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Dolcenotte

Questions About Current Medications I'm Taking

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I take Orthotricyclen Lo, Allegra, Singulair, Flonase, and the doctor just put me on Prilosec. Are these medications gluten free? I'm having a hard time because different sites say different things. Even the pharmacists don't know what to tell me. Also, I contacted the manufacturers of Orthotricyclen and they stated to me, "Othro-Lo does not contained any added gluten, however we can not guarantee there has been no cross-contamination from our suppliers." Does this mean they are just protecting themselves and that I can continue to take it?

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Prilosec is gluten free as is the generic Omeprezole. Here is a listing of gluten free meds.

http://www.glutenfreedrugs.com/list.htm

Some companies will have a CYA statement, but you have to made that judgement for yourself.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Prilosec is gluten free as is the generic Omeprezole. Here is a listing of gluten free meds.

http://www.glutenfreedrugs.com/list.htm

Some companies will have a CYA statement, but you have to made that judgement for yourself.

Lisa

I have often wondered (web site quoted above)

1) Who makes this list?

2) How often is it updated?

3) Can we trust it?


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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I agree Deb. glutenfreedrugs.com is still listing Xanax from Pfizer as gluten free and Pfizer itself will tell you it isn't gluten-free, just as it's generic company, Greenstone, I think it is, isn't gluten-free either. So, I have to wonder too. That listing is only as good as the person updating it. As far as I am concerned, you have to get the 800# from the drug companies yourself and call, I honestly do not even trust the pharmacist anymore, we need to do our own legwork.

I asked a pharmicist for help at a CVS here in my town and he told me he didn't even know what a celiac was, let alone what gluten is. So, I asked him for the 800#, so I could call myself, and he told me he didn't have time to bother looking for that number for me. The only reason I asked him for it, was because in an internet search, I could not find the generic company. I reported him to CVS. His boss called me and was applauded at the pharmacist's behavior, and he assured me the man had been talked to and that from now on, I would be always helped by this pharmacist and with respect. I thanked the man, yet added that I would never trust the pharmacist again, that his intial behavior proved to me the kind of person he is. I have never returned to that pharmacy for medications.

Another member of our support group brought us a listing of drug companies last week at our meeting, it's great. If I can figure a way to get it in here, I will.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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