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    Do you have questions about celiac disease or the gluten-free diet?

Rachel--24

Omg...i Might Be On To Something

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Julie,

So glad the diet is helping. Have you had any breakouts since?

THATS AMAZING!!! CONGRATS!!!!

Toxic

Inow i don't even have a new path to take.. a new diet to try.. anything. i'm just lost and sick of doctors who pretend to listen but really don't care that much cuz it's not their body..

~Katy

Katy,

Do you have a yeast problem or was it something else?

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What do you think about G's report on the bionic 880?? Are you ready to go to Germany yet? :P

I think its pretty exciting...I cant wait to talk to Scott about it. I'm curious about whether Dr. K or anyone else will take interest in it. That would be awesome if we can have more machines over here! :)

What is this Rachel?

ART works in layers. If you have other issues which are more significant stressors....those will show up first. Obviously parasites would be a stressor to anyone's system.....but if there are other things which are causing greater stress...the parasites may not show up until some of the other issues are dealt with.

I'm glad you mentioned this Rachel, I meant to respond to Sherry asking about why the parasites aren't showing up in ART.

Well said :)

So far so good. I havent had any really obvious changes yet. Maybe a little more energy at times (like bouncing off the walls :lol: ) but havent noticed too much overall.

Well at least you aren't reacting to it, that's encouraging :)

Sometimes when my diet is really restricted I have less energy so that once I start adding in new foods I get more energy.....even if the foods arent necessarily good for me.

It kind of sucks because I definately benefit from having more nutrients in my diet....but then since I'm reacting to the food chemicals (phenols and oxalates) I cant continue eating the foods. :(

This is exactly what would happen with me, when I was so restricted I didn't have any energy (I also wouldn't move my bowels), eating other things gave me more energy and of course I moved my bowels, but I was reacting to those extra foods <_< It was like darned if you do, darned if you don't.

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I think if I put my hand on a machine like that IT might start to smoke.:)

I think if you dont blow the whole thing up all by yourself...I can definately finish the job. :P

:lol::lol:

Julie, that's great that your diet is working and helping. How are the breakouts lately?

Glad the diet is working, is it the scd diet?

So glad the diet is helping. Have you had any breakouts since?

Thanks everyone :)

It's the LEAP plan (MRT allergy test) Paula.

I broke out with classic hives pretty bad every day for the first 2 months, but I think that worked itself out of my system and I've been hive free for the past 2 weeks.

As far as my HAE breakouts, I'm still having my monthly breakout, and since it's genetic that's just something I am going to have to deal with unfortunately <_<

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I still get nauseous when I see a worm .... it's so ... so ... I can't think of a word that adequately describes how it is for someone who is a perfectionist to have worms! :lol: Adam gets a kick out of it .... house must be clean ... but I have worms! You always think of poor, dirty cultures having worms.

I thought of you when I talked to my DIL--I don't think she thinks people have them too often, and it must be because I'm in China where it isn't "clean." LOL

Sherry

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Guest tamedandfoxed
Katy,

Do you have a yeast problem or was it something else?

no, i have beta strep B or something.. and infection that's localized on my cervix and wont respond to any antibiotics.. the ABs have definitely given me gut problems with yeast though, yes..

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Guest tamedandfoxed

AHAHAHAHAHAHA!!!!

I HAVE A REAL JOB NOW!!!!

oh right, p.s. i was fired from Panera Bread on sunday cuz i ahem.. . called the manager something i shouldn't have... but whatever she's an evil person and didn't do her job so no apologies there... and it doesn't matter now cuz i got a REAL JOB!!!!

I am going to be working as a victim advocate crisis working at the YWCA starting the 4th. I am stoked. DID I MENTION FULL HEALTH INSURANCE??? EYE AND DENTAL INCLUDED!!!!! saaaaaaaweeeeeeet!!!

i'm so happy.

~Katy

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Sounds like a lot is going on Birdy. Thanks for the update. :)

How's the eczema doing lately.

It's doing quite well, Andrea. :D Not perfect, but I'm no longer oozing puss or having my skin flake off. :rolleyes:

I had another FUN Tuesday! :(:angry: We decided to go ahead and try the Iron IV again because the risk of NOT doing them is heart failure. So, we decided to try it and see what happened. The only way they'd do it would be to give me steroids and IV benadryl before the Infusion to try and stop any reaction.

So long story short, I ended up in the ER again. :( Now I really don't know what to do, because Dr H is going to KILL me for getting the steroids. But then the hematologist keeps telling me I have to get the iron. He won't do it again given my reaction now. It is true anaphylaxis. Ughhhhhhh!

I'm really frustrated. I don't have any idea what to do now.

Ugh, Kassandra! :( I'll be praying for you.

I am really amazed at the change in my stool since starting the SCD--four days now. Did not see this much change in a short time going gluten-free although overall there was significant change. I am especially surprised because I am using dairy. I'm only using cow dairy in the dry curd cottage cheese, I make my yogurt from goat milk because I seem to do better on that. Seems like the starch factor has been major.

I'm glad the diet is working for you! Hopefully getting that load of parasites off you will calm your immune system down.

I'm doing well on the diet, best thing I have done in a very long time. I don't have any food reactions, I've already lost weight and overall fluid retention (still have some to go though), generally a lot less bloating and stomach issues.

Yay! :D Did you ever end up seeing that episode of House? It was kinda sad/funny... they just told the patients to take this one drug (didn't say what it was) every day, and that they'd just be fine. :blink: A little wishful medical thinking? <_<

Birdy

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Since I reacted twice to the Iron IV's, we obviously have to come up with another plan. Dr H wants me to see this alternative Dr who does NAET treatments. He wants her to de-sensitize me to the Iron IV's so I can get them again. The only problem is, my VERY western medicine hematologist said no more IV's, ever. So what I am thinking of doing is asking if I go up north to Dr H's office, if he can give me the iron IV's, so if anything happens, he would know how to stop the reaction in a Lyme friendly way.

I have to talk to Dr H and see what he says. I will keep you all posted. I have an appt with the NAET Dr on the 29th (next Tuesday).

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Kassandra,

Hoping Dr H can work with you on the iron IV's. Keep us posted on the NAET treatments please. :)

I don't remember if there was anyone else I wanted to respond to. Most things have been commented on.

Katy,

Congrats on the new job! :D

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Quick drive by....

I still havent gotten my OAT results back yet! :angry:

I called earlier today and was told they were in...finally! She said Dr. S. hadnt seen them yet and from what she could tell the results didnt "say anything"...but she still wanted him to look at it first.

So I took that as meaning that all was normal.....so yeah....ever since I spoke with her I'd been really frusterated about having another test with no answers!

She said she'd fax the results to Dr. Amy herself....which was fine but I wanted my own copy as well. She said I could pick it up after work.

I was pretty much dreading getting the "normal" test results back but I went anyway and all I got was a copy of the add-on stool test for yeast.

That was something which I had added on to the OAT because I was hoping if they could culture yeast in the sample they would be able to determine which antifungal treatment would work best. Well, thats the purpose of the test anyway....but yeah....the yeast has to be present in the sample in order for them to proceed with testing antifungals.

Anyways...no yeast was found in the stool sample. The OAT itself still hasnt come in....and its been over 3 weeks now.

They're gonna call Great Plains tomorrow to find out....and I'll probably call too. I'm hoping the turn-around for this test is just longer than most and that I dont have to end up re-taking it cuz it got lost or something. :rolleyes:

Anyways, I'm relieved that there is still some hope for answers. :)

Its a bummer about the stool test but I find them to be kind of unreliable for yeast anyway. Sometimes the yeast is there...and sometimes not. :rolleyes:

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Sherry, glad you are getting all this out. And that's encouraging about your stool changes, you are probably right about the starches contributing before.

I hope you continue to improve.

Sherry-

Glad you are doing well. I think in time you will feel great and full of energy.

I think I might give the diet a whirl myself. One time I did a very strict Candida diet before I knew I had all of this, and it was similar in that there were no starches and I must have lost 7 pounds of water, had a ton more energy, and felt less congested in every way. I have never done well on starches my whole life...

I am also very curious to know if I have little or big worms living inside of me. Just thinking that they do freaks me out and I want to get them out ASAP. They were not invited. Do any of you have any recommendations on which to start first the Humaworm or Enula and how to dose for a very sensitive system like mine?

Nancy

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Since I reacted twice to the Iron IV's, we obviously have to come up with another plan. Dr H wants me to see this alternative Dr who does NAET treatments. He wants her to de-sensitize me to the Iron IV's so I can get them again. The only problem is, my VERY western medicine hematologist said no more IV's, ever. So what I am thinking of doing is asking if I go up north to Dr H's office, if he can give me the iron IV's, so if anything happens, he would know how to stop the reaction in a Lyme friendly way.

I have to talk to Dr H and see what he says. I will keep you all posted. I have an appt with the NAET Dr on the 29th (next Tuesday).

Kassandra-

Sounds like a good idea. Just wanted you to know I am thinking of you and hope you keep finding answers and therapies that help you.

nancy

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Nancy, I am not sure how best to test things for a sensitive system. I am now using ART and it has seemed useful. Otherwise I just try things.

The Humaworm website I think it is says that 90% of Americans have parasites, as we don't do any regular treatment. Supposedly they are mostly benign, but my guess is they are not for we who are ill. But yes, it is very yucky to think about it, even more so to see them.

There are some natural treatments for worms. I tried one, pineapple, pumpkin seeds for 3 days, some people have had more results doing it longer. Pumpkin seeds numbs tapeworms so that they detach, pineapple has bromelain that kills them. I also tried several cloves a garlic a day, and that's when I saw a piece of tapeworm.

Sherry

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Am I the only one who can't get into lyme chat? Silly computer won't load it. :angry:

Here's the new Lyme chat website. client11.addonchat.com/sc.php?id=306727

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Do any of you have any recommendations on which to start first the Humaworm or Enula and how to dose for a very sensitive system like mine?

Nancy

Nancy, do you think enula would be better to start with since it's fewer ingredients and come in drops?

The Humaworm can be special mixed for you. They will leave out whatever herbs you can't handle ... of course, you have to know which ones bother you.

The enula isn't really for all parasites .... but it works on roundworms for sure!

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no, i have beta strep B or something.. and infection that's localized on my cervix and wont respond to any antibiotics.. the ABs have definitely given me gut problems with yeast though, yes..

I think Beta Strep is something that pregnant woman are tested for. I was positive both times and had to recieve IV abx during delivery. Hmmmm.....I haven't studied much on this. Will probiotic d%$#@#$ help? Might be something to look into.

Since I reacted twice to the Iron IV's, we obviously have to come up with another plan. Dr H wants me to see this alternative Dr who does NAET treatments. He wants her to de-sensitize me to the Iron IV's so I can get them again. The only problem is, my VERY western medicine hematologist said no more IV's, ever. So what I am thinking of doing is asking if I go up north to Dr H's office, if he can give me the iron IV's, so if anything happens, he would know how to stop the reaction in a Lyme friendly way.

I have to talk to Dr H and see what he says. I will keep you all posted. I have an appt with the NAET Dr on the 29th (next Tuesday).

That sounds like a good plan Kassandra. I wonder if oral iron cause the same reaction now? Not that it would touch the deficiency but maybe it would help in the meantime. Maybe the one made from herbs and greens. Can't remember the name right now.

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If you suffer from asthma or allergy, think first that it may be due to an intestinal disorder or a food intolerance

This was my horoscope today. I was lmao at it. Im like do u really think so lol.

Does anyone else have really bad gut reactions when it is that time of the month. I got sick today after i ate some beans and fritos. I was in bed for most of the afternoon. I had almost thought i had salmonella for a second. But i started to think this happens every time it is that time of the month. If so does anyone know what i can do to be fine next month.

I wont be on much the next week, hubby is on vacation and we have lots of fun things planned. Everyone pray that i will have good days. Im also thinking this is a good time to start the humaworm since he will be at home lol.

paula

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Nancy, do you think enula would be better to start with since it's fewer ingredients and come in drops?

The Humaworm can be special mixed for you. They will leave out whatever herbs you can't handle ... of course, you have to know which ones bother you.

The enula isn't really for all parasites .... but it works on roundworms for sure!

Is Enula herbal based or prescription?

I didn't do well on Humaworm so something in there bothered me. I would like to try something else.

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Nancy,

I'm highly sensitive and I didnt feel that I would do well with Humaworm....mainly because it contains a bunch of herbs and I just dont tolerate that stuff. I was tested for alot of the herbs (ART) and nope....they are not good for me....huge stressors to my system.

I would try Enula first. I used a few different Cowden antimicrobials without problems....I just had to allow the alcohol to evaporate before I took them.

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Does anyone else have really bad gut reactions when it is that time of the month. I got sick today after i ate some beans and fritos. I was in bed for most of the afternoon.

Well beans and fritos would do me in *any* day of the month! :P

Do you eat those regularly without any problems?

A long time ago before I made any changes to my diet I had really horrible symptoms at that time of the month. Thankfully, those symptoms resolved when I cleaned up my diet. Now I find that I just get extra tired the day prior to my period.

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Well beans and fritos would do me in *any* day of the month! :P

Do you eat those regularly without any problems?

A long time ago before I made any changes to my diet I had really horrible symptoms at that time of the month. Thankfully, those symptoms resolved when I cleaned up my diet. Now I find that I just get extra tired the day prior to my period.

I felt fine when i made frito pies last night for dinner. But when i had them today, it was major pain.

Yesterday i had lots of energy and had an awesome today. But today it was terrible. I almost had to miss my sons championship baseball game. But luckily i made myself go lol.

Maybe i just need to go back to water and beer to feel good lmao.

paula

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