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Ugh Displaced Mind

Lister

By Lister
in Coping with Celiac Disease

Recommended Posts

jerseyangel Proficient
jerseyangel
Posted
The enema could have helped. Keep that in mind next time you're clogged up!! It could also be that your stress is lower .... you've been worried about this test for a while!

I was thinking the same things.

Glad it's over, Lister and that you're back home. Take it easy tonight--get some rest. :)

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  • Replies 411
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Guest ~jules~
Guest ~jules~
Posted

Ugh thats horrible! I don't do blood or needles, I get sick at the sight of blood. The last labs I had done this woman had to poke me 3 or 4 times, all the while she was explaining to me what she was doing, I passed out right there in the chair...not fun....

queenofhearts Explorer
queenofhearts
Posted

Hi Lister,

Glad it's over & you're feeling better!

Sorry about all the mishaps en route, but I hope some answers come from the biopsies.

Lister Rising Star
Lister
Posted
  • Author

yeah same here, the doc says he is able to rule out alot of things from the results. i will get a better discription in a few days

Lister Rising Star
Lister
Posted
  • Author

hmmm not sure if it matters or not but im still ced up and when i do get stuff its fricking neon green now... wtf did those laxatives and enemas do to me :( now im even more iregular

__________

not sure if this is related to any of this but im so sore all over for no reason, like my leg/calf is so sore i cant even tuch it same with my left butt cheack and my left side and my left side of my back and then the right side of my neck, all are so stiff and sore for no reason :(

Lister Rising Star
Lister
Posted
  • Author

anyone know how long it normaly takes for biopsie results? i wanna know what the next step is, so i can finally get better (finally getting closer to answers)

Guest ~jules~
Guest ~jules~
Posted

I got mine in three days, but I was told it could be up to 7 days.

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Lister Rising Star
Lister
Posted
  • Author

anyone here bleed at all after biopsis? the day of i had like bloody snot, but now its 2 days later and im still gettting chunks of red/black blood in my stools and by themselvs. wondering if i should call the doctor or if this is normal after biopsis ( the doc said it was normal to bleed after them, but its been 2 days)

CarlaB Enthusiast
CarlaB
Posted

If doc said it was normal to bleed, I wouldn't worry about it after two days. If it's for a week or two, then I might be concerned.

Lister Rising Star
Lister
Posted
  • Author

anyone know what a stigomoidoscopy rules out?? i know not cancer because it only covers 1/3d of the colon but i know it rules out colitis anything else?

_________

so i dont know what to think anymore. since the prep, i have been feeling pretty good, still always tired and i got some mild stomic discomfurt but my stomic is definatly doing way way way better then it was, im starting to think maybe half my problem was just i was really clogged up and the enemas cleared out the clog.. dont know could be completly wrong, but i do remember 5 months ago when this all started when they where doing xrays they said there was a stool lodged in my colon that was not moving at all.. so maybe i blasted it out and that was what was causing my problems (wouldnt that be awsome) o well just gotta play the waiting game some more for real answers

Lister Rising Star
Lister
Posted
  • Author

woohoo i have gas :), i know that sounds wierd to be happy about, but im finally passing normal sounding gas around 10 times a day. makes me feel more normal since i used to always pass and then after getting sick never. i meen its not painfull gas just gas :) yay and my bms are now a earth tone instead of interesting yellow. woohoo i hope things keep going up from here and dont drop back down i would be sad but for now im fairly happy... woohoo... i wonder what is really wrong with me.. so random

queenofhearts Explorer
queenofhearts
Posted

Great to hear you are feeling better, Lister! Hope this is the beginning of real healing for you.

daffadilly Apprentice
daffadilly
Posted

Lister there are exercises that you can do that help move a "lazy bowel". For one you can get on the floor on all fours, your knees & elbows, then take one leg & stick it straight out back & draw it to your chest, do those a few times & then with the same leg lifted off the floor & bent, lift it sideways, then repeat with the other leg, you can also take one leg and instead of straight out bend it at the knee & slightly lift up. This used to work for me when nothing else would.

Lister Rising Star
Lister
Posted
  • Author

thanks i will try that, yeah it seems like my bowls just dont work 90% of the time, like it wont let anything travel properly no clue why. some days they work other days they dont hope that exersise helps thx

CarlaB Enthusiast
CarlaB
Posted
woohoo i have gas :), i know that sounds wierd to be happy about, but im finally passing normal sounding gas around 10 times a day. makes me feel more normal since i used to always pass and then after getting sick never. i meen its not painfull gas just gas :) yay and my bms are now a earth tone instead of interesting yellow. woohoo i hope things keep going up from here and dont drop back down i would be sad but for now im fairly happy... woohoo... i wonder what is really wrong with me.. so random

ROFLMAO!!! :lol::lol::lol:

What's wrong with you??? Your fascination with gas and poo!!! :lol::lol::lol: Simple things other take for granted!!

Lister Rising Star
Lister
Posted
  • Author

yay i had my dad email my grandparents about possibly sending me some money for a entrolab test and my grandpa wants to talk to me about giving me help :) sweeeet looks like i may finally get the entrolab test (finally my dad does something right)

jerseyangel Proficient
jerseyangel
Posted
yay i had my dad email my grandparents about possibly sending me some money for a entrolab test and my grandpa wants to talk to me about giving me help :) sweeeet looks like i may finally get the entrolab test (finally my dad does something right)

That would be fantastic, Lister! :)

CarlaB Enthusiast
CarlaB
Posted
yay i had my dad email my grandparents about possibly sending me some money for a entrolab test and my grandpa wants to talk to me about giving me help :) sweeeet looks like i may finally get the entrolab test (finally my dad does something right)

It's the least he can do ... That would be wonderful for you.

daffadilly Apprentice
daffadilly
Posted

Hip Hip Hooray for grandparents !!!!

Lister Rising Star
Lister
Posted
  • Author

well i talked to my grandpa and the conversation got no were, he did not remember having it with me- apprently my dad says hes going senial :(.

man i was hoping to atleast get some answers from that

im starting to get frustrated again, im still loosing weight im down to about 157 so that was another 4 pounds in a week. i only have a small amount of stomic left to loose, whatever this is has already sucked the fat out of everyother place in my body, im boney skinny everywhere and its starting to freak me out.. what happens once there is no more fat for it to suck up?? its taking way to long to figure out whats wrong with me

Lister Rising Star
Lister
Posted
  • Author

well i just got the results back from the stigmoidoscopy, well that was a waist of fricking money. they found nothing with the biopsis so now he wants to do a endoscopy/full colonoscopy- at the same time (omg ahhhhh) i dont think i can even go thru with that procedure, i meen i guess i could suck it up and do the colonoscopy but the endo seems kinda extreme to me. plus the money OMG..... the next apointment is past october so im going to be living longer with no fricking answers. its fricking bullcrap omg i hate all of this fricking crap..and now he wants me to start taking like medamusul and crap to try to regulate me. doubt it will work just more money waisted

Guest ~jules~
Guest ~jules~
Posted

Sorry lister, I hate going to the doctor period. Needles, blood, sterille rooms, creepy hallways, the whole experience stresses me out. With your sypmtoms both procedures are a good idea. Why didn't they just do a colonoscopy in the first place? :blink: Well at least for both of those procedures you won't feel it, and its pretty easy to get through...I remember after my colonoscopy they found nothing, and told me to come back for a follow up appointment. I was so ticked off at not having any answers, and so tired of doctors I just wrote them all off and sat at home sick and stubborn for 3 months. After awhile things got worse than they had ever been so I went back and got my endoscopy, then was diagnosed. Just hang in there jump through their hoops and eventually they will figure it out....

Lister Rising Star
Lister
Posted
  • Author

i just hate all of it, the more tests they do without finding things the more i start to worry about what it is thats going on with me.. its freaky

Guest ~jules~
Guest ~jules~
Posted

Ya I know I went through the same thing, I kept getting on the internet and googling my symptoms, and that didn't make matters any better trust me. I thought I was dying seriously, I never thought for a million years it was what I was eating.

Lister Rising Star
Lister
Posted
  • Author

i have been on a gluten-free casien free diet for almost 6 months now, i really dont think its something i was eating anymore. But yeah i dont google myself anymore. all it does is make it way worse, all that comes up is stomic cancer or colon cancer, both of wich i know i probably dont have im to young. i probably have chrons like the doc thinks but if its chrons i dont know how he is going to be able to stop the weight loss since chrons is not really treatable they just give u meds to stop complaining. for some reason the doc wants me to go get a bunch of blood work done next week, dont see the point since he sgoing to be scoping me soon i think hes just after my wallet

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    • Aretaeus Cappadocia
      Sorghum, Kale and Roasted Cherry Tomato Salad

      By Aretaeus Cappadocia · Posted

      It's kind of funny that before my celiac diagnosis I did a lot more "functional eating" where I just needed a meal and wasn't so worried about how interesting/delicious it was, just needed to eat something. After my diagnosis I've become a dedicated cook and I am very tuned into flavor and novelty. In answer to your question, I find the recipe very forgiving for trying add-ins. I've supplemented the greens with green onions, bell pepper (any color), celery leaves and stalks, and fresh parsley. Sometimes I throw in pepitas (pumpkin seeds), craisins, walnuts and/or sunflower seeds. One thing I tried that didn't really work was currants. I think that maybe it's because they are too small and too sweet. I haven't experimented with cheeses beyond the 2 in the recipe. I would guess that grated hard cheeses would work, medium hard cheeses (like swiss or cheddar) might work, and soft cheeses would not.
    • Harris
      Pear Bread

      By Harris · Posted

      That actually sounds really nice. Pear bread feels like one of those things that would be soft and a little sweet without being too heavy. I like the idea of using fruit like that instead of just relying on sugar. It probably makes it feel more fresh and homemade. Have you tried adding anything like cinnamon or nuts to it, or do you keep it simple?
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      Sorghum, Kale and Roasted Cherry Tomato Salad

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      That actually sounds really good, I wouldn’t have thought to mix sorghum with kale but it makes sense. The roasted cherry tomatoes probably bring a nice bit of sweetness to balance everything out. I’ve been trying to find more simple gluten-free meals that don’t feel boring, and this feels like something you could make ahead and just keep eating through the week. Did you add anything else to it, like nuts or cheese, or keep it pretty simple?
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