Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Re-curring Symptoms Why?


Glutenfreekatie

Recommended Posts

Glutenfreekatie Newbie

Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Celiac or a gluten sensitivity has a very loud voice. When you deal with that and that voice gets quiet, sometimes you can hear other voices.

After I went gluten free, I found that I had some issues with dairy. I stopped and it went away. I was able to add it back in a few months.

Try a food journal.

Now, I find that chocolate can give me reflux, but I chance it from time to time. ;)

newceliac Enthusiast

I feel your pain....I have been so frustrated lately. I have been gluten free since 9/07. Felt better, for the most part, after going gluten free. But it wasn't long until some of the symptoms started recurring. I was tested for dairy and found that I have casein intolerance. I have now been cfgf. I have periods where I feel really good and then all of a sudden I take a downward turn. I have been very careful about being gluten free and don't cheat and read labels, etc. With the casein intolerance, I am not always quite as diligent, but I do not intentionally eat casein products. Lately, I have been very gassy, crampy, constipated and nauseous and I am really not sure why. I am really at my wits end with all of this. It is aggravating to work so hard to avoid the foods I can't tolerate....only to continue to feel bad and constantly wrack my brain trying to figure what it is.

I am sure that I really need to keep a food diary but that just seems so difficult and time consuming. It would seem that after 10 months, I would not be developing another food intolerance.

MELINE Enthusiast

hello

I have IBS and that gives me the symptoms you are describing, especially the heart burn feeling. Doc said I should cook all my vegetables and fruits, and that was the solution to my problem. I even cook bananas (they are already soft I mean, but even they trigger my Ibs if I eat them raw)

Meline

ravenwoodglass Mentor

What kind of dressing are you using on your salads? While many of us are fine with gluten grain distilled vinagers many of us are not. You may want to experiment with salads with a for sure, you made it dressing using wine vinegar instead of the distilled vinagers that are in many prepared dressings. Also many if not most use soy oil now in the premade dressings. The soy oil can also be a problem for some folks.

Glutenfreekatie Newbie

The dressing I used was Newman's Own Ceaser. It does contain distilled vinegar. So I will definitely eliminate that. Would you suggest eliminating the raw vegetables too or just one thing at a time?

Thanks everyone for your replies. It is nice to have somewhere to talk with people who have the same experiences. I am very frustrated with how I feel and just want to get back to feeling good again.

MyMississippi Enthusiast

Do not assume that every gut issue you have is because of Celiac or gluten. The bowels are important, living, organs that can be aggravated by a host of things---- not just gluten----

How much sugar are you consuming??? How many refined carbs ?? Junk food ??? sodas ???? Are your food portions too large--- do you eat too often???? Are you eating enough natural fiber????etc. etc. etc.

Are your intestines stressed from Celiac and taking awhile to "get healthy" again ?????

There are so many variables--------- :) Your body is telling you something---- but it may take awhile to figure out just what it's saying. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

That's right. My D went away with gluten-free, but learned that xylitol gives me D. So not gluten related at all as the xylitol is a gluten free product. I checked. Ditto for the gluten free gum with xylitol. Even small amounts give me D.

eastsidegal Newbie
Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Hi, you might stop drinking coffee and soda. See if it helps, ??

eastsidegal Newbie
Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Hi, you might stop drinking coffee and soda. See if it helps, ??

Glutenfreekatie Newbie

I have really cut down on coffee and don't usually drink soda anyway. The only junk food I really eat is corn chips sometimes. Plain ones. It is feeling a little bit better today, but it is early. Usually escalates during the day. Only eating hommade stuff that I can be sure has no gluten. I did have one cup of coffee this morning. Otherwise I get a terrible headache. Plus I have an hour drive to work!

TestyTommy Rookie

Hi Katie,

What kind of corn chips are you eating? A few months ago, I realized I was reacting to Lays plain potato chips and plain corn chips -- something I never would have expected. There are threads in the food sections about chips -- there seem to be CC issues with many brands of chips, incl. Lays.

SEAliac Rookie
The dressing I used was Newman's Own Ceaser. It does contain distilled vinegar. So I will definitely eliminate that. Would you suggest eliminating the raw vegetables too or just one thing at a time?

Thanks everyone for your replies. It is nice to have somewhere to talk with people who have the same experiences. I am very frustrated with how I feel and just want to get back to feeling good again.

Hi! I'm new to this forum, but your question about eliminating raw vegetables resonates with me. I'm gluten-free only for about 4 1/2 months now, but maybe my experience in the last few months will help you. I cannot tolerate raw vegetables except for tomatoes that have had the skins peeled and seeds removed. Salad leaves me in agony. Canned and frozen veggies I can handle in very small quantities (an ounce or two in a day). Strained cooked sweet potatoes and butternut squash make very good soups that I can tolerate. Fresh fruits don't seem to be causing me much trouble. At this early stage in my healing, I do best with a very low fat, low fiber, dairy-free diet. I'm worried about my nutrient intake by not eating many veggies, but I prefer a more normally functioning GI tract right now. Over time I'll find more veggies that I can eat.

Good luck to you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    2. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    3. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    5. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,055
    • Most Online (within 30 mins)
      10,442

    Bubba89
    Newest Member
    Bubba89
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
    • knitty kitty
      @Heatherisle, I would feel much less worried if you would insist that the doctors administer high dose thiamine hydrochloride (500mg x 3 daily) for several days, with a banana bag (all eight B vitamins, riboflavin makes it yellow like bananas).  Electrolytes may become unbalanced, so monitoring is needed as well.  Just to rule out Thiamine deficiency, high dose thiamine should be administered for several days.  If no health improvement, look for something else. The symptoms your daughter is showing are seen in Wernickes Encephalopathy caused by Thiamine deficiency.  White spots in the brain including on the frontal lobe are seen in Wernickes Encephalopathy.  Blurred vision, balance problems, changed gait (wider stance to compensate for imbalance), tingling in hands and feet, ascending neuropathy, lower back pain, kidney pain, abdominal pain are all symptoms I have experienced when I had Wernickes.  The damage becomes permanent if not corrected quickly.  Korsakoff Syndrome follows with brain damage that cannot be reversed, and death following.   Doctors are not trained in Nutrition.  Doctors are taught Wernickes Encephalopathy only happens in Alcoholism.  My doctors did not recognize Wernickes Encephalopathy because I did not drink alcohol.  If it walks like a duck... Doctors do not realize that Malabsorption from Celiac Disease can result in severe nutritional deficiency diseases, including Wernickes.  Malabsorption of Celiac Disease affects all the essential nutrients, vitamins and minerals, our bodies need to function properly.  It's rare to have a deficiency in just one vitamin.  B12 Deficiency and Thiamine deficiency go hand in hand.   I had symptoms of deficiencies in many vitamins and minerals because my Celiac Disease was still undiagnosed at that time.  They laughed when I asked to be checked for Celiac Disease.  I was overweight (high calorie malnutrition).  I didn't match their " in the box" thinking.  I didn't match their concept of the wasting away, skin and bones stereotype of Celiac Disease.  My doctors wrote me off as "depressed".  I could feel myself dying.  I trusted what I learned at university about how vitamins work inside the body.  I recognized the symptoms of Wernickes and other nutritional deficiency diseases.  At home, I took 500 mg over the counter thiamine hydrochloride and had health improvement within twenty minutes.  I continued supplementing for months, with thiamine and B vitamins and electrolytes.  I continued to have health improvements.  I did suffer some permanent brain damage.  I have permanent vision problems and optic nerve damage.  Computer screens cause migraines.  I struggle through them to help others.   Ask for Thiamine and an Erythrocyte Transketolace Activity Assay.  This test is more accurate than a blood test for Thiamine level, but both tests take time, during which time permanent damage can be done.  The World Health Organization recommends thiamine administration before test results come back in order to prevent permanent damage.   Trying thiamine hydrochloride is simple and cheap and safe and nontoxic.  If high dose thiamine doesn't work, there's no harm done.  Try thiamine supplementation if only to rule out Thiamine deficiency....while there's still time. References: Thiamine Deficiency and Brain Injury: Neuroanatomical Changes in the Wernicke-Korsakoff Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC12535404/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Please have ears to hear.
    • Aretaeus Cappadocia
      I don't know about this. Here's how I make kasha: boil water in a pot add the kasha, stir to mix, turn heat down to a gentle simmer for ~10 min, maybe 15, until tender remove from heat and serve There are lots of variations if you wish, like adding salt and butter. One variation that is really tasty, but kind of a pain, is to mix the dry kasha with a beaten raw egg, heat the dry kasha/egg mixture in the pot for a couple of minutes (to coat the kasha and cook the egg), then add boiling water and finish like the "basic" recipe above. I seldom have the patience to do all of that, though.
    • xxnonamexx
      What's the reasoning of washing and rinsing kasha buckwheat for 12 hrs
    • Aretaeus Cappadocia
      I don't clean the kasha. It does take more than a minute but less than half an hour. However I understand the need for efficiency in the morning routine. I am not familiar with the lemon thing. Another one to consider is quinoa (I buy Kirkland, labeled gluten free). It is probably better to rinse the quinoa before cooking. I don't notice it myself but a lot of people don't like unwashed quinoa because of saponins that are removed by a rinse. All of these are reheatable if you want to make a larger amount ahead of time. Also, it may be possible to use the "overnight oats" strategy with some or all of these, but I have to say I never even thought about it until writing this response.
×
×
  • Create New...