. I have noticed it is one of the worst foods that cause me to get the body odor back. So does processed tomato products of any kind.

PMS is something I really had as a teenager. There were two or three weeks prior to my period where I would feel nauseated by perfumes worse than usual, on top of other things. I was tired or could not sleep at all and felt hyped up. When my period came, the night before, I would get an awful migraine. The next day, I would have terrible D and start bleeding. The flow was so heavy for the first few days, I would go through a Super-Plus tampon in an hour. Cramps shot from my uterus down into my rectum, and I could not stand straight. My periods lasted seven whole days, and caused me to be anemic.

Dear Paula,

As April, Rachel, and others commented, we are in awe of you! B) On your good days, you accomplish an amazing amount of things. We only hope to get that much done all week! Resting is important. Everyone has their days like this.

Brown blood after giving birth probably is not that unusual. My concern is the smell and color. I think something is going on. I have had cysts in the past. Hopefully, they have not returned.

Dear Nancy,

Moving back home is no fun when your family is insane! My brother said he would rather live in his car than move back home, if that tells you anything. You have to admit, that is pretty bad. Family is much easier to like when they are not screwing up your life along with theirs. Not being able to work is so frustrating, and I type 65wpm but cannot get hired!

Even when I was feeling better and actively pursued jobs, no one hired me. What is more absurd is, places like Sears now want people with college degrees just to hang clothing on a rack, when they barely pay minimum wage with no benefits. Having the degree is only part of it if you want to work as an administrative assistant, because they also require five years of experience now. Whether or not you have the skills does not matter anymore.

I have probably heard of Care Credit at one point. It is worth checking out. How am I supposed to pay them back if I do not have an income, though? How does this work? I do have a business, but need start-up capital.

Dear Lisa,

Zeolite looks like good stuff. Brain fog certainly is something people cannot deal with! Not being able to concentrate is miserable. Mom even sounds drunk at times and it is scary. The medications she takes are bad for her. Side-effects alone are enough to mess someone up.

PMS is awful. Nothing seems to help it. There is an Archangel named Haniel (Hah-nee-el) who helps with feminine issues. She is good to ask for help with your troubles. I found it interesting the mints calmed you. In one of my herb books, I think spearmint was listed to help with PMS. I will look it up again and get back to you on that.

Dear Carla,

Evening Primrose Oil might help me. It is recommended on the Candida Diet. So is Borage Oil. The fatty acids are healthy that are in it. Yeast always seems to be involved with this type of situation.

Peanutbutter does not make me out of it. It is one of only a select few foods that keep my blood sugar steady around 80. Why does it have to be peanutbutter? Would almond butter have the same effect? This is so frustrating!

Vegetables do not necessarily bother me, but legumes seem to aggravate my situation. I cannot help but wonder about bacterial dysbiosis. Cereals often irritate my system. It could be rice or corn. They also put chemicals in them, so who knows? I have eaten Envirokidz Corn Flakes and gotten sick from them as well. Other times, they set alright.

Dear Andrea,

How are the children doing? Are they still eating dairy alright? You mentioned eating raw dairy before. It is probably much healthier than the hormone-laden kind most people buy. Hormone imbalances in women seem to be more common than ever.

Dear Kassandra,

I know brown blood is not necessarily bad. It can just be old. This has been going on for a while with me.

There are a lot of things it could mean. Fibroids are a possibility. I used to have some break-through bleeding during my usual period time, but for the past few years, it has been constant.

That is great to hear about you not having extreme reactions to dairy or soy! Maybe things are improving now. It takes time. Lyme probably initiated a lot of it. The disease appears to be notorious for that. I am glad you do not react to probiotics with casein. I do not think I do either, because if I eat a little pudding cup or yogurt, it makes me want to puke. I can eat chocolate bars, and the amount of lactose apparently does not cross the threshold.

I have been losing weight as well. My thyroid is hyper, though. It is good you will not have to be so strict now. No wonder you are confused on which diet to follow! You have had to avoid so much, and there are so many possibilities at this point, it is difficult to decide on one that is beneficial.

There are days I sleep like that. Other times, I can hardly sleep at all. It makes no sense. My body is on swing-shift, so I just sleep when I can. You never know when it will decide to change its mind. :rolleyes:

Dear April,

Zeolite must be great if it helped Lisa! Go for it! Let us know how you do on it. It seems to be especially helpful for those with metals. I am definitely keeping that stuff in mind.

Dear Julie,

I remember you telling about Chinese Medicine treating your stagnant blood. I will be sure to make a note of that supplement you mentioned. All I know is, something must be off. I hope is nothing serious. My tests were normal. Do Pap Smears test for fibroids?

Is Nutrimedix affordable? Dad will refuse to buy it. He is complaining about how expensive the Accu-Flora is, and it is only $11.99 at Wal-Greens. You are right. I desperately need to get out of here. It may very well be killing me. As an Indigo Child, I am especially susceptible to negative energy.

Sincerely,

Jin

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Jin, almond butter is what I eat. :)

I wanna start planning for Germany...but until I can go there without having to stress over food and even water (they dont have Penta :( ) its just all on my "wish list" and not really coming true yet. :(

How far is Dr. W from your friend? :D

Carla, I ordered another round of humaworm today, LOL! I'm not going to wait 6 months to do it again. I saw another small roundworm today.
Hee, hee. I did the second round after 90 days.

Paula,

I agree with the others......you are not a bad mom! Don't feel bad for your times of rest. You are a very busy person all the rest of the time.

Paula, with six kids, even if I were healthy, I still wouldn't be able to attend everything! I go to a couple/few games of each sport for each kid. They know I care. They also understand better than you think they do that you are sick. :) Two years ago my 10 year old (who was 8) didn't tell me about some of her school functions because she didn't want me to feel bad for not being able to go. I told her I wanted her to tell me so that if I did feel good I could go.

Your kids know you care. :)

Honestly, I think too many parents dote too much and prevent their children from becoming independent.

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Dear Carla,

Almond butter is expensive, but at least it is not moldy! It is $9.99 per jar at the store I go to. Dad complains about it. My necessary items are considered luxuries. Amazingly, we always afford his low-carb ice cream. Apparently, anything that has taste is a luxury we cannot afford.

I am trying to figure out some things with taste I can have. I hate bland food, but I have to give up the vinegar completely. It is as if I washed under my arms with a moldy wash cloth, and the smell is still there. Peanutbutter and tomato products also cause this to be worse. I am expecting to see mushrooms sprouting from my armpits at any given moment now.

I agree people do need to back off a bit with children. They need to be able to figure out some things on their own. On the bright side, the way I was brought up, I am very independent for the most part. Half of the people I went to high school with were handed everything. I know I can rely on myself to get things done!

Dear Everyone,

Well, I have tried a couple of new products lately. Having oily, acne-prone skin can be very annoying. The Clearasil Ultra Deep Pore Cleansing Pads really do help! You get 90 for $6.99. Dad brought home a PedEgg the other night, so I tried it. My feet are very dry and the skin is so thick on my soles and toes, it was nearly like leather. The thing actually works!

Hopefully, I will get to try RevitaLift Advanced this week. Dad said I could not get it last week. He says we are out of money. With what he keeps buying off of E-Bay, no wonder! I just want to smack those false teeth right out of his mouth! I warned him about root canals, but he got one anyway. Do you think it is a coincidence he now has a sinus infection? He had to keep it though, because it was an anchor tooth for his false teeth.

Sincerely,

Jin

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How far is Dr. W from your friend? :D

I dont know where Dr. W. is (I didnt pay attention to that part :P)??

I think my friend is in Grafenwoehr....maybe....I dunno. :huh:

I saw G.'s list and I didnt recognize any of the cities on the list (that is if those were actually cities and not people's names :lol: ).

My friend lives in the vicinty of Bamberg, I think Heidelberg, maybe Nuernberg. I remember those becuz they have scenic stuff there....like castles. :D

Anyways, when I go to Germany its definately NOT gonna be to get treatments. I just wanna visit my friend. :D

I guess that means I'm just gonna have to get better right here in California....without the Bionic 880.

But if for some reason it just doesnt happen I think I'll find a way to try it here. Hopefully by then there will be more input from others who have tried it.

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Paula,

You are NOT a bad mom or wife. You have been through a lot. You are up and out with the kids whenever possible. Even moms need time to laze around - they normally just don't get enough time.

I am always amazed at what all you do on your "good" days! :D

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I've got cabin fever, lol! :lol: And, my mom won't let me go out and play!!! :lol: Thanks for all the well wishes.

Still don't have the energy or the comfort level to catch up on what I've missed, but did see a question that Julie posted...

Julie, if it's precancer they will have to take it out. My doctor told me that two years ago and he mentioned it again on Monday when we chatted. What I don't know is how extensive the operation is--as far as I know there are only two ways they address this.

There is one that only removes the growth...that doesn't sound too bad. The other one is very extensive and sounds really scarey. They do that second one two ways...laprascopically and by open surgery...in either case as well as with the first surgery, it is only done by specialists who do lots of these operations. My doctor cannot do it and I'd likely have to travel. Two years ago my doctor said that there were no centers "locally". I'm not sure what he considered local though...it looks like Stanford does them, so I'm hoping I could have it there if it comes to that. My mom would have a hard time traveling if I had to do that. :(

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I've got cabin fever, lol! :lol: And, my mom won't let me go out and play!!! :lol:

Well at least you still have your sense of humor even if you dont have alot of energy. :P

I know you can be mischievious (I'm thinking about the picture of you with the birdcage) so hopefully you're not causing your mom too much trouble. :lol:

Seriously, I hope its not pre-cancerous. But if you do have to have the operation I'm hoping its the "less scary" one. Yeah....I'll definately cross my fingers for the first one. ;)

Its good that whoever does it will be someone who does it all the time....thats always reassuring. Hopefully you can get it done at Stanford. I cant imagine you'd have to go out of the Bay Area....seems like there should be some specialists here.

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Guest tamedandfoxed

Hey friends!

Yesterday was rather disappointing.. I was hoping to be in Texas today, enjoying time with a friend.. but her grandmother died late friday night so.. she is flying to the south of France tuesday and i had to cancel my flight.. NOT fun!! So I've been in a somber mood..

Saw the Dr in Ann Arbor friday... they've put me on Lyrica.. which is supposed to repair nerve damage.. I don't even think they really know what they're doing but whatever, might as well try it! only 40 dollars! sigh. I've got an appt Sept 11th to see a specialist but i'm really anxious that she's going to just suggest doing more antibiotics, like several all at once.. which i'm really not up for / will refuse = REMIND ME TO REFUSE!!! this problem gets so bad, i forget that AB's make it not better / worse.. I tried to get her to give me another Diflucan for the yeast in my tummy.. but she said she couldn't do that cuz it was a GI problem, i'm like but it's your fault!! grrr. So i'm less keen on her than i was.

we'll see where the week takes me,

I am planning on going to Chicago this weekend to see

a friend, so that's fun!!

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Thanks rachel and thanks for making me cry again lol.

Sorry Paula...again. :P

I meant every word of it though!

Anyways, crying is very therapeutic....its good for us....it gets some of the toxins out. I think I just helped you detox a little. :D

I should probably be doing alot more crying myself...but it just aint happening. :rolleyes:

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Hey friends!

Yesterday was rather disappointing.. I was hoping to be in Texas today, enjoying time with a friend.. but her grandmother died late friday night so.. she is flying to the south of France tuesday and i had to cancel my flight.. NOT fun!! So I've been in a somber mood..

Sorry you didnt make it to Texas. :(

Hopefully the new doctor isnt gonna throw more abx at you. REFUSE THEM ALL! :angry:

OK...I had to remind you now because I might forget by Sept. 11th. ;)

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NEED HELP!

I found a tick on my little girls head today and it was so enlarged!! It must have been there since last weekend when we went to the mountains!

Should I order the Samento and give it to her as a just in case scenario? Should I get abx? Should I not worry about it?

She is not exhibiting any rashes or symptoms, but we all know that doesn't necessarily mean anything.

April

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April,

I dont think the tick could have been attached for a week. It may have been brought home from the mountains? I think after they feed they fall off. I could be wrong but I've never heard of a tick being attached for that long.

Did you save the tick? If so it can be tested for Lyme and co-infections (not exactly cheap though).

If she were infected she would require antibiotics....now...not later. I would not take the risk of it becoming chronic by attempting to treat with Samento.

Its estimated that 80% of the population has been exposed to Lyme....but most arent sick.

She already has some health issues which may or may not be related to Lyme.

Without any obvious symptoms and without knowing whether or not the tick was infected makes for a tough decision. Not sure what I would do.

Since you dont know if she was infected and if you have no other option it cant hurt to use the samento....I just dont know how effective it will be. I'm not a big fan of longterm abx....but definately think its necessary to treat initial infection.

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April, my LLMD treats all bites with abx for six weeks. I know this because my son got bitten and I called them.

The risk of treating with abx when they are not needed is less than the risk of getting chronic Lyme.

I chose the abx route with my son.

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April,

I dont think the tick could have been attached for a week. It may have been brought home from the mountains? I think after they feed they fall off. I could be wrong but I've never heard of a tick being attached for that long.

Did you save the tick? If so it can be tested for Lyme and co-infections (not exactly cheap though).

When I was a kid, our dogs used to get ticks a lot. If they stayed on for a while they would enlarge or engorge with blood. Some got very big - fat as a baby bumble bee.

Because it was so large, I thought maybe it had been on since the mountain trip last weekend.

I did save the tick. Anyone know how to get it tested?

Carla,

I don't have an LLMD and I don't think my regular pediatrician will treat with abx for 6 weeks.

What abx did your llmd prescribe? Do you think a 10 day course will help? I think I could get him to agree to that.

If I test the tick and have to wait for the test results to come back, that just gives the lyme (if any) more time to proliferate.

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I put tea tree oil in our shampoo. Just about a table spoon per bottle (shake well). It helps to keep ticks, lice, fleas and all the little nasties off of you.

My daughter very long hair, I've been doing this since she started school. It seems that lice is epidemic level around here at times. She's never had any trouble. I also use it on my cats and dog. Works quite well.

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Welcome Crimson. I wish I had known that trick when we lived in a rural area .... lice was epidemic and I got very tired of nit picking!!!

When I was a kid, our dogs used to get ticks a lot. If they stayed on for a while they would enlarge or engorge with blood. Some got very big - fat as a baby bumble bee.

Because it was so large, I thought maybe it had been on since the mountain trip last weekend.

I did save the tick. Anyone know how to get it tested?

Carla,

I don't have an LLMD and I don't think my regular pediatrician will treat with abx for 6 weeks.

What abx did your llmd prescribe? Do you think a 10 day course will help? I think I could get him to agree to that.

If I test the tick and have to wait for the test results to come back, that just gives the lyme (if any) more time to proliferate.

You get the tick tested by sending it off to IGeneX. It's expensive. :(

Your doctor might agree to 21 days as that's something the IDSA would "allow". Then the IDSA will also "allow" a second three week round if she still has symptoms.

I would get as long as possible if you go the abx route. You can still give the Samento along with the abx. :)

This is a quote from a post at LN

After talking to 3 Dr.s one finally gave in and gave me 30 days amoxicillin. She was 45lbs so she got 400mg twice a day.

I called Dr. J office this is what was recommended to me.

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Thanks Carla,

I read that post on lymenet this morning. :)

I am thinking that this tick has been on there since last weekend so I am going to call the doc and get abx - maybe amoxicillan for as long as he'll agree. I will lie about the symptoms if I have to. I know he's not going to be knowledgable judging from how he was with my son's gluten issues.

Then I'll follow up with the Samento. I just don't know the dosing for children with Samento???? Do You?

I Found the info on Igenex about how to have the tick tested. Some say its about 95% accurate. Its $60 per infection. There willl be 5 items to test for: Lyme, babesiosis, ehrlichiosis, bartonella, and rickettsia. Should I do all 5 of these?

If for some reason it comes back positive then I'll go to Dr. J in SC and see if any followup is necessary.

The thing is....my stepdad got lyme one time and I think it was from around there. He was treated with antibiotics - had the flu like symptoms and rash.

Now about 10-15 years later he is 81 years old and is having major neuro symptoms. He just had a brain scan.

April

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If it were me, and I don't know that this would be the right thing but I'd either just have it tested for Lyme and maybe babs.

The thing is, I don't know that they test for all strains of co's so I don't know if it's worth testing for. I'd research that, then test for babs and bart if it makes sense. I think the treatment for those three cover the other co's (again, not positive).

If my kid were showing any symptoms at all, I might test the tick for more.

I might even call my LLMD to ask what he thinks.

I don't know that there is a right answer.

It sounds like your step-dad may need more treatment!

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If it were me, and I don't know that this would be the right thing but I'd either just have it tested for Lyme and maybe babs.

The thing is, I don't know that they test for all strains of co's so I don't know if it's worth testing for. I'd research that, then test for babs and bart if it makes sense. I think the treatment for those three cover the other co's (again, not positive).

If my kid were showing any symptoms at all, I might test the tick for more.

I might even call my LLMD to ask what he thinks.

I don't know that there is a right answer.

It sounds like your step-dad may need more treatment!

She isn't exhibiting any symptoms at all.

I am trying to convince my mom that the nuero symptoms could be the lyme. I sent her a bunch of information but they pretty much rely on regular MD's which who knows what they'll tell them.

I'm sending the tick off now!

Its so gross. I tried to research to see what kind it is and those things just make me queasy!

It definatley has been feeding for a while.

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