Omg...i Might Be On To Something

[NoGluGirl]

Dear catesfolly,

That is so cool about your dream! Who would have expected that? I bet you sure are glad you had that one! I had bloodwork done before, but it came back negative. I always had a feeling they were wrong. Early this year, my doctor told me she believes I am Celiac, and that those tests are not that accurate.

Sincerely,

Jin

P.S. Here is a great site about this supplement for you: Open Original Shared Link .

[dlp252]

I think the cure for our Lyme is to have dinner brought in every night.

!!!! Glad you are pulling out of it...the mental stuff sounds like a bit like what I've had going on for the last few weeks.

So yeah...I have two weeks vacation left and I wanna go to Disneyland and be able to eat more than ground beef and peas.

I havent forgotten about the gluten-free mickey mouse shaped pancakes.

OMGosh, can I come, LOL!!! We can have a Rachelville adventure in Disneyland.

Open Original Shared Link

I'll have to look at the link later, but I've been sort of interested in color therapy for a while. Years and years ago I heard a little story on the news about how some police departments were experimenting with color to see if it helped with inmates, etc. In the last two years I have become extremely find of pink. I've always loved purple and blue, but pink has sort of crept in there, lol. Course if you asked my mom what my favorite color was a few years ago, she might have said black cuz that's all I wore.

Oh no, how did all that bacteria get there? What exactly are they going to do to kill it? Use the oil of oregano? It is a powerful antimicrobial. Doctor's Data is what my doctor wanted me to do a test with. They seem like a good lab.

I need to view the oxalate thread as well. If it gets to large, I will have trouble keeping up. I hope I am not too far behind on it. We will see! Maybe I will get to poke around on there this morning. I have a lot of e-mail to respond to first.

Yes, I read the report and have a little better understanding of what it all means...I'll post that after church. She gave me caprylic acid and a couple of weeks ago when I got the yeast thing, it also said caprylic acid and oregano. I just never got around to getting either one until yesterday, but those are the two that she said to take. Doctor's DAta also tells you which prescription and supplements they tested against MY particular samples and both caprylic acid and oregano showed as being effective against both the yeast thing and now the bacteria. Prescription wise, Nystatin worked on the candida issue but didn't come up for this bacteria. I'll post more later.

The oxalate thread was already 11 pages long when I looked at it last night...I didn't have the energy to read it all, so I'll have to continue today. Don't think anything stuck in my brain. Last week I printed out the list of high/low oxalate foods, so until I can read more I may just wing it and try the stuff on the low side.

your bacteria is my parasites- no matter what i do they will not go away!!!

OMGosh, I'm so excited about your muscle testing!!! I found the same thing, that it was pretty accurate on what was happening in my body. Stupid parasites and bacteria...die bugs die (to quote our dear Bev, lol).

I notice you listed co-enzyme Q10 in your list of what you're taking. Can you tell me what it was recommended for?

...

So anyway, I was curious about why you take it and would love to hear if others are taking it and why.

I take it. I actually have a deficiency of it so my doctor wanted me to take it, and for a while was taking two different kinds at the same time. When I went to the lyme specialist, he ran a whole bunch of tests (not just for lyme) so he could get the whole picture of my health. He ran some blood tests to test levels of various things, and CoQ10 was one that was low. The lab was Doctor's Data, so I know I have a great write up of it. I'll find that and post it later.

[ami27]

I would like your expert opinions on what is going on with me. Friday I ate a bunch of cilantro with some chicken. Later that evening I also took a detox bath (dead sea salt, epsom salt and detox essential oils). Saturday I woke up with my forearm hurting like it's never hurt before. Almost 3 years ago I fell roller skating and dislocated my elbow, shattered the radial head AND broke my ankle. I ended up having surgery and had a plate and 6 pins put in my ankle. I had to have a titanium spacer put in my elbow where the radial head was shattered. It was this forearm that was hurting. Sharp, bring tears to your eyes kinda pain. Initially, after the surgery my arm would hurt in this same place when the weather changed, but not this bad and it eventually stopped doing that. So I woke up again this morning with the same pain. I was just grocery shopping and when I snapped my coin purse back together I thought I was going to cry from the pain that shot up my arm. Now I'm wondering could this all be going on 'cause of toxins that I've stirred up?? This is very strange and painful.

[CarlaB]

Carla, thanks and is there a way I would know I was benefitting? That sounds funny but sometimes I feel like I am tracking pain systems through my body, like storms on a map of a continent, does anyone know what I mean?

Well, I'm not sure ... and when you're doing so many things, it's really difficult to tell which thing is working. I know that when I'm acidic, I CRAVE lemon or lime juice. I squeeze a whole lemon into a glass of water. It tastes sweet and really good. I'll drink a few glasses a day ... but after while it starts tasting sour and I wonder how I ever drank it.

In fact, I think I should go see if I have a lemon.

CARLA ........... SORRY YOUR STILL SICK ONLY ON THE + SIDE IS THE DINNERS YOUR RIGHT.

Thanks. Today we're going to brunch at a friend's house.

I notice you listed co-enzyme Q10 in your list of what you're taking. Can you tell me what it was recommended for?

CoQ10 is often recommended for Lyme. A lot of people on Lymenet take it. It cannot be taken with Mepron or Malarone, so I had to stop taking it. I know my LLMD otherwise recommends it.

!!!! Glad you are pulling out of it...the mental stuff sounds like a bit like what I've had going on for the last few weeks.

The mental stuff is hard.

BTW, I think you should take the church up on their offer. I know you think there are others who are more needy, but if you were the one offering the help, I'm sure you would think you are needy enough. It's harder to accept charity than to give it ... but someone has to accept it or there would be no one to give it to! Take the carpet, then pay it forward later to someone else who needs help.

[CarlaB]

I ate a bunch of cilantro

Later that evening I also took a detox bath

I think it was probably one of these. Cilantro is used for Lyme and I think heavy metals.

[Judyin Philly]

EDITED BY JUDY

LAURA ...........THANKS SO VERY VERY MUCH FOR YOUR INFO.

I'M SO SORRY I DIDN'T LOOK AT THE DATE.

SO GLAD YOU HAVE MY BACK HONEY

JUDY

[covsooze]

Carla, I'm in danger of racheling lemons today I think I'm acidic at the moment coz of all the rubbish I've been eating this week. The lemons definitely feel like they're helping, thanks for that suggestion. Mind you, I've always loved lemons and used to eat them when I was little ...must look up that alkalizing (sp?) diet.

We have a whole load of lemons and limes at the moment as DS and DH came back from their shopping trip yesterday with a fruit powered watch. The first lemon didn't last very long though and we've just fed it an apple core to keep it going

Ami, I hope your arm feels better really soon.

Jin, what do you do special with your diet? We seem to be very similar in our symptoms, so I'd be interested to know how you're attacking things (or am I just nosey?! )

Susie

[CarlaB]

Susie, just be sure to protect the enamel on your teeth ... it's not a sipping drink.

I still haven't gotten my lazy body off the couch to go see if we have any.

[happygirl]

Judy, the pill by Dr. Fasano has been in the works for a few years now. Came out of research from the University of Maryland's Celiac Disease Center. Dr. Fasano discovered the effect of zonulin re: Celiac Disease. I heard the president of the pharm company, Dr. Paterson (which Dr. Fasano started) speak in early 2006. Their research is absolutely fascinating. Its very promising and based on solid academic research.

The study has progressed further than the info you got---it was dated 2 years ago. It stops gluten from going through the barrier cells. Zonulin opens the fence that allows gluten to permeate to where it shouldn't go, which causes the autoimmune reaction. Celiacs and others (including diabetes) have been found to have higher levels of zonulin. The pill works by stopping the zonulin, which then keeps the fence between the barrier cells closed.

The same mechanism is being researched for diabetes and other autoimmune disorders. Its a completely new way of looking at autoimmune disorders.

This is the latest press release related to it: Open Original Shared Link

[NoGluGirl]

Dear Donna,

Wow, I had no idea Doctor's Data tested supplements as well! That is amazing in itself! I am glad they have you on some supplements to target the trouble. I cannot wait to read about the report. It should be very interesting!

I do not know if I will be able to read the oxalate thread right now. My head hurts something awful. Some of it is eyestrain, and my cavity. The TMJ only causes more skull-crushing misery. Sinuses are not fun to deal with! Between all of this and the wisdom teeth and overcrowding, it is a wonder my head is still attached and has not caved in or something.

I am so going to Disneyland, too! You cannot go without me! I will not let you! That will be amazing! The entire place is incredible! I have a friend that has been there a ton of times. This time, we will be sure to watch for spiders, since we remember what happened the last time you were there!

Dear Ami,

I think you probably did too much detoxing. You need to take it kind of slow. Too much at once is a heavy burden on your body. If you have metals, they can be massively trying to leave your system and cause a surge in misery. Metals redistributing also do this to people. Take it easy, and only add one new thing per week and in small amounts.

Dear Carla,

Lemons are something we do not often have around. That is going to change! Odd enough, I used to like to suck on lemons all the time as a child and did not find them sour. Maybe having an acidic body is why. It makes plenty of sense!

Dear Judy,

Thank you for the information on Zonulin! So, you got it? Does it work? The thing is, will our intestines still be destroyed? How does it work exactly?

ROTFLMAO! I thought you would enjoy my commentary on the side-effects. Some of them are quite scary. I could see why you wanted to delete your previous post now! Unpleasant things are something people do not like being reminded of! It just amazes me how horrible some of the side-effects are on these drugs. Half of them are worse than the actual illness or condition they are supposed to treat!

Dear Susie,

Do not rachel the lemons! I could be dangerous! Overload is not good! A little at a time is good. It is so funny you mentioned enjoying eating lemons as a child. I did as well! Whenever I got iced tea while we were out, I would always suck the juice out of the lemon slices.

I am primarily just gluten-free and no lactose at the moment. However, I have been noticing I tend to react to foods if I eat them on consecutive days. So, I try to not eat the same stuff too often. The Zone is what I plan on starting again. It can help balance my blood sugar.

Plus, it naturally helps with your brain chemistry (serotonin) as well. I am also not eating yeast. You are not nosy at all!

The only way to find answers is to first ask questions. Seek and you shall find. Another thing I do is make sure to add a small amount of sea salt to my food every day. It helps a bit with the NMH. I am not terrific, but a little better.

Dear Laura,

Thank you for the extra information on zonulin! This is so cool! It would be so nice if that stuff works! The science behind it is really outstanding. Dr. Fasano seems to have put an incredible amount of effort into this. Meanwhile, how are you?

Sincerely,

Jin

[AndreaB]

Funds being low is so stressful. If I had money, my health and depression would improve. Having no money deprives you of everything. You cannot have food, medical care, or anything else without it. I am a wreck because I need to come up with thousands of dollars to the school and Citibank as well as a Stafford Loan soon. I am totally panicked.

How scary about the ALA causing frightening dark thoughts. Be careful with that stuff!

Just do what you can Jin. It is hard and I've been stressing too, but it's not worth compromising your health more.

I agree with your last comment to Donna too.

Ok so my appt with the muscle testing was really interesting.

Sounds like a really good appointment Mia!

Hope the eggs go well with you too.

[Judyin Philly]

Judy, the pill by Dr. Fasano has been in the works for a few years now. Came out of research from the University of Maryland's Celiac Disease Center. Dr. Fasano discovered the effect of zonulin re: Celiac Disease. I heard the president of the pharm company, Dr. Paterson (which Dr. Fasano started) speak in early 2006. Their research is absolutely fascinating. Its very promising and based on solid academic research.

The study has progressed further than the info you got---it was dated 2 years ago. It stops gluten from going through the barrier cells. Zonulin opens the fence that allows gluten to permeate to where it shouldn't go, which causes the autoimmune reaction. Celiacs and others (including diabetes) have been found to have higher levels of zonulin. The pill works by stopping the zonulin, which then keeps the fence between the barrier cells closed.

The same mechanism is being researched for diabetes and other autoimmune disorders. Its a completely new way of looking at autoimmune disorders.

This is the latest press release related to it: Open Original Shared Link

LAURA THANKS SO MUCH

SO I READ YOUR POST AND PRINTED THE ARTICLE.

I RESPECT YOU AND YOUR RESEARCH SO MUCH + YOU MET DR FASANO AND I KNOW I'VE BEEN HEARING ABOUT HIS RESEARCH

SO IN YOUR RESPECTED OPINION.........CAN THIS HELP THE LEAKY GUT............EVEN IF WE STAY gluten-free, SF, DF, ETC.....?

GOSH I WISH I HAD YOUR PHONE #.

MISS TALKING WITH YOU.......KNOW I HAD IT AT ONE TIME BUT HATE TO BOTHER YOU AND ERIC ON THE WEEKEND.

SO MAYBE FOR HEALING.........THIS IS ADDITION TO OUR DIETS COULD REALLY HELP US.

DO YOU THINK SO??????????????

JUDY

EDIT..AGAIN........I NEED TO GET OUTSIDE...........AND AWAY FROM COMPUTER AS I'M CONFUSING FOLKS............

NO.............I'M NOT ON IT. THE POST WAS FROM SOMEONE I GOT AN ALERT FROM TODAY

LAURA'S SAYS IT WAS OLD INFO

AND AT THIS POINT I'M NOT PLANNING ON TRYING I. IT'S JUST IN THE TRIAL STAGES I GUESS. BUT I'M NOT THE EXPERT ON THIS FOR SURE.

I WILL WATCH THE RESULTS OF THIS STUDY. PLEASE KEEP US UPDATED LAURA.

HUGS ALL

JUDY

[AndreaB]

Detox brings unresolved emotional issues or conflicts to the surface. Its part of the healing process. If the emotions are supressed it can actually stop the body from detoxing/healing.

A Dr. who is one of the world's leading experts on mercury detox has said that our bodies will store toxins during times of emotional stess, unresolved conflicts, trauma etc. If we hold onto these issues we do not release those toxins. In his patients that are not successfully detoxing with treatment....its very often the emotional issues that are holding them back.

Rachel I copied this from the other thread.

I was going through a lot of anger issues earlier in the month as well as being highly emotional. I wonder if it's due to starting a detox program. Interesting.

[Judyin Philly]

Rachel I copied this from the other thread.

I was going through a lot of anger issues earlier in the month as well as being highly emotional. I wonder if it's due to starting a detox program. Interesting.

HANG ON ANDREA.

I TOO HAVE ANGER ISSUES AND MAYBE WE ARE RELEASING SOME NOW.

LET'S HOPE SO ..........LOVE YOU JUDY

[Rachel--24]

I would like your expert opinions on what is going on with me. Friday I ate a bunch of cilantro with some chicken. Later that evening I also took a detox bath (dead sea salt, epsom salt and detox essential oils). Saturday I woke up with my forearm hurting like it's never hurt before.

My thoughts are that yes....you stirred up more toxins than your body was able to excrete. Also old injury sites are areas that tend to accumulate toxins. Do you have a scar there from surgury??

I've read alot about scars causing disturbances in the body. I posted it awhile back. If you're interested I'll re-post it. My Dr. who does ART looks for scar disturbances during testing.

I think the cilantro stands out the most though. You ate a bunch of it?? Are you always eating a bunch of cilantro??

I would not overdo it with cilantro. Its used for mercury detox and its one of the very few things believed to cross the blood barrier to chelate mercury. You dont want to attempt that until you have detoxed mercury from the rest of your body first.

Cilantro is very effective for mobilizing mercury but it does not bind well with mercury. Its not an effective chelator on its own....you would need binders to help move the mercury out. If you're eating a bunch of cilantro chances are you're moving mercury around...redistributing it. Even if you took some chlorella it may have not been enough if you consumed alot of cilantro and mobilized more than you could handle....or mop up with the chlorella.

I would avoid cilantro unless in small amounts and taking charcoal, chlorella or something else along with it. You cannot mobilize more mercury than your body can excrete without getting symptoms caused by redistribution.

The last thing is that since this injury only ocurred 3 years ago and you are now sick....I would look into having someone who does ART or muscle testing check to make sure that this is not contributing. I would have them test to make sure you are not reactive to the titanium.

www.melisa.org

Titanium allergy is barely recognized in mainstream medicine (see our references at t he bottom of this page) - yet laboratories using the MELISA

[NoGluGirl]

Dear Andrea,

I just have no idea what to do. When you owe the money, they really do not give a crap how you get it! They have asked me if my parents will pay it! I do not think they would care if I robbed a bank as long as they got the money. Even worse, they have those Indian people calling.

Them and Middle Easterners are the only people I cannot understand. Their accents are too thick! Is it that freakin' complicated to get people who speak English? Is it really too much too ask? Without meaning to sound racist, I really am starting to hate Indian people!

The anger issues could be detoxing. Emotions tend to be stronger when you are detoxing. I know that for sure. Many people mention that. Metals particularly tend to cause that effect.

Dear Judy,

I thought you meant you were trying the new drug. I apparently misunderstood what you wrote. Anyway, it is interesting. I am glad you posted it. That would be wonderful if it could help with Leaky-Gut as well!

The anger issues are trouble for me as well. With my family, who would not be annoyed?

I need to look up more about the Emotional Freedom Technique. That seems worth pursuing. Since the booklet is free, why not?

Dear Rachel,

Wow, thank you for posting the information on titanium! I never would have thought of that. A lot of times I felt sick after eating some of those fruity candies. Maybe that has something to do with it? I should experiment with this.

Sincerely,

Jin

[Rachel--24]

Cilantro is used for Lyme and I think heavy metals.

What is cilantro used for in Lyme treatment?? I have never seen any info. about it treating lyme directly...just the stuff about detoxing the metals. Are you taking cilantro for your Lyme?? What is it suppossed to do??

[AndreaB]

The last thing is that since this injury only ocurred 3 years ago and you are now sick....I would look into having someone who does ART or muscle testing check to make sure that this is not contributing. I would have them test to make sure you are not reactive to the titanium.

That's interesting about the titanium. Mitch has a titanium screw that we know of from his knee surgery 2 years ago. We haven't done thorough ART testing so don't know if that's a problem or not. He would have that scar and I obviously have the ones from the c-sections.

[Rachel--24]

Its weird but i feel very excited is the wrong word but anxious to see how this all goes. My fingers and toes are definitly crossed.

Miamia

Mia...thats great that you had such a positive experience. I also find that my results with muscle testing have been right on target...and for me the labwork I've had has never been nearly as accurate.

I would still be totally in the dark if it werent for the ART and muscle testing.

I hope things go really well with your new supplements. Hopefully she tested you for the proper dosage as well?? Some things my body cant tolerate very much of...but I can take small doses. Other things I can take higher doses.

If you react to the eggs it could be because of sulfur....but if that was the case you probably wouldnt do well with garlic or onions either. I eat eggs but not the yolks.

The interesting thing is...remember how we talked about microwaves and how they destroy the nutrients in foods?? Well if I microwave my eggs...I can tolerate them...yolks and all. If I prepare them any other way....I am reacting to the sulfur-containing yolks!

So I guess the microwave really does destroy the food....but in this case its working to my advantage.

[ami27]

Thanks for everyone's responses.

My thoughts are that yes....you stirred up more toxins than your body was able to excrete. Also old injury sites are areas that tend to accumulate toxins. Do you have a scar there from surgury??

I do have a scar on my ankle and elbow. They healed nicely though and only look like a scratch at this point not a surgical scar. I used rose hip seed oil mixed with helichrysum and it helped tremendously with scar tissue. I love aromatherapy.

I've read alot about scars causing disturbances in the body. I posted it awhile back. If you're interested I'll re-post it. My Dr. who does ART looks for scar disturbances during testing.

How would I go about finding a doctor who does ART testing?

I think the cilantro stands out the most though. You ate a bunch of it?? Are you always eating a bunch of cilantro??

I'm not sure it was alot. It was about a handful. I don't do this all the time. But, my doctor suggested that it's a good detoxifier and that she eats it all the time. So I thought I'd try it and thought the bath would help move stuff out. I'm definitely going to be talking with them tomorrow about all of this.

The last thing is that since this injury only ocurred 3 years ago and you are now sick....I would look into having someone who does ART or muscle testing check to make sure that this is not contributing. I would have them test to make sure you are not reactive to the titanium.

I've always wondered if this metal I have in my body was affecting me. I don't know what the plate and pins in my ankle are made out of. I just know they specifically told me the spacer in my elbow was titanium. I need to further research this.

Thanks for the info.

[Rachel--24]

All colors have their purpose of course, my accupuncturist just had me working with pink a lot the last few years. But now that I think of it I suppose it's an individual thing and what is specific to each person.

Thanks for the info on colors Julie.

I really dont like purple but the other choices were white and some other greyish color.

I was hoping if I wait they will get more colors in.

I usually go for blues, greens, maroon, red, orange or yellow....I think those are my healing colors.

Green is my favorite color but I wouldnt think of wearing it....except on St. Patricks Day.

[Rachel--24]

I'm not sure it was alot. It was about a handful. I don't do this all the time. But, my doctor suggested that it's a good detoxifier and that she eats it all the time.

She might eat it all the time but if shes not already sick from mercury toxicity it wouldnt be a problem for her. If we are mercury toxic anything that mobilizes mercury can cause problems if not used safely.

Heres a post I pulled from LymeNET about cilantro. This is all taught by Dr. Klinghardt.

Only use organic.

No Cilantro should be taken around time of dental work. Not intended for children or during pregnancy or when breast feelding except under the care of a licensed medical practitioner.

Neurotoxin remedies such as cilantro are easily taken up into the system transdermally because they are picked up by the nerves directly.

Take mop-up agents when taking it to avoid redistribution. It's a major problem with neurotoxin detox. Always think of supporting meds.

Check for cilantro in electrolyte solution (contains no alcohol).

Do not take cilantro early in the detox phase. It has a dramatic effect, but it is a late agent. You don't want to stir up the metals in the gut and take them to the brain.

You want to clean the body out first, and then take agents like cilantro or DMSA or NAC, as late agents when there is nothing to take to the brain anymore.

Clear out the extracellular spaces first with chlorella -- then the cilantro has nothing to take up to the brain. At that point, cilantro tea(starting with 2-3 drops in hot water) and sipping slowly will quickly clear the brain of neurotoxins.

Do not take vitamin C with or around cilantro.

They cancel each other.

Cilantro causes the gallbladder do dumpt bile - containing the excreted neurotoxins into the small intestine. If no chlorella is taken, most neurotoxins are reabsorbed on their way down the small intestine.

And don't use cilantro if you still have amalgams in your mouth. Cilantro tincture crosses the blood brain barrier. Check Yoshiaki Omura, MD for research.

You might try contacting that Dr. in Denton to find out if he or anyone else in the area does any ART or muscle testing.

I cant remember if I gave you his name or not. If not I can still do that....gotta find it first though.

[Judyin Philly]

hi

just came in to take a break .........trying to pace myself

guess what welcomed me.

rachel says.

"""""""""Those who test positive should avoid exposure or remove the titanium from their body to stop the internal reaction. This can be simple, like changing brand of toothpaste. Or it can be more complex, such as replacing titanium implants.

"""""""""""""""

guess who has a titanium hip replacement in 2000???????????? no wasn't Micky Mouse ........

yep it was me...............

going back outside going to hide from this one

j

[ami27]

She might eat it all the time but if shes not already sick from mercury toxicity it wouldnt be a problem for her. If we are mercury toxic anything that mobilizes mercury can cause problems if not used safely.

Heres a post I pulled from LymeNET about cilantro. This is all taught by Dr. Klinghardt.

You might try contacting that Dr. in Denton to find out if he or anyone else in the area does any ART or muscle testing.

I cant remember if I gave you his name or not. If not I can still do that....gotta find it first though.

Thanks for the info. That's some scary stuff...no more cilantro for me!!

You haven't given me the doctor's name yet. If you can find it, I'd appreciate it.

[CarlaB]

What is cilantro used for in Lyme treatment?? I have never seen any info. about it treating lyme directly...just the stuff about detoxing the metals. Are you taking cilantro for your Lyme?? What is it suppossed to do??

Oops. It's parsley. Cowden uses parsley for detox. They both look the same ... well, the food does (I cook with fresh stuff like this when I feel good, so it's been a while).

I've always hated cilantro. Isn't that funny ... I wonder why this natural aversion to it? It's not like I hate a lot of foods ... pretty much just cilantro ... I don't particularly love tomatoes, but a little bit is good ... cilantro is always gross. I also don't particularly like peas ... good thing I'm not Rachel! But I do have an AWESOME pea salad I make for pitch-ins ... I ALWAYS get asked for the recipe ... it's really great!

Sorry, brain is herxing ... I'm babbling. Maybe I should go eat some parsley.