Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

The Next Few Days Should Be Interesting

Crystalkd

Recommended Posts

Crystalkd Contributor
Crystalkd
Posted

I wasn't really sure how to title this but I need a little support for one thing and am excited about the other and just wanted to share.

I go to my GI in the morning. This is the first time since the endoscpy that he says came back negitive but due to my diet responce my Internist thinks I do have it plus the blood test came back odd twice. (I'm going to ask for copies of the results so I can see them with my own eyes. I'm concerned about what the GI will think of the internists dx. I'll just have to wait and see I guess.

My other thing is that I'm finally feeling comfortable enough to even enterain spending the weekend more than 5 mins away from my house!! I haven't done this since I first started getting sick in Jan. It may vseem small but for me it's big because I'm getting my life back. I'm taking snacks with me that I can eat but its also comforting to know that there are a few in the group I'll be with that understand my diet first hand.

Just had to share.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Eriella Explorer
Eriella
Posted

First of all-- congrats on feeling better! Don't worry about what the test results say, if gluten makes you sick, don't eat it. That is what my GI and my primary care physician told me when my blood results came back with 0 levels. If your physician is worth his or her weight in salt, they will say the same thing too. You may not be celiac, but instead by gluten intolerant (my official diagnosis, although we all have a strong suspicion that I one of those few that don't produce any antibodies, but have the autoimmune aspect), but does it really matter? No matter what the doctor tells you tomorrow, do what makes you feel better. If you can find a doctor who will support you, that's great. If not, then we will support you. A gluten free diet won't hurt you at all, so there is no risk and all gain.

A word from someone who went through this yesterday-- go in with a list of symptoms you had before, what improvements you had, and specific questions to ask (like why am I responding positively if my test is negative? What would be the benefits of retesting?). I have found that if you go in and say that you know the science says something else, but you feel better this way, doctors tend to agree and just want you to feel better.

Good Luck!

Crystalkd Contributor
Crystalkd
Posted
  • Author
First of all-- congrats on feeling better! Don't worry about what the test results say, if gluten makes you sick, don't eat it. That is what my GI and my primary care physician told me when my blood results came back with 0 levels. If your physician is worth his or her weight in salt, they will say the same thing too. You may not be celiac, but instead by gluten intolerant (my official diagnosis, although we all have a strong suspicion that I one of those few that don't produce any antibodies, but have the autoimmune aspect), but does it really matter? No matter what the doctor tells you tomorrow, do what makes you feel better. If you can find a doctor who will support you, that's great. If not, then we will support you. A gluten free diet won't hurt you at all, so there is no risk and all gain.

A word from someone who went through this yesterday-- go in with a list of symptoms you had before, what improvements you had, and specific questions to ask (like why am I responding positively if my test is negative? What would be the benefits of retesting?). I have found that if you go in and say that you know the science says something else, but you feel better this way, doctors tend to agree and just want you to feel better.

Good Luck!

This doc is a sweetheart so I think everything will be fine. I just never know these days. I have a physical disability on top of the celiac disease so I learned very early how to handle docs. This is just a doc I haven't figured out yet since I haven't been going to him long.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Crystal,

It is good to see you are finally starting to feel better. You have a lot of confidence in yourself, it took me long than just a few months to stay away from my home. That is great! It is nice to see you are getting on with your life. Have fun this weekend. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    callowaydorian
    Newest Member
    callowaydorian
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
×
×
  • Create New...