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Guest Eagle

Looking For New Doctor

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Guest Eagle

Hello, I am looking for a doctor who will diagnose Celiac Disease based on the positive results of Enterolab testing. My celiac blood panel didn't show it up and the gastroenterologist didn't even biopsy my small intestines. I could repeat the celiac panel later but I would have to ingest more gluten and don't want to risk it after how sick I have been. We are looking for a doctor in Washington State or Arizona or New Mexico. There has to be someone out there.

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Very few doctors will diagnose you with Celiac based on enterolab's results alone. Most will only agree that it is a gluten intolerance of some sort, potentially Celiac. Is there a specific reason why you need an official diagnosis? Many people on the board have doctors who just know that their patients do well on the gluten free diet, and keep it at that. Many people are willing just to be labeled "gluten intolerant" rather than Celiac. Positive dietary response is reason enough to do the diet....and luckily, you don't need a doctor's permission to do the diet. I don't believe that you would get any different treatment from a doctor who is aware of your gluten problem vs. having "real" Celiac.

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If you have already tested with Enterolab, you can e-mail them to ask if there are any doctors in your area who use Enterolab. I found my doctor that way.

I think I am probably classified as only gluten intolerant by him. He ordered a bone density scan and some blood tests to check for nutrient levels as well as the gene test to see if I was more or less likely to have celiac disease. My tests came back normal so my guess is he thinks I am only gluten intolerant. I did the genetic testing through Enterolab and didn't give him the results because I don't want my celiac gene in my health records. I think he did everything he would have if he thought I was a true celiac.


Karen

gluten free 4/06

casein free 7/06

DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free

vegetarian

gluten lite on and off since 1999

All dx'ed by Enterolab

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THANKS FOR THE TIP

I'M GOING TO EMAIL THEM.

JUDY


Judy in Southern CA

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