Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Judyin Philly Enthusiast

Dear Jin

It just breaks my heart to hear about your troubles.

you have been fighting so hard to get better.

I persaonlly would look into moving and getting paid to be a Nanny or at least a roof over your head.

Or, living with a elderly person who would appreciate you

You are very special and don't deserve this kind of treatment from your parents ! :ph34r: .

hugs and prayers

Judy in Philly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
That's it. :o I just started eating peanut butter about a few weeks ago with chocolate. I started then taking nutramedix trace minerals. I think all that copper just got to me.

I just got my zeolite last Thursday. I had been off of it for awhile. An I am out of magnesium and zinc assay.

Yeah I guess I should avoid the foods, although it will be hard.

Well, if avoiding the foods keeps your eyes from turning black then it will be well worth it! I'm sure your mom would agree. :D

I really hope this improves for you. I know you're not normally like that...I can tell from the times we've talked. :)

I cant take the NutraMedix trace minerals or any other multi-mineral because of the copper. The only high copper food I eat occassionally is chocolate.

tabasco32 Apprentice

Double post

tabasco32 Apprentice

Oh and Tubs of chocolate pudding.

tabasco32 Apprentice
Well, if avoiding the foods keeps your eyes from turning black then it will be well worth it! I'm sure your mom would agree. :D

I really hope this improves for you. I know you're not normally like that...I can tell from the times we've talked. :)

Yeah no joke. Possesed by chocolate.

NoGluGirl Contributor

Dear April,

I will be sure to mention when I hear anything from my cousin or aunt. Another plus would be they are only about 2 hours and 22 minutes from Chicago. I believe there are LLMDs and BioSet practitioners there. ART practitioners probably are up there as well. It is also an exciting town. :)

You are so right about trusting a babysitter! I saw a report about nannies who abused the children they cared for and was horrified! :o One woman actually pushed a baby off of the sofa because it was crying! If someone did that to my child, they are going to get it! Let me just say, if I had any children needing care during the day, I would be nervous about hiring anyone after seeing that news report!

Dear Rachel,

Things have to improve somehow. I cannot deal with this anymore! You know my mother was saying if I get disability then "we" can do things. I told her she will not be getting anything. :angry: That income would be for the sole purpose of paying medical bills and buying groceries, medications, and supplements.

Thank you for the list of foods to avoid when copper toxicity is present! I noticed a pattern. Some of these foods tend to be forbidden on the Candida Diet as well. This makes sense, due to the fact there is a significant connection between Candida and PMS. I recall Dr. Crook writing about it in "The Yeast Connection."

Dear Lisa,

PMS is miserable. :( I used to have horrible cramps that shot all the way from my uterus down into my rectum. That and the anemia from heavy bleeding is what caused me to go on the Depo-Provera shot. I get breast pain all of the time now, too. The past few years, constant break-through bleeding has occurred.

My digestive problems tend to get worse during my usual period time. All of the women on my mother's side of the family had everything removed fairly young. Things do not look good for me. My grandmother on the other side of the family had the surgery at only 26! I also noticed an increase in hot flashes and such when I ate meat with hormones in it, and soy products.

I am pear-shaped, and many women with this body type produce more estrogen than other shapes. There is another theory for me as well. Even if you avoid the meat with hormones, if you eat regular dairy or anything with dairy in it, hormones are probably in it. This means anytime you eat a milk chocolate bar, guess what is in it?

An overload or lack of estrogen can cause all kinds of issues, including PMS.

Peanut butter and chocolate are so good, but so naughty! I have been eating it lately, but only a tiny bit. Both of these are moldy, and bad for Candida, too. That is enough to do us both in. Stupid fungus! :angry:

It is very likely the lack of Zeolite and minerals has increased the severity of the situation. The wonderful thing about this thread is, someone always figures things out! :)

You mean your eyes look black like hollow? Do they look as if your pupils are completely dialated? This is a sign of possession, and not by chocolate. Demons do tend to prey on depressed or angry people most. They can take the energy put forth by them. You can shield yourself from them by imagining a blue bubble around yourself.

It is psychic self-defense.

Dear Judy,

I do not feel I deserve my parents' crap, either. I am desperate to get out of this place! If this was just a one time deal, it would not be such a big thing. The trouble is, this is a repeated situation. Stuff like this has been going on for years.

When I was a teenager, bill collectors came to the door ready to shut off whatever Dad forgot to pay. We had the money, but he cannot get his butt in gear! He also refused to give my mother the password for the bank account online, so she has to call the bank anytime she pays a bill to see what is in the account. I know he does not want her to know what he is spending. Despite the fact he says he has not bought anything from E-Bay, pen holders and accessories still come in the mail.

Dear Carla,

Is the Bionic 880 treatment for Lyme or something else? It sounds interesting. I am going to check that thread out. Once in a while, I go on LN. I usually lurk without posting.

I will keep the Evening Primrose Oil, vitamin, and mineral information nearby. PMS is really awful, and my hormones have been messed up for years. For two or three days per month, I just cry and get upset about everything from my dead pets to my bad health. Someone could say a sheep got trimmed and I would burst into tears! Of course, the situation here contributes a lot.

Dear Kassandra,

Is your bleeding any better? I have not been bleeding heavily, but am concerned. My menstrual blood is brown and smells very bad. Does Lyme do that? I think Julie had trouble with that before. Hers went away after she stopped eating dairy, though.

You remember how you told me going two months without dairy is a better test? Well, I just realized I was not dairy-free for six weeks. My probiotic supplements have lactose. I have to take them, though. Is it possible for them to have no casein that way?

Dear Sherry,

There is definitely a pattern, here. It needs broken! I am so tired of having to beg and barter for basic needs. Mom and Dad sometimes steal my food and then wonder why I am so territorial about it. They stole drinks my brother gave me! I cannot hurry up and down everything like they do at once. Then, they have the nerve to get annoyed when I need them to go to the store so I have some food!

The nanny job is certainly not definite. In fact, it may be more of a long-shot. I know my cousin and his wife are on a tight budget. She got passed up for a raise due to being on bed rest close to giving birth. You should see little John. I have pictures I will try to send for you to see of him. He is a doll!

Sincerely,

Jin

dlp252 Apprentice

Hello everyone! I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Donna, so good to hear from you and glad it is going well!!

mftnchn Explorer

I'm a bit discouraged...I am following the gradual ramping up of the SCD diet on pecanbread.com, and the green beans I added in have come through undigested. :ph34r: I really don't have any upset or anything, just loose BMs at times--that part is still quite variable but the amount of loose has been much higher on this diet. Maybe that is an improvement from big C.

Maybe I'll have to make the green beans into baby food. I cooked them awhile but not into mush. Maybe I am not chewing enough.

But I think I am figuring out that there was/is a lot more damage in my gut than my symptoms showed.

AndreaB Contributor

Donna,

Yay! Glad your foot is doing better, even with little of the pain meds. :)

Also so glad the nausea improved before necessary remedies.. :ph34r:

Green12 Enthusiast

Donna!! Thanks for your update :) Sounds like you had a rough Tues, but glad things are a little better!

Ugh! More waiting on your test results :( I know pre-cancerous is not what you wanted to hear, I was going to ask you what the plan would be if that is the case, but since you won't be back for a while as your foot heals I will hold my question until later.

Jin, I'm sorry you are having a difficult time at home, I agree it would be good for you to get out of the situation and negative environment. That just keeps you down :(

Sherry, sorry you are discouraged :( I really don't know enought about the SCD to say if the loose stools are a positive or negative sign. There are several threads on the forum dedicated to the SCD, if you have time you might want to do a search and read over other's feedback. Just a thought. Hang in there with it :)

CarlaB Enthusiast

Donna, great to see you back!!!

How much Oil of Evening Primrose? Does it matter?

I just took what was recommended on the bottle.

That's it. :o I just started eating peanut butter about a few weeks ago with chocolate. I started then taking nutramedix trace minerals. I think all that copper just got to me.

I just got my zeolite last Thursday. I had been off of it for awhile. An I am out of magnesium and zinc assay.

Yeah I guess I should avoid the foods, although it will be hard.

Peanut butter is high in mold. It knocks me out.

I'm a bit discouraged...I am following the gradual ramping up of the SCD diet on pecanbread.com, and the green beans I added in have come through undigested. :ph34r: I really don't have any upset or anything, just loose BMs at times--that part is still quite variable but the amount of loose has been much higher on this diet. Maybe that is an improvement from big C.

Maybe I'll have to make the green beans into baby food. I cooked them awhile but not into mush. Maybe I am not chewing enough.

But I think I am figuring out that there was/is a lot more damage in my gut than my symptoms showed.

Sherry, vegetables always came through whole, didn't matter what they were. It got better as my intestines healed (and I got rid of the freeloaders living in there!!!). I had to overcook them just so they wouldn't give me a stomach ache.

confusedks Enthusiast
Dear Kassandra,

Is your bleeding any better? I have not been bleeding heavily, but am concerned. My menstrual blood is brown and smells very bad. Does Lyme do that? I think Julie had trouble with that before. Hers went away after she stopped eating dairy, though.

You remember how you told me going two months without dairy is a better test? Well, I just realized I was not dairy-free for six weeks. My probiotic supplements have lactose. I have to take them, though. Is it possible for them to have no casein that way?

The bleeding has lightened within the past day. I was supposed to call the Dr if it hadn't by Wednesday morning, and it hadn't but I couldn't handle calling her and telling her. :ph34r: I will have to call on Monday and ask her what the next step will be.

About your blood, brown blood is not a bad thing necessarily. It's just older than bright red blood. My gyno said that it's nothing to worry about, and it could just be un-shedded from the month before.

If your probiotics contain lactose, then they contain casein. Even with my severe reactions to dairy, I was always able to tolerate probiotics with dairy in them with no problems.

Rachel--24 Collaborator
About your blood, brown blood is not a bad thing necessarily. It's just older than bright red blood. My gyno said that it's nothing to worry about, and it could just be un-shedded from the month before.

I think if its consistently brown then it probably does mean that something isnt right.

I know that during the two years that I was at my sickest my flow was very light and always brown (with a bad smell). It had never been that way until I got sick. Once I totally reduced my exposure to toxins and changed my diet eliminating mostly processed foods and going more natural with organic foods...the brown blood totally resolved and hasnt been a problem since.

I also had very bad PMS during those first two years. It was only days after changing my diet that I had my period and it was the first "normal" period in two years...with NO PMS at all. :)

confusedks Enthusiast

I've been in a coma the past few days! I thought about showering and had to take a nap! :lol: I've been sleeping 12 hours at night, then waking up for meds and breakfast and then going right back to sleep for at least 4 more hours! :o It's crazy! All I can seem to do is sleep. I guess it's a major Lyme herx. I sure hope it's not the steroids taking over. <_<

I think the Lyme and babs herxes are overlapping with each other because the other night I was having really bad night sweats and nightmares (killing people again, lol). And now the fatigue, that's usually a Lyme thing for me.

On a random note, I've been eating dairy and soy with no real problems. Well, everything seems to bother me, so dairy and soy aren't special, lol. Dr H told me to not have to be so strict with the sulfur free thing because I lost 9lbs last month without trying (and I didn't really need to lose weight) so he wants me to eat more. Now I'm really confused and don't know which diet to follow. :huh: Allergy diet, sulfur free...?

confused Community Regular
I think if its consistently brown then it probably does mean that something isnt right.

yes I agree. the only time i had brown blood was after having kids. I know my dr had said something baout brown blood years ago, but for the life of me i cant remember.

Kassandra.

YOu sent the tons of blood over to me this month. lol

Im having a hard few days. I tried to go shopping today and had to come home and lay down. I hate days like this cause then i feel like an bad wife and mother. Everyone wants to do all this stuff and i just want to lay on the sofa and feel sorry for myself.

Carla,

Im going to try the stuff u said about pms. Im willing to try anything.

paula

Rachel--24 Collaborator
yes I agree. the only time i had brown blood was after having kids. I know my dr had said something baout brown blood years ago, but for the life of me i cant remember.

I never looked it up but I know I went through he** back then with my periods...my blood never looked normal and I dreaded the days leading up to my period. :ph34r:

I remember that during and immediately after my period I would feel a little relief in symptoms but it didnt last long. Also my periods were only lasting a day or two.

Since then I havent had a single incident where the brown blood returned or that I had all of those dreaded symptoms. In my own experience the brown blood was correlating with how bad I was feeling at the time....and as soon as I felt better the blood was red again....the flow more steady and lasting 4 days or so.

Rachel--24 Collaborator
Peanut butter is high in mold. It knocks me out.

Yup...this is true too.

Lisa if you were feeling bad all along its probably the mold...but if you're not noticing anything until your PMS'ing it might be more related to the hormonal imbalances. I'm sure mold could contribute to that as well.

I think peanut butter is on every "avoid" list for every diet I'm on. Its high in mold, oxalate, salicylates, amines, copper...its just not something I even think about eating anymore. :rolleyes:

But hey Lisa...I actually read today that the NCD zeolite can remove alfatoxins from the body...so thats definately a good thing. :)

It also removes amines from cooked meats....another good thing since I react to those. :)

I read that it eliminates many of the "triggers" for food reactions. :)

Green12 Enthusiast
The bleeding has lightened within the past day. I was supposed to call the Dr if it hadn't by Wednesday morning, and it hadn't but I couldn't handle calling her and telling her. :ph34r: I will have to call on Monday and ask her what the next step will be.

Kassandra, this is a good thing, right? :huh::lol:

Glad you are able to eat dairy and soy with no big problems (mmmmm cheese?), it's nice to have a little more to eat when being so restricted.

Jin, I must have missed about the brown blood. In Chinese medicine brown blood is significant, it's old staganant blood. It's a good thing to get it out, yes, but my acupuncturist worked on moving the blood and getting rid of the stagnation so it wouldn't be brown anymore.

I took, and still take Corydalis Complex (a miracle in a bottle in my mind) and with taking tha I no longer have excrutiating painful cramping or old brown blood.

Also, about the probiotics, you can get dairy free probiotics. I know Metaginics has one for sure.

Nanjkay Apprentice
I cannot deal with this anymore. If people want to ruin their own lives and health, that is fine. However, when you hurt someone else's intentionally, that is a horse of another color.

I am so tired of having to pretend everything is fine, when it is not. I have had to do this for years. Ever since I was a teenager, when I found out people are not perfect, like you think they are when you are young. You tend to put the adults around you on a pedestal, until you realize they often make their own problems. This is also when you see how selfish others are, and that they could not care less if their laziness hurts you or others.

When I am upset, all rationality is completely destroyed due to my emotions. They are so strong, nothing can calm them. Right now, everything sucks. If only I could get a business loan to get an e-merchant club site with SMC. They advertise them and everything! With my bad credit from medical bills and student loans, no one will give me one.

Jin-

You don't know me, but I want to tell you that I can totally relate to how you feel. When things are bad, they are bad. I had to move home because I haven't been able to work for almost two years and I was thrown back into an unhealthy family dynamic that I want no part of. I try my hardest to teflon myself...nothing is more important than our health and all that stress is not going to help us. I have learned to be smart/selfish. If my crazy Dad brings up destructive warped things or some such nonsense, I politely walk away...I do not engage.

In terms of money...have you heard of Care Credit? They are specifically for medical bills/dental etc, anything insurance won't cover. I have paid for a few things with this card...I once tried oxygen tank therapy and used it for that. I had some credit snafus from the past from medical bills and they still dealt with me. If not, maybe you have a friend or unselfish relative who would put the care credit in their name and you pay the bills. They do not charge interest for the first few months.

I hope you feel better and take deep breaths. Your are not your parents.

Nancy

Nanjkay Apprentice
Nancy, there are a lot of other therapies that go along with the Bionic 880 treatment, it's not a stand alone treatment. so, you do need to go to Dr. Woitzel. It stirs up a lot of "stuff" that needs to be treated/eliminated.

As Rachel said, you can read Lymenet without registering. Read the post by GiGi that says she just got back from Germany with her Bionic 880. It's many pages long. Lots of great info.

Thanks Rachel and Carla :D

Nancy

aprilh Apprentice

Donna,

Glad you are doing well and hope the news about the ampulla is good.

I'm a bit discouraged...I am following the gradual ramping up of the SCD diet on pecanbread.com, and the green beans I added in have come through undigested. :ph34r: I really don't have any upset or anything, just loose BMs at times--that part is still quite variable but the amount of loose has been much higher on this diet. Maybe that is an improvement from big C.

Maybe I'll have to make the green beans into baby food. I cooked them awhile but not into mush. Maybe I am not chewing enough.

But I think I am figuring out that there was/is a lot more damage in my gut than my symptoms showed.

Maybe this is sort of a "die Off" type reaction and it will level out......

yes I agree. the only time i had brown blood was after having kids. I know my dr had said something baout brown blood years ago, but for the life of me i cant remember.

Kassandra.

YOu sent the tons of blood over to me this month. lol

Im having a hard few days. I tried to go shopping today and had to come home and lay down. I hate days like this cause then i feel like an bad wife and mother. Everyone wants to do all this stuff and i just want to lay on the sofa and feel sorry for myself.

Carla,

Im going to try the stuff u said about pms. Im willing to try anything.

paula

Paula,

You are NOT a bad mom or wife. You have been through a lot. You are up and out with the kids whenever possible. Even moms need time to laze around - they normally just don't get enough time.

I am always amazed at what all you do on your "good" days! :D

aprilh Apprentice

I have totally forgotten to start my zeolite! I don't like to start new things at night in case it makes me not sleep so I am going to do it first thing in the morning.

tabasco32 Apprentice
Yup...this is true too.

Lisa if you were feeling bad all along its probably the mold...but if you're not noticing anything until your PMS'ing it might be more related to the hormonal imbalances. I'm sure mold could contribute to that as well.

I think peanut butter is on every "avoid" list for every diet I'm on. Its high in mold, oxalate, salicylates, amines, copper...its just not something I even think about eating anymore. :rolleyes:

But hey Lisa...I actually read today that the NCD zeolite can remove alfatoxins from the body...so thats definately a good thing. :)

It also removes amines from cooked meats....another good thing since I react to those. :)

I read that it eliminates many of the "triggers" for food reactions. :)

Yeah I know that it's bad but just in these past few weeks I have just been craving peanut butter. I reacted really bad again last night because of something and I got upset, but I had these spearamint candys from paul newman that are organic. I had three and it calmed me down. I was upset, crying one minute and totally fine the next.

But that period thing, yeah I really need to change my diet girls because I don't want to PMS like that no more . I notice that my blood isn't really brown but it's not heavy and it like feels stuck up thier. hmm. yeah it doesn't last long either.

About the NCD yeah I like the fact that it removes many things. I think that's why I really don't suffer from brain fog anymore.

Rachel--24 Collaborator
You are NOT a bad mom or wife. You have been through a lot. You are up and out with the kids whenever possible. Even moms need time to laze around - they normally just don't get enough time.

I am always amazed at what all you do on your "good" days! :D

Paula,

Ditto to all of this!! :)

When you're feeling good the first thing you're doing is spending some quality time with the kids and with your hubby. Always up and participating in the fun activities that they enjoy.

Even HEALTHY moms arent out there bike riding with their kids and watching all of the games. You're so proud of them and it really shows when you post about something they accomplished. They're lucky to have you as their mom. :)

Thats why I love reading the posts about what you're doing with your family...because you obviously are a great mom and its so nice to read about the fun things you're doing with your family. Despite your health issues you're still doing alot more than some moms do and your kids love you for it.

Dont ever feel that you're a bad mom or a bad wife. Its not your fault that you dont always have the energy....and they understand that.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,950
    • Most Online (within 30 mins)
      7,748

    Malik
    Newest Member
    Malik
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cookiesyum
      The easiest way to remember the difference between the cholesterol types is HDL;   H=healthy equals healthy (omega 3, 7, limit 6 & 9 MCFA'S =Medium Chain Fatty Acids. 3= coconut oil, 7= sunflower oil, avocado. The higher your HDL the healthier you are & less likely to experience strokes, clogged arteries Etc. You can even use cold expeller pressed coconut oil on your skin and that is the best kind of coconut oil to eat as well. You want your HDL much higher than your LDL, it will help you stay healthy.   LDL;    L=Lousy. Meat fats, processed fats.  The higher your LDL is the more likely you will have strokes, clogged artery is, heart disease, fatty liver.   Then there's lipids... they are the culprit to be blamed for many heart attacks and things like that they are very small round particles that transport fats. You can have a low overall cholesterol reading and most of it be healthy cholesterol and have a ton of lipids and there's nothing you can do to change the lipid count. High number of lipids is very dangerous.   I'm going on statins is extremely dangerous if you ask me it's just completely my opinion, because I have seen so many of my elderly friends bleed to death internally because of the statins. I mean you wouldn't take all the oil and grease out of your car or a motorcycle and then try to drive it that way would you? You see that's what statins do they remove all of your bodies fats and it doesn't matter whether it's healthy fats or a lousy fats. It removes all of them and then your body can't function properly. You have to have fats to keep your skin supple and to stay warm. Your body also needs fats to digest & process certain nutrients, amino acids & vitamins.   Your brain is composed of fat so is that something you really want to remove with a pill every morning and night?   The thing about statins is that they also make the blood vessels and capillaries permeable. So this is how my friends who were on cardiac medication for a long time and statins ended up bleeding internally to death.   If you want to make sure that your heart is healthy, take odorless garlic at night and magnesium, vitamin K & calcium.     
    • pdm1981
      It's also a symptom of EPI.
    • Wheatwacked
      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
×
×
  • Create New...