Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Pretty Bad


The One

Recommended Posts

The One Apprentice

I want to know if anyone else has this problem, when I was still throwing up from gluten as I didn't know it was what was making me sick I would get face rashes, they wouldn't be itchy though (as DH tends to be), but they would stay for quite a few hours and then go away (though never went away completely) every time I would throw up it would get worse and after I stopped eating gluten every time I would get glutened the rash would come back, it would usually be around the nose as if i were blushed and on the cheek next to the ear (left) i also had really bad circles under my eyes and very puffy. You can always still see some of the rash on my face and the circles under the eyes are definitely not gone at all, sometimes I look at myself and I really don't recognize myself from what I looked like before (and before i lost about 20lbs) I still feel like I look pretty bad, could something else be causing me to look like this? maybe milk? has anyone had such a problem? or possibly it could be vitamin related?

Thanks,

AJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

If it was caused by dairy that would mean that you have an allergy not lactose intolerance. I have an allergy and don't get a rash but get one or two small to large sores on my face if I drink milk or cream or if my cumulative intake of dairy is too much. This particular symptom is more delayed and I do have other reactions too, but everyone's different.

If I don't get enough rest or skip a dose of vitamins my under-eye area can be quite pufy in the am an I get dark circles. Being a little underweight doesn't help either.

I hope you're feeling better soon. Take Care.

The One Apprentice

That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

I will definitely try to get a vitamin level testing next time i'm at the doctors, so far i've been unsuccessful in trying to get tested because they don't believe me I have celiac.

thanks for your input,

AJ

Ursa Major Collaborator

It looks like you may have a casein intolerance (not allergy), which is similar to a gluten intolerance and is mediated by the immune system as well. Meaning that you should try eliminating all dairy (including cheese, yogourt, butter, whey as well as milk).

If it was just a lactose intolerance you would be fine using lactaid pills or drinking lactaid milk. It appears that you are not fine using those.

Dairy is also well known to be causing rashes and eczema. My oldest granddaughter was covered in eczema from head to toe for the first 1 1/2 years of her life, until my daughter stopped giving her dairy. Within weeks she had beautiful, clear skin (still does at the age of 7 now). When my daughter made the family gluten-free, the dark circles under her eyes finally disappeared as well.

Soy could also be causing those same problems.

Susie, my youngest daughter, will also throw up from dairy (she is also gluten intolerant).

The One Apprentice

I will try that and see if it improves, does the rash have to be itchy? because mine doesn't itch it just gets more noticeable certain days more than others. I did switch to lactose free milk and it doesn't upset my stomach but the rash is still there so it makes sense that it could be casein.

Do you know of any substitutes to dairy products or do I have to completely eliminate them? i looove cheese and i always use milk and butter for mash potatoes and such, what else could i use?

thanks,

AJ

missy'smom Collaborator
That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

Open Original Shared Link

That penny size sore sounds like ones I've gotten. Here is a link that explains the difference between lactose intolerance and milk allergy.

I used to think that I could get away with some dairy but now that I've eliminated it completely my constant nasal stuffiness has gone and I notice a diference in my BM's if I eat even a little bit of butter. I used to use lactaid milk seemingly without problem(but not lactaid pills and cream), but my mother was told that I had a milk allergy as a baby and my symptoms fit one of the allergy profiles on that link. Hope it helps.

Ursa Major Collaborator

You could use coconut oil (cold pressed, non-hydrogenated, which is extremely healthy) and rice milk (not rice dream, it isn't gluten-free) in your mashed potatoes. I always do, and nobody knows the difference (only my tummy does ;) ).

No, the rash doesn't have to be itchy. DH is always itchy, so that just means it isn't that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MyMississippi Enthusiast

You might have rosacea (don't think I spelled that right ) :)

I had red cheeks, chin, and nose that would come and go for years. And then the redness got better, but never went away completely. Then I noticed this red little patch on the end of my nose that came and went for years. Finally went to dermatologist because I thought it might be a skin cancer. Turned out to be rosacea. I was floored ! Even though I'm a nurse, it never occured to me that I had rosacea, (I guess I had just gotten used to my rosey face). :D

If I were you , I would see a dermatologist.

TheRockShow182 Newbie

I've found that I was allergic to milk (I think it's the whey in milk more than the lactose), corn and gluten. I first eliminated gluten but didn't start to feel completely better until I eliminated the other two things. The trouble for me is that corn is in almost everything and I have just gotten over being sick after consiming food I did not know contained ingredients i was allergic to. It all happened so slowly it was hard to tell I was having an allergic reaction but the build up of toxic food has destroyed all my hard work I've put towards repairing my body.

I think you may have other allergies so I would maybe try eliminating some other foods and see where that takes you.

The One Apprentice

I'll probably have to end up buying two different milks, my husband is weird about his food and he even looks at it weird when i buy lactose free milk, maybe if i make him trying without knowing he will eat it ;]

You're right Mississippi, it could be rosacea, never thought of it even though i've heard of it. The rash looks exactly like the butterfly rash from Lupus, but I have tested negative for lupus, I will definitely have to see a dermatologist and also try to get tested for other allergies or just do elimination because I can't keep being this way, anxiety doesn't help though.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,193
    • Most Online (within 30 mins)
      7,748

    ChrissiG
    Newest Member
    ChrissiG
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
×
×
  • Create New...