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Lister

Ugh Displaced Mind

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what diffrent things mess with your vision?? i got really blurred/stoned like vision today and yesterday all day long.. would say its from gluten but i know its not. but one thing that may help figure it out is the vision seems to alwasy come with one other thing, a pressure like it feels like someone has two fingers on top of my nose and is pushing down, i can relive the vision and the pressure by applying force to my nose but it only gives relife for about 10 seconds any clues??? ugh i feel like crap, i already gotta deal with my stomic why my vison also

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if anyone thats had to do a stigomoidoscopy would be willing to talk to me about it in a privete message it would be much apretated, im really nervis/scared/dreading the whole thing im not sure if im more frightend of the prep or the procedure and im making myself a wreck dwelling on it

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The gastrointologist is 98% sure its chrons disease, so i meen if he is that positive im thinking about cancaling the scope ( i really dont wanna go thru with it anyways) because i meen if it is chrons then there is nothing they can do for me just send me home and tell me to deal with it..so i meen atleast then i would not be butt hurt and poor because of the diagnosis... i dont know :(

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The gastrointologist is 98% sure its chrons disease, so i meen if he is that positive im thinking about cancaling the scope ( i really dont wanna go thru with it anyways) because i meen if it is chrons then there is nothing they can do for me just send me home and tell me to deal with it..so i meen atleast then i would not be butt hurt and poor because of the diagnosis... i dont know :(

Your GI can not be sure it is Chrons without doing tests and biopsies. Chrons patients also often see a great deal of improvement on a gluten-free diet, read misdiagnosed celiacs here. My 'Chrons' symptoms are in complete remmission on the gluten-free diet, no pills, no pain. Also the symptoms of chrons, colitis and Celiac are all similar. And none are a death sentence. You need to get the test done to set your mind at ease. Also many of the previous bills were absorbed by the hospital and you will be able to get some help with at least a payment plan if you ask for it. Having things on paper may also assist you in getting some help with finding another job or job training, if you check at the SSI office and explain your situation they can help.

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You might also want to look into the Vocational Rehabilition program in your area....SSI could probably direct you to them if you cannot locate them on your own!

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You might also want to look into the Vocational Rehabilition program in your area....SSI could probably direct you to them if you cannot locate them on your own!

Lister this is what I was talking about when I mentioned what they call Vesid in my state. I really hope you check this out, with your educational history and your newly diagnosed celiac they really will help you with getting into another occupation or job. You have shown good determination and a good work ethic by the number of times you have gone to work or stayed at work when you were feeling ill. Try and channel some of that strength in to walking to that office and starting the process. It could open a whole new world for you.

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Also, they could link you up with other services that could be helpful and beneficial to you that we may not even know about or have thought about yet! PLEASE consider this!!! If you need help, let us know...i'm a social worker and could possibly assist you with finding your local office if you are unable to find this information on your own.

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Lister this is what I was talking about when I mentioned what they call Vesid in my state. I really hope you check this out, with your educational history and your newly diagnosed celiac they really will help you with getting into another occupation or job. You have shown good determination and a good work ethic by the number of times you have gone to work or stayed at work when you were feeling ill. Try and channel some of that strength in to walking to that office and starting the process. It could open a whole new world for you.

Yes, this is excellent advice, Lister. Take what these ladies said to heart--we know you can do this!

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Guest ~jules~

Lister, I was curious if you have applied for the oregon health plan. I was on it years ago in my early 20's before kids and marriage came along. I'm not sure what the qualifacations are these days but its something you might want to look into. So the doc says he's pos. its chrons? Follow through with all your testing even if he said that, this whole experience has shown me that doctors love to slap a label on you and send you home. I do know if you have chrons they treat it with medication, diet, no smoking the usual....I know how you are feeling, it sucks. Before I was diagnosed I went through almost 2 years of WTF? I was told I had parasites, even though they found none. I was sent home with pill upon pill, poked and prodded at, colonosopy came out normal, sent me home with IBS. I had no idea what was going on, I would sit on the internet trying to figure it all out, finally after more tests my gi, dx me with celiac. You will figure it all out unfortunetly we are at the mercy of our doctors and have to jump through their hoops and wait....Take care, things will get better Julie

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unfortuntly i still dont have a dx to back up anything for social security doctor has not put down any offical diagnosis in his records besides IBS :(

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Guest ~jules~

Hey lister, I just wanted to add a few about the stig. or colonoscopy, whichever you may...I wanted you to know that I was totally freeked out about it. BUT...it turned out to be nothing really. The worse thing about it was the liquid diet you have to go on before you get it done, I was starving! The procedure is a piece of cake, trust me. You go in, get a IV ( no big deal just a prick, and don't watch! ) Then you go into a room with the doc, and a r.n. and they set up their equipment (you can't see it) then, they give you strong drugs, the next thing you know your waking up. You wont remember a thing, or feel a thing afterward, I had no idea anything had happened to me at all. So, you will be okay. I am spreading the word on how easy the colonoscopy is so people wont be so afraid to get one, it is a very important procedure. Take care Julie

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whats the reason for the iv? do you feel the drugs kick in or does it just happen? i think im more nervise about the prep then the procedure really, i have to give myself 2 ummm well enemas beforehand plus a laxative before i go to sleep the night before..... sounds so miserable plus since i cant eat i cant take my meds or probably even smoke a cig :( man wensday is going to suck, i just hope they find something so i dont have to go in for the colonoscopy and just the stigomiodioscopy. I hope its like a 30 foot worm thats eating all my food and causing stomic pains and not something really bad like cancer or something i guess no reason worrying about it now will know on wensday just hard to not think about. but thank you for your words that really helps me get into the mind set to go thru with it

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what laxatives are gluten-free?

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Lister:

I understand what you are saying about not having a diagnosis for SSI.

Below is the link for Vocational Rehabilitiation. You don't have to have SSI to go there and talk w/ them.

http://www.oregon.gov/DHS/vr/index.shtml

This link is for the entire state of Oregon. So you'll need to click on "Locations and Contacts" (it's the 3rd link down on the left hand side of the website, under MENU). Look to find the location closest to where you live and call them to arrange an appointment. Usually they will ask you a bunch of questions and evaluate you to see how they can best assist you.

Hope this helps! GOOD LUCK!

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Guest ~jules~

The IV is to administer the drugs they give you, if you've never had an IV it just feels like a beesting for a second then it goes away. As far as the drugs they give you its within a minute if not shorter your just gone, they told me its a semi-consious state but I can't remember anything. I don't remember a single thing about the procedure accept prep, then waking up. As far as the worm theory I'm not too sure I'd want that either :P Although worm vs. cancer, Okay I'll take the damn worm. You'll be fine, try not to stress it too much. Julie

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2 more days until the test, man im so scared about what the results will be, i cant keep my mind off cancer since my dad keeps bringing up the fac t that that colon cancer runs in the family and that i match all the signs hes a jerk scaring me like this

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Lister, you are very young, your chances of it being cancer are low.

I thought you didn't communicate with your dad?

I think a lot of your problems are aggravated by stress ... try to not worry so much! Not all stress is worrying either .... and it does affect you physically.

It will go fine, and you won't remember a things. The IV is pretty much the same as having blood taken for a blood test. The worst part of all of it is the prep the night before!!

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night before is just pure liquids and a laxative i can deal with that, the next morning is the bad prep the fricking enemas ughhhhhhhhh does not sound fun... but i am paining a frowny face on my butt cheak tonight so when they go to put in the tube they will find a little frowny face :) figure if i can keep a sense of humor to it it will go better

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night before is just pure liquids and a laxative i can deal with that, the next morning is the bad prep the fricking enemas ughhhhhhhhh does not sound fun... but i am paining a frowny face on my butt cheak tonight so when they go to put in the tube they will find a little frowny face :) figure if i can keep a sense of humor to it it will go better

I didn't have to do enemas, only laxatives ...

frowny face :lol::lol::lol:

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i dont really talk to my dad i just email him every once and a while and he responds sometimes, but as you can see not very positive responses from him

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2 more days until the test, man im so scared about what the results will be, i cant keep my mind off cancer since my dad keeps bringing up the fac t that that colon cancer runs in the family and that i match all the signs hes a jerk scaring me like this

Lister you'll do fine and as Carla said the chances of your having cancer are low. Try to relax and do as much as you can to keep your mind off it. You'll get through the prep okay, it's no fun but if it helps give you some answers it is worth going through. Has your Dad been getting the regular colonoscopies that he should? If not his fear may be more for himself. If he says that again I would ask what the outcome of his last one was. As for you, you can do this.

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Lister,

Because of your family history, and the problems you've been having, I think you are absolutely doing the right thing by having the test. Like everyone said, the prep is the worst part--and it's not really all that bad. I remember nothing from my procedure--no pain at all--even after.

Colon cancer "runs" in my family, too. I think I told you that my dad had it, but it was caught very early. He's 80 now, and has been followed closely for the last 30 years. (He was 50 when it was found).

The important thing is to get screened--this is curable if caught early! That's the good news. Even if they find a polyp--they'll remove it and it will never have a chance to grow into something more serious. You should look at this as a positive in that respect. Because you are so young, chances are they will find nothing--but always better to be safe!

I don't know why your dad is trying to scare you. Some people have a hard time showing concern--they make jokes or say unnecessary things. Could be he's scared of this himself....Maybe he dosen't know the facts.

Really, there's nothing to be afraid of here--you'll come through it fine. Try and relax, get your mind on something else if you can.

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Lister, you are very young, your chances of it being cancer are low.

I thought you didn't communicate with your dad?

Yep and his dad winding him up like this i can see why...

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i dont really talk to my dad i just email him every once and a while and he responds sometimes, but as you can see not very positive responses from him

Lister, if you're like me, you keep trying to establish the relationship, but keep getting treated badly each time. I don't want to post much for public view, but let's just say that I know exactly how you feel. I finally cut off ties, but it took me till I was 40 to do it. I found friends and mentors who I rely on and go to in times like these. If the relationship causes you stress each time you try, you might want to just stop emailing your dad until you're healthy again.

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Guest ~jules~

lmao! Man I wish I was a fly on the wall when the doctor sees that! ha hahahahahahah!!! I agree with the stressing out though, you've got to chill a little its probably making you feel worse. Well at least you'll find out that the procedure is no biggie, so when you need to start getting checked routinely when your older you wont be so afraid of it. Just a thought.

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i think i have calmed myself for the procedure yeah im still woried about it but im not letting it get to me anymore. but im starting to think about the night before now so i meen i guess tomorrow.. the not eating part i meen yeah they said i could eat all the way up until 4pm but then no more food.. usualy if it was like 5 months ago that would not be a problem but eating is the only thing that keeps my stomic from always hurting so i am going to be in constant stomic pain all night long and then they want me to take a laxative before sleep... so how am i supposed to sleep laxative+empty upset stomic= really really upset stomic.... man tomorrow is going to suck

on a side note

are spicy things naturaly hard on the stomic? me and my girlfriend made some home made salsa tonight but i dont wanna eat it now that i was thinking that it could irratate my stomic it has cilantro,white onion,jalapeno, and tomatoes.. would this be cool or am i going to give myself a stomic ake?

also anyone know gluten-free laxatives??

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omg mmmmmm, i wish i would have known how good cilantro was before, i just boiled some with my chicken and omg so fricking good im drooling

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