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Pyro

How Bad Does It Get?

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Does it ever get so bad you feel like you're dying?

Right now I'm having:

-I can no longer feel, and can barely use my hands.

-Mood swings. Usually anger.

-Upper back hurts like it needs to be cracked.

-Stomach hurts.

-Ball in pit of stomach.

-Constipation

-Hard time focusing.

-Forgetting a lot.

-Sometimes my vision will completely blur

-Dizzy/losing balance

-Extremely irritable

-Nausea

It's really hard to funcion and I feel like I could just close my eyes and die if I wanted. I would go to a doctor's if I thought they could actually help.

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Pyro before I was diagnosed I was so bad that my DD told me the family would understand if I committed suicide. I was in so much mental and physical pain that at times I wished I was gone. I am so glad I am still here. Yes it can get bad but it can also get better. I do hope you will get on the diet as soon as you can. The world will seem such a different place. We are here for you and many of us have been in your shoes. Don't lose hope.

((((((((Hugs)))))))))

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It really helped me tremendously by taking some B-12 shots and later some sublingual (dissolved under your tongue) B-12. My memory, balance and focus improved quite a bit.

If you have not already done so, ask for a metabolic blood test which will show is you have any mineral or vitamin deficiencies. When your numbers are off, it can make you feel really bad and can make worse any depression you may have.

And please, make sure that you are totally gluten free and setting yourself up for traps. Gluten can hide everywhere.

It does get better with diligence and some time. We have all been there.

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Oh man... Here's what I posted on another board:

So after either burning out on amphetamine, burning out from exam anxiety, becoming malnourished from celiac disease, or some combination of the above I decided to take a week off from the gym and my diet. Instead of eating really healthy, I've just been focusing on getting lots of nutrients in from less savory sources and snacking on gluten free carbs to soothe my anxious soul.

Well now my stomach is horrificly distended and hurts, but not as bad as it hurts like when I'm glutened. So something else is up this time, but it ****ing SUUUUCKS! Dear lord it is not a nice thing to experience. And I'm retaining water like it's my job. darned... What should I do? I really don't know what to do now. It's really ballooning out and causing indirect discomfort.

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First take some pepto bismal, that may help a great deal. You mention snacking on lots of gluten free carbs that is not always a real good idea at first. For one thing many are loaded with things that your system may not be used to and some are high in other stuff that you may very well have a problem with. Especially in the early stages your gut is in pretty rough shape, you need to baby it.

For snacks go with fresh or for sure gluten-free tinned fruits, make up a bag with your favorite dried fruits, nuts and seeds like walnuts, almonds, pecans, sunflower seeds, pumpkin seeds etc. and add some gluten-free chocotale chips and maybe a few gluten-free pretzels.

You also may be not digesting dairy right now so make sure you are doing okay with it or cut it out altogether for a bit.

For meals go with plain fish, chicken, meats etc cooked, cooked veggies (your system may not handle too many raw right now, and rice.

It can take some time to heal and I know how hard it is at first when things are so up and down. Hang in there.

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@Alaskaguy With regard to the timing, I think that everyone is a bit different! I used to have a shorter time to onset when I was first diagnosed (within 24h). As time has gone on, and I've glutened myself less and less, I have noticed that the time gets a bit longer.  Recent history seems to matter a bit too - if I've been glutened recently and then get glutened again, the rash will show up faster on the second round. For example, in the last 3 weeks I got slightly glutened by inadvertent
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