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confusedks

Think I'm Getting Glutened

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My family was the same way when I went milk free. I would even buy my milk free foods and they would eat them all up then complain about how nasty they were. I'd complain then they would tell me how selfish I was. :( Even though I'm old enough to be your parents, I completely understand!


Shellfish free since 1980

Milk free (all forms) since 1991

Feingold in 2003

First gluten-free round 2007

Now entering full time Gluten free, egg free, almond/peanut free

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Dear Kassandra,

I am with you, here! My parents are the same way. They get crumbs all over the place! Then, they treat you like you are a lunatic! If they were the ones becoming so ill from it, they would not take that attitude!

Dear Mom23boys,

That is exactly how it is! People will complain and say you are selfish, when they are the ones who are! That is so aggravating! Even worse, we are the ones who suffer for it. I want to be well and able to move out on my own so I do not have to worry about gluten getting in my things anymore.

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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I have heard many stories about people getting glutened because of gluten/gluten-free shared kitchens, but this really is awful. I am truly shocked at what you two are having to put up with in your own homes, with your own family members!

The thing is... it isn't THAT hard to minimize the cc risks, as long as everyone in the house is careful and puts in a tiny amount of effort. My son has not shown any symptoms of being glutened by cc in the house since the first few weeks! All it takes is a couple separate utensils/appliances, and good cleaning practices, which become habit very quickly... I'm kind of appalled that your families refuse to put forth that small effort.

I am so sorry you're having to deal with this crap-- I wish there was something I could do!!!

-Sarah


-Sarah

--Son, Lucas, age 7. Gluten-free since May 2007

--Son, Ezra, age 5. Gluten-free 10/13/07. Bipolar tendencies, massively improved on gluten-free diet! He's also allergic to a jillion antibiotics.

--My mother has Celiac Disease, dx'ed by Positive Blood Tests and Biopsy. Diagnosed Sarcoidosis 6/08.

--Myself, Gluten-free since 8/07

Time heals all hurt of heart... but time must be won.

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Dear Sarah,

Thank you for your kind thoughts. :) Sometimes, that is better than anything else you could do. The frustration is difficult to deal with. I wish I could be well enough to work and move out on my own. Then I would not have to worry about it. Where I live, you could have all of your limbs missing, and they would find a reason not to give you disability.

It just amazes you how inconsiderate other people are, and then have the nerve to call you self-centered. They refer to you as obsessed. People do not understand that Celiac truly dictates most aspects if not all things in your life. I get violently ill from a microscopic crumb. I really do not feel I am overdoing it. No one would want to become that ill if it is preventable.

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Sarah,

Thank you! It is really hard because I am really worried about a smooth school year and on top of it, I have to make sure everything I eat is gluten-free and not cc'd. Tonight I went to cut apples and realized there was bagel crumbs everywhere!!! :angry: It's kinda the last thing I need to be worrying about, but my mom won't go completely gluten free in the house! Ugh, well the good news is when I have kids (a LONG ways away from now) I will have a gluten-free house and if they want non gluten-free food, they can eat it out...friends houses, etc. So my mom has shown me what I don't want! Lol

Thanks again,

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Dear Pat,

You are right about that! My dad does that stuff! He will be like "Where is it?" I told him "Move the jelly." "Oh, there it is!" :rolleyes: That is so annoying! What is it with people being so lazy?

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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