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JerryK

Celiac Body Shape

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:) Good one.

I'd like to know WHY these two symptoms occur...I'm really curious. If anyone out there is savvy, lay it on us. Tx j B)

Jerry:

This is long ago learned information for me, I believe this is correct, but during periods of malabsorption, the body is starving and going after what ever it can to feed itself. I goes after the fat and muscle.

Hence, SOME of us have very thin extremities, Biafra Belly (dated reference - kids in Africa who are starving and have those big bellies) and flat A$$.

Lisa

PS. What a waste to wait 11 years to get the padding back and a good looking butt back, at 63, who will care :P


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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i have the flattest butt ever, skinny minny arms and a bigger tummy :(

i like the arms but not the belly

It sounds like i have the EXACT same body shape as you do. I'm kind of discouraged with the arms actually...mine are stick thin and I have to keep them covered :( Clothes make me feel so self conscious...the belly looks even bigger because of the arms!

I lift weights but I still can't seem to get ANY muscle mass back in my arms...weight training seems to lift the butt (haha), but my arms won't budge. Anyone else have this problem? How do I get some muscle or some fat back into my arms?

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Due to malabsorption my hubby's body fed off of muscles and fat and he has little or no padding on body but has a waistline out of proportion with hips (no hip or butt). The hardest item to buy for him is underwear. In order to get the waistband not to dig in, he has to go to the size large, but then the butt and legs are too big. This has been an ongoing problem as most manufacturers Hanes, etc. the waistbands are tight; I don't know how even non celiac men can tolerate the waistband.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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PS. What a waste to wait 11 years to get the padding back and a good looking butt back, at 63, who will care :P

LOL!! :lol:

Your hubby will appreciate it!! ;)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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It's funny how you can be celiac for years and years and then still hear something that surprises you. I have always had that same problem with my feet--they hurt no matter what I put on them. Too much support hurts, too soft hurts, too hard hurts, too much walking hurts. I love walking on the beach barefoot, yet getting to the hard sand through the soft sand is difficult and totally drains me of energy. My feet have talked to me for years.

As for the body shape, I'm sure there is a standard shape that is said to be most celiacs, yet I think there will always be those of us who do not fit that standard. I am a member of a very large celiac support group and at most all meetings there are at least 50 people. This man named Les, does fit that body shape to a T, exactly. Yet, many of us do not. My dad, my sister, and I all are celiacs and we do all have a flat butt ;) and my dad always did have that tummy, although I do not believe my sister and I did or do.

Deb, have you ever tried boxer briefs for your hubby? They always seem to have bigger waist's and slimmer butt and legs.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Good god AIN'T No flat butt here...trust me! You could put knick-knacks on my shelf :P:ph34r:


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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I was reading in Dangerous Grains last night and it talked about a typical shape of the face too. Big forhead and narrow chin. Triangle shaped face.

My stomach is on the bigger/swollen side, but I have a round rear end and never had the foot padding thingy I don't think.

My grandma (who had LOTS and LOTS of stomach problems during her life and eventually died from them) kinda looked like that though. BIG stomach, no butt.

Hmm. Ty definitely has a triangle shaped face. There's a guy at work who always kids around about his "alien" head. He still has a bit of a belly and not too much bum. He doesn't have a problem walking around barefoot, he never complains, but he did get orthotics for his shoes last fall, his feet are pronated. I think that's the word. He walks on the inside edge of his feet.


Linda, Mom to Ty (11 years old)

Ty was diagnosed by blood test June 7/05

biopsy Aug 11/05, diagnosis confirmed Aug 18/05

Mom, Dad and big brother Celiac-free.

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Deb, have you ever tried boxer briefs for your hubby? They always seem to have bigger waist's and slimmer butt and legs.

ahhhh,yes I know but for him the boxer style doesn't give enough support for his "manlies."


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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I don't seem to fit the body shape or the face shape! I also work on my feet and have rarely had any prolems. I'll give half a butt to anyone :lol: Although,now that I think about it my grandmother (through whom we have tracked the celiac gene) did have that body shape. She would never have complained about herself so we will never know if she had symptoms.


diagnosed 1/04 endoscopy; gluten-free ever since!

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I was just thinking about all this and I DID look like that when I first got sick....no butt, no padding on the feet, but after 2 years I got the butt back. The feet could use some padding BUT I can never figure out what shape my face is. I think it's oval :blink: :blink:


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Bev got her butt back. Has anyone seem mine. I know a a lot off butts, but I don't want theirs. Can anyone locate my butt, or would one like to donate theirs? :P


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Has anyone gotten their foot padding back? That's what makes the feet hurt and get corns and calluses ....


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Has anyone gotten their foot padding back? That's what makes the feet hurt and get corns and calluses ....

I haven't. My feet are still painfully bony. Though, I'm not sure I've done nearly as much walking lately. I'll have to see how my feet do at Disney. Maybe they have gotten better and i just don't know it.


~Angie~

Gluten free since May 2004

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