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scotty

Leaky Faucet

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i just started as it seems we all have since the new millenium. but i'm one month in. i've always had these problems with urination, like the liquid inside of me has nowhere else to go and it comes from my sides or my abdomen or bladder gets hard like so i can barely hold it; then in the restroom i don't really go that much, but enough so it just wipes me out. when i try to "refuel" i never feel anything absorb; the leaky faucet starts that drip inside. sometimes if i fight it it turns to D. is this common. i mean with other celiacs? can anyone relate?

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Not sure I understand your description, but I do know that if I don't pee for a long time my bladder gets stretched out and doesn't empty well.

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This sounds like a symptom of Intersticial cystitis. A lot of us have this on here. It is an autoimmune disease that effects the bladder. Google it to read more details, and see if it fits.

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This sounds like a symptom of Intersticial cystitis. A lot of us have this on here. It is an autoimmune disease that effects the bladder. Google it to read more details, and see if it fits.

ok thanks that helps and is reassuring in so many ways i guess. certainly thanks from you. but does the problem subside, go away. should i have my kidneys tested? i know i need to work with a doctor but i am in-between (if you will) doctors; considering the last (and only) GI never even mentioned the possibility of celiac, gluten intolerance, let alone if i know checked for it in my endoscopy...any more insight would be great!!

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ok thanks that helps and is reassuring in so many ways i guess. certainly thanks from you. but does the problem subside, go away. should i have my kidneys tested? i know i need to work with a doctor but i am in-between (if you will) doctors; considering the last (and only) GI never even mentioned the possibility of celiac, gluten intolerance, let alone if i know checked for it in my endoscopy...any more insight would be great!!

First, I realized your forum name is Scotty, are you male? If so IC is less common in men, but does still happen. If you are male prostitis could be the isssue, it causes frequent urination. Being a women I don't know much on that. If not IC can go into remission, but supposedly there is no cure. Mine stays in remission most of the time by avoiding citrus and alcohol. I also take Prelief before every meal to break down any acid in the meal. I originally stuck to the IC diet which includes much more than citrus, but seem to do ok with what I am avoiding. I occasionally flare up, especially at that time of month. Do you have any pain in the bladder. IC can feel like having a bladder infection, but some just get frequent urination. Some people also have what is called irritable bladder. Probably a name the doctors use for something they can't explain. I often have that feeling of having to go and not much comes out. Whatever you do don't hold it, this can make IC worse. You should see a uroligist to do some testing. There are meds they can use to help, but I would try the diet before anything else, and the Prelief. You can find that at Brooks Pharmacy in the antacid section. It is natural.

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First, I realized your forum name is Scotty, are you male? If so IC is less common in men, but does still happen. If you are male prostitis could be the isssue, it causes frequent urination. Being a women I don't know much on that. If not IC can go into remission, but supposedly there is no cure. Mine stays in remission most of the time by avoiding citrus and alcohol. I also take Prelief before every meal to break down any acid in the meal. I originally stuck to the IC diet which includes much more than citrus, but seem to do ok with what I am avoiding. I occasionally flare up, especially at that time of month. Do you have any pain in the bladder. IC can feel like having a bladder infection, but some just get frequent urination. Some people also have what is called irritable bladder. Probably a name the doctors use for something they can't explain. I often have that feeling of having to go and not much comes out. Whatever you do don't hold it, this can make IC worse. You should see a uroligist to do some testing. There are meds they can use to help, but I would try the diet before anything else, and the Prelief. You can find that at Brooks Pharmacy in the antacid section. It is natural.

ok now your just scaring me. haha. i don't want any more problems. not sure what it could be but i know whenever i eat somethings that are "hard" to digest i'll say like stuff with vitamins i'll say cuz i don't eat much of anything having been widdled down to JUST white rice in an IBS thought...seems whenever foods contained alot of vitamins (or like nuts or seeds, um fruit fresh fruit) on the label there my symptoms increased. like the other week when i frist started and thought i was cured. i had a good sized meal with soy milk labeled gluten free which filled me up for about 20 minutes i'll say then i could feel it just begin to run through; instead of fueling like i should go mow the lawn because, yes, i am a male...i can feel it in my bowels or somewhere like i have a hole or something, it won't go to my body; i urinated every hour until morning; just sits on or in or as my bladder; wish i could explain it better heck maybe then my doctor would be more concerned, but like i said i got so many problems!!...so i stick to bland and light or elementless foods for now--with the gluten free showing positive turn around.

thanks again

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The things you described eating are actually on the no no list for the IC diet. No soy, nuts (except almond) and most fruit. Ok fruits are pears, blueberries and watermelon. Also stay away from sharp fermented cheeses (mozzerella and feta ok). Soy sauce and things like vinegars are bad to. I had to stay away initiially, but after feeling better slowly added a lot of things with the exception of citrus. I really recomend the Prelief. Take 2 or 3 before each meal. It really helps. It is gluten free. Gluten intolerance can cause all kinds of other problems and autoimmune issues. I have several myself - I know it sucks! Good luck and let me know how you are doing. I encourage you to read up on Intersticial cystitis and Prostitis. Also check out the IC Diet. There is lots of info on the web.

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The things you described eating are actually on the no no list for the IC diet. No soy, nuts (except almond) and most fruit. Ok fruits are pears, blueberries and watermelon. Also stay away from sharp fermented cheeses (mozzerella and feta ok). Soy sauce and things like vinegars are bad to. I had to stay away initiially, but after feeling better slowly added a lot of things with the exception of citrus. I really recomend the Prelief. Take 2 or 3 before each meal. It really helps. It is gluten free. Gluten intolerance can cause all kinds of other problems and autoimmune issues. I have several myself - I know it sucks! Good luck and let me know how you are doing. I encourage you to read up on Intersticial cystitis and Prostitis. Also check out the IC Diet. There is lots of info on the web.

boy if this site could only write rx we would not need doctors.

this prelief sounds interesting and i'm already taking prilosec for reflux. i did not know there was a IC diet but it may explain things like the gluten free diet has explained things internally that an IBS diet could not. will try... <_<

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boy if this site could only write rx we would not need doctors.

this prelief sounds interesting and i'm already taking prilosec for reflux. i did not know there was a IC diet but it may explain things like the gluten free diet has explained things internally that an IBS diet could not. will try... <_<

Also medications and supplements can irritate the bladder, especially vit c and b-vitamins. Prilosec could be an irritant. Also prilosec can actually make reflux worse in the long run. Most people with reflux actually have to little acid not too much. Again docs are clueless. One possible fix is taking a teaspoon or 2 of raw apple cider vinegar with mother before meals. Google this to read more.

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i have so many things to try now. thanks!! though i have so many things eliminated.

now when avoiding soy does that mean all soy. i have these gluten-free pretzels that i had been eating which consist of soy flour in the ingredients. and alot of gluten free noodles and breads and more are made with soy or soy flour...

by the way what do you generally drink? i can only stand so much water. who knows i am kind of empty inside at the moment what with everything just going through since i can remember. water really hollows me, but perhaps if things could ever start sticking it won't. just wondering

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i have so many things to try now. thanks!! though i have so many things eliminated.

now when avoiding soy does that mean all soy. i have these gluten-free pretzels that i had been eating which consist of soy flour in the ingredients. and alot of gluten free noodles and breads and more are made with soy or soy flour...

by the way what do you generally drink? i can only stand so much water. who knows i am kind of empty inside at the moment what with everything just going through since i can remember. water really hollows me, but perhaps if things could ever start sticking it won't. just wondering

You need to stay away from juices, coffees and teas. Pure pear juice is ok. RW KNudsen makes some. You could add it to water. I would go strict with everything first for a few weeks and see if you get relief, then slowly add things back one at a time. That worked for me. With prelief I was able to add most things back. You may just want to avoid really acidic things like fruits, alcohol, aged cheeses, soy sauce and coffee for now, and use Prelief with your meals. Maybe with the Prelief you won't need to eliminate. My urologist said though that doing the diet strictly for a month helps calm the lining of the bladder down, and then to add things back. Also bladder issues can be caused by candida overgrowth as well. That may be something to adress if the diet does not help. Have you been to a urologist. You should see one and mention Intersticial cystitis.

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ok now your just scaring me. haha. i don't want any more problems. not sure what it could be but i know whenever i eat somethings that are "hard" to digest i'll say like stuff with vitamins i'll say cuz i don't eat much of anything having been widdled down to JUST white rice in an IBS thought...seems whenever foods contained alot of vitamins (or like nuts or seeds, um fruit fresh fruit) on the label there my symptoms increased. like the other week when i frist started and thought i was cured. i had a good sized meal with soy milk labeled gluten free which filled me up for about 20 minutes i'll say then i could feel it just begin to run through; instead of fueling like i should go mow the lawn because, yes, i am a male...i can feel it in my bowels or somewhere like i have a hole or something, it won't go to my body; i urinated every hour until morning; just sits on or in or as my bladder; wish i could explain it better heck maybe then my doctor would be more concerned, but like i said i got so many problems!!...so i stick to bland and light or elementless foods for now--with the gluten free showing positive turn around.

thanks again

If your food isn't giving you energy and liquids like water are going right through you I would first suspect diabeties. Those are two of the symptoms that show you are having trouble with blood glucose. I would have this check out right away.

Do you do better eating proteins? Try not to eat to many sugar containing foods or fruits until you can get it check out.

And drink the water even though it goes through you.

Gail

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Gail

Hi, I can drink anything espeically water and I will need to go almost immetiatly within 10-20minutes. And if I go to the Dr. and asked to provide a urine sample I don't have to drink anything to make me go and it could be hours since I have any drinks. I do drink coffee in am and at least 2 soda, tea, and water. no juices gives me heartburn. I do have sudden urges to go and I don't get to bathroom soon when the urge hits then I start to leak. When I was little I perfected the pee pee dance. My mom hated it.

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thats all fine suggestions. and i have my own dance i could make more popular than the macarena in this funky day and age anyway...but my sugar is fine. my step-father is a diabetic and has let me use his tester many times. even the doctor said it was fine (which who knows what that guy is after. all in all i think he is doing the job right most of the time. at least trying to help, but more on a 'see how much i can get out of this guy' basis; becasue i can be naive, but when everyone just throws food down and lets their body do the rest it makes it so unordinary for me, it's easy to be ignorant and vulnerable)...and i have tried to keep a water intake before and just D-ed everytime. when i have had times of good inner workings (i'll say) i can drink fluids regularly without urges immediately. in fact for a while i was down to pepp. tea. i heard Snapple was ok for gluten-free, and Gatorade. i know this white grape juice does not work--TRASH!! i have so many foods that i have bought now that i could just dump from box to the toilet. or i could just eat them--same thing

i tell ya though i can get right--then i just try something;or another thing just stops working, and WAM!! weeks of ruin. so i wonder is i'm just loose from perpetually mending

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tried the apple cider vinegar this morning

FEELS LIKE BATTERY ACID IN MY BELLY!!! thanks though will do more research before the next attempt :o

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You may be one of the few who does actually have to muchacid. Did you try it right before you ate? Sorry it did not work for you. Are you trying the IC diet?

yes--before i ate. actually i tried it last night (sunday), and it made me feel all loose and weak or woozy; like when gluten is eaten or...i don't know; made me starve instantly like it was clearing away my insides; could not eat enough last night and was NOT going to try this morning, but said well might as well and oh goodness!!!! what pain and burning. honestly the only reason i tried this morning is because the stuff did actually work on reflux and a sore throat i been having/

going IC--can't find Prelief anywhere. i mean like Kroger's or Meijers? corner drugstores? i'm not sure where to find the stuff; may order online. could not find any pure pear juice at HFS...still not sure on these pretzels or noodles that are made with soy flour or something or other soy. should i avoid them?

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yes--before i ate. actually i tried it last night (sunday), and it made me feel all loose and weak or woozy; like when gluten is eaten or...i don't know; made me starve instantly like it was clearing away my insides; could not eat enough last night and was NOT going to try this morning, but said well might as well and oh goodness!!!! what pain and burning. honestly the only reason i tried this morning is because the stuff did actually work on reflux and a sore throat i been having/

going IC--can't find Prelief anywhere. i mean like Kroger's or Meijers? corner drugstores? i'm not sure where to find the stuff; may order online. could not find any pure pear juice at HFS...still not sure on these pretzels or noodles that are made with soy flour or something or other soy. should i avoid them?

Dear scotty,

Vinegar does that to me, as well. I bet your trouble is Candida. I have it. I have to take Prilosec as well. It is a leading cause of reflux, as well as numerous other symptoms. Bladder problems also can be caused by it. Have you been on steroids or antibiotics a lot during your life? Those make Candida grow out of control! High carb foods tend to irritate it. Eczema is another problem commonly caused by the yeastie beasties.

Sincerely,

NoGluGirl

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Interesting, I was thinking canidida as well. But, I had heard that apple cider vinegar was ok for candida? I would stay away from soy if you are following IC diet. You may have candida overgrowth. I was thinking that also, but did not want to overwhelm you. Candida can cause IC and many many other problems. Do you eat a lot of refined carbs or sugars? You should read up on candida as well. I also have this issue and I am currently taking Threelac natural supplement for it. I have noticed some improvement of brain fog and energy levels.

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Dear scotty,

Vinegar does that to me, as well. I bet your trouble is Candida. I have it. I have to take Prilosec as well. It is a leading cause of reflux, as well as numerous other symptoms. Bladder problems also can be caused by it. Have you been on steroids or antibiotics a lot during your life? Those make Candida grow out of control! High carb foods tend to irritate it. Eczema is another problem commonly caused by the yeastie beasties.

Sincerely,

NoGluGirl

alright. but no burning vinegar!!! haha (i know everyone only wants to help). ok seriously--what should i take for it then? i notice there are so many different antifungals and whatnot...i don't think i am too severe but could be completely wrong.

no steroids or antibiotics; but i mostly eat rice and breads or have been since i have been unable to hold anything in since i can remember; and when i first began eating the rice it helped; yet, became the only thing that would not bother and therefore the only thing i wouold eat...so here i am still leery of everything yet going gluten-free; cuz i have to work and stuff i prepare my gut with rice--i can't take anymore D!! or even Pee!!! i imagine i can get something from the nearest HFS???

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Dear scotty,

Candida manifests in many ways. High carb diets definitely add to the burden. I get low blood sugar. That makes it difficult to go low-carb. Some other symptoms of yeast include:

1. Having a coated tongue (white usually)

2. Being fatigued

3. Ringing in the ears (Tinnitis)

4. Urinary problems

5. Rashes (eczema)

6. Acne

7. Body Pain

8. IBS

9. Crohn's

10. Acid Reflux

Just to give you an idea, the symptoms of a yeast infestation can literally be as numerous as over 100 different ones! Antibiotics are a common cause. Suppose you had strep a lot as a child. Being on antibiotics then, combined with environmental factors could have triggered it to grow out of control. It is surprising what yeast is linked to.

Sincerely,

NoGluGirl

P.S. Go to www.theyeastconnection.com to check out more info.

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Dear scotty,

Candida manifests in many ways. High carb diets definitely add to the burden. I get low blood sugar. That makes it difficult to go low-carb. Some other symptoms of yeast include:

1. Having a coated tongue (white usually)

2. Being fatigued

3. Ringing in the ears (Tinnitis)

4. Urinary problems

5. Rashes (eczema)

6. Acne

7. Body Pain

8. IBS

9. Crohn's

10. Acid Reflux

Just to give you an idea, the symptoms of a yeast infestation can literally be as numerous as over 100 different ones! Antibiotics are a common cause. Suppose you had strep a lot as a child. Being on antibiotics then, combined with environmental factors could have triggered it to grow out of control. It is surprising what yeast is linked to.

Sincerely,

NoGluGirl

P.S. Go to www.theyeastconnection.com to check out more info.

alright i guess i am on my own in so many ways; but i think you are on to something here--white tongue; urinary problems; rashes; reflux...i just wish i could have someone say take THIS and be cured today! and lets say i cleanse--were you able to go back to foods like fruits and vegetables, perhaps vitamins, juices, nuts...? just wondering. i have alot of research yet. thanks

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I suggest you read a lot about candida. Read up on the candida diet. There are extreme and less extreme versions of this. You definitely don't want to be eating lots and lots of starchy stuff. When you eat rice, make it brown rice. There are so many different ways to try and combat this. I am currently using THreelac. Some others on here recomend a product called Theralac. Different things work for different people. There is a lengthy questionarre you can fill out on many candida websites that go over your likelyhood of candida. I recomend going to see a naturopath for some guidance. Regular doctors do not recognize this as a true issue.

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alright i guess i am on my own in so many ways; but i think you are on to something here--white tongue; urinary problems; rashes; reflux...i just wish i could have someone say take THIS and be cured today! and lets say i cleanse--were you able to go back to foods like fruits and vegetables, perhaps vitamins, juices, nuts...? just wondering. i have alot of research yet. thanks

Dear scotty,

I am seeing a holistic physician. Sikh Chiropractors may treat this as well. Often, they just look at your tongue, nails, skin, etc. Then, they take a look at your history. That is the most important element.

I am still fighting Candida. Some people need to stay on the diet longer than others. It depends on the severity of the case. Right now, I have cut down on sugar, but there are many things I still need to avoid. I am doing it a little at a time, so it is not such a shock to my system. Otherwise, you can experience withdrawal, which can make sticking to it unbearable.

It is recommended that anytime you do a cleanse or go on an antifungal like Nystatin, that you do the strict Candida diet for at least a month prior. This minimizes the herxheimer reaction. A herx is the die-off reaction where as the yeast dies it releases toxins into your blood stream. You will temporarily feel worse during this time. It can be difficult to deal with.

You can go back to eating the other foods in time. Some people only needed to do the strict diet for a couple of weeks, but more severe cases may take months or years. I have done extensive research on this. The pathology is quite fascinating. Books I highly recommend that you can purchase very cheaply include: "The Yeast Connection" by Dr. William G. Crook, "The Candida Diet" by Sally Rockwell, and "The Yeast Syndrome" by Dr. John Parks-Trowbridge. These give you a good basis.

If you are anything like me, you are terribly sensitive to mold. It is typical for Candida patients to feel worse on days it rains. I get more exhausted and ache unmercifully. I was diagnosed with Fibromyalgia, which yeast has been implicated in more recently. I wrote an essay on Candida, and would be more than happy to e-mail a copy of it to you. Just PM me with your personal e-mail, so I can send it. It must be send in an attachment.

Sincerely,

NoGluGirl

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Dear scotty,

I am seeing a holistic physician. Sikh Chiropractors may treat this as well. Often, they just look at your tongue, nails, skin, etc. Then, they take a look at your history. That is the most important element.

I am still fighting Candida. Some people need to stay on the diet longer than others. It depends on the severity of the case. Right now, I have cut down on sugar, but there are many things I still need to avoid. I am doing it a little at a time, so it is not such a shock to my system. Otherwise, you can experience withdrawal, which can make sticking to it unbearable.

It is recommended that anytime you do a cleanse or go on an antifungal like Nystatin, that you do the strict Candida diet for at least a month prior. This minimizes the herxheimer reaction. A herx is the die-off reaction where as the yeast dies it releases toxins into your blood stream. You will temporarily feel worse during this time. It can be difficult to deal with.

You can go back to eating the other foods in time. Some people only needed to do the strict diet for a couple of weeks, but more severe cases may take months or years. I have done extensive research on this. The pathology is quite fascinating. Books I highly recommend that you can purchase very cheaply include: "The Yeast Connection" by Dr. William G. Crook, "The Candida Diet" by Sally Rockwell, and "The Yeast Syndrome" by Dr. John Parks-Trowbridge. These give you a good basis.

If you are anything like me, you are terribly sensitive to mold. It is typical for Candida patients to feel worse on days it rains. I get more exhausted and ache unmercifully. I was diagnosed with Fibromyalgia, which yeast has been implicated in more recently. I wrote an essay on Candida, and would be more than happy to e-mail a copy of it to you. Just PM me with your personal e-mail, so I can send it. It must be send in an attachment.

Sincerely,

NoGluGirl

sure. i will take any info i can get. appreciate it. just send it to evrythingafter@yahoo.com. only when hope is fulfilled will hope be lost. thanks

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