Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Anyone Else Have It Band Trouble?


julie5914

Recommended Posts

julie5914 Contributor

I've had trouble for 2 years, been through physical therapy, quit running, quit exercising altogether for several months, and I still have trouble with my left leg. Sometimes I have nerve trouble in that leg as well. An MRI has ruled out back problems and anything torn (it was a normal MRI).

I'm stumped as to why this is still bothering me and wondering if it's more of an issue in people with autoimmune disease...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katrinamaria Explorer

i'm sorry...maybe i'm missing it here, but i don't understand what it is you're having trouble with??

Jinscoe Newbie

I have similar problems as well. Have had them for the last two years. I've seen physical therapists, reflex therapists, chiropractors, foot doctors, knee specialists and my own personal doctor. No one has been able to make a dent in the pain and frustration.

I will say that stretching seems to help temporarily, so my problem could be a matter of poor flexibility.

Do you have pain anywhere, all the time? Even mild numbing pain? Does exercise make the pain worse?

eleep Enthusiast

Illotibial band -- right? I've had on-off issues with mine after running, but nothing like what either of you describe. I have a pretty regular yoga practice, however, and I find that -- regardless of whether I stretch after a run or not (I know, bad), I never have IT issues when I've been keeping up with the yoga.

eleep

julie5914 Contributor

Yes, Iliotibial band syndrome is what it started out as, but I think it is piriformis syndrome now because of the nerve involvement. It's tough to describe. When it's bad, I get deep pain in left butt and outside of left upper leg. It doesn't make me yell, but I want to quit walking. It's starting affecting my back too, esp. when out walking around and shopping.

When I've exercised, it'll sometimes hurt during (walking, squats) and the nerve trouble comes after. Strange numb feelings in the outside of thigh and sometimes front of shin and bottom of foot. Luckily that doesn't happen too often if I don't do squats, but how else am I supposed to make my legs strong?

Jestgar Rising Star

Massage has helped me. Also, my physical therapist gave me a styrofoam tube to roll on to massage and release the IT band. Probably a softball or that sort of think would work as well. For my piriformis I sit and rock on a golf ball.

  • 2 months later...
powderprincess Rookie
Massage has helped me. Also, my physical therapist gave me a styrofoam tube to roll on to massage and release the IT band. Probably a softball or that sort of think would work as well. For my piriformis I sit and rock on a golf ball.

I have a non IT related chronic injury, don't want to jack the thread, but I use a styrofoam tube, too, and it works wonders!

Hope the IT issues clear up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



powderprincess Rookie
Massage has helped me. Also, my physical therapist gave me a styrofoam tube to roll on to massage and release the IT band. Probably a softball or that sort of think would work as well. For my piriformis I sit and rock on a golf ball.

Heh, love your signature Jestgar!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...