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Willow5

Encopresis And Celiac

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My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

Nan


Nan

-Anti Gliadin Ab IgG 39 Spring 2006, positive improvement to gluten-free diet, past possible symptoms of thyroid, miscariges, heart palpitations

-Enterolab results Anti-gliadin 8, Tissue transglut 5, Genes 2,7

-husband genes 8,6

-Son age 11 postive enterolab results, high Gliadin AB IgG. Encopresis (soiling) Genes 2,8

-Daughter age 3 Chronic Constipation, eczema, clears up on gluten-free.

-Three children no symptoms, not tested

-Mother positive in Tissue Transglut Antibody, IgA Fall 2006

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My son has struggled with it off an on... we just figured out that it is related to 2 things - lactose and consitipation. Our daughter just started going lactose free and as an experiment we had son go lactose free..he decided he didnt have to worry so he went back on regular milk etc. Lo and behold but his "wet toots" [as he calls them] returned withing 6 hours of lactose in his diet, after a few days of having no problem (when lactose free)

The cause varies but it seems to be -for our son - related to lactose (he is also celaic/diabetic).

Now I am wondering if the dairy is also behind the constipation too.......


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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thanks for the input, my son does drink dairy, have tried no dairy before but not combined with gluten free... always a new twist! thanks again, Nan


Nan

-Anti Gliadin Ab IgG 39 Spring 2006, positive improvement to gluten-free diet, past possible symptoms of thyroid, miscariges, heart palpitations

-Enterolab results Anti-gliadin 8, Tissue transglut 5, Genes 2,7

-husband genes 8,6

-Son age 11 postive enterolab results, high Gliadin AB IgG. Encopresis (soiling) Genes 2,8

-Daughter age 3 Chronic Constipation, eczema, clears up on gluten-free.

-Three children no symptoms, not tested

-Mother positive in Tissue Transglut Antibody, IgA Fall 2006

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I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...


Amanda

Positive TTG 9/05

Positive endoscopy 9/05

Doing well with "Sprue"

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I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.


Nan

-Anti Gliadin Ab IgG 39 Spring 2006, positive improvement to gluten-free diet, past possible symptoms of thyroid, miscariges, heart palpitations

-Enterolab results Anti-gliadin 8, Tissue transglut 5, Genes 2,7

-husband genes 8,6

-Son age 11 postive enterolab results, high Gliadin AB IgG. Encopresis (soiling) Genes 2,8

-Daughter age 3 Chronic Constipation, eczema, clears up on gluten-free.

-Three children no symptoms, not tested

-Mother positive in Tissue Transglut Antibody, IgA Fall 2006

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My son had this until going gluten-free. He wasn't constipated, just couldn't control his bowels at all. After a month gluten-free he was completely potty trained, but still has accidents if he gets gluten unintentionally. We had a foster son who had MAJOR problems with this. It turned out that he had an impaction the size of a grapefruit. Once that was cleared out, the problem went away. He's no longer here, but with his ADHD issues I now wonder if gluten may be an issue for him.


If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.

Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)

Husband - Type 1 diabetic, Negative bloodwork

Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06

Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05

"All things happen for good for those who love God..." Romans 8:28

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How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

I was so young I barely remember, except that I wouldn't go to the bathroom for days and days. Then the doc started having me do mineral oil and orange juice drinks and eventually it wasn't so bad...but I had some issues basically until I turned 30 which is when my GI did the bloodwork and found out I had celiac.


Amanda

Positive TTG 9/05

Positive endoscopy 9/05

Doing well with "Sprue"

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Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

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Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

Just to let you know - this thread is 6 years old. Most or all of the posters are no longer active on the forum.


 

 

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On 22/10/2006 at 0:03 PM, Willow5 said:

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

 

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

 

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

 

Nan

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

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1 minute ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Maybe when zthe Celiac damage is healed , the other  problem will dissipate?


 

 

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2 hours ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Hi!  

This is going to sound weird, but I am happy you have a diagnosis.  I hope, like Karen, that your daughter's other issue will resolve on a gluten free diet.  Your best defense is to research, research and research.  Learn all that you can about the gluten-free diet.  You can check out our Newbie 101 thread located under the Coping section of the forum.  

I assume you meant that the rest of your family was tested for celiac disease  when you stated that the siblings do not have it.  All first degree relatives should be tested even if asymptomatic.  

We are here to help!  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

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I know this started out as an old post, but I wanted to comment that an encopresis diagnosis is what led us to finding celiac in our 4 year old.  What helped us to beat the encopresis is Dr. Collins method- Soiling Solutions.  (plus I'm sure the gluten-free diet helped!)


Mom to 2 young kids with celiac, diagnosed March 2015

*Gluten free household

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