Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Post Diagnosis Appetite


006

Recommended Posts

006 Apprentice

Since I was diagnosed recently, I switched over to what I hope to be a gluten free diet. It's only been a couple weeks; but I'm noticing that as of about a week ago, my appetite has grown notably. I am eating large quantities of food; just like old bodybuilding days. I am training with about the same intensity as before, but make no mistake, I can eat that cow just to your right (in the Brown Cow ad) in one sitting!

Is this a sign of healing? Or, was the gluten foods simply more filling. What does this mean!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

It happened to me too. I was starving for about 6 weeks. Even waking at 3 am just ravenous. Then it went away. There were many theories thrown around. But likely your body is trying to make up for lost time. The gluten kept you from absorbing nutrients and now your body is starting to be able to do so.

MELINE Enthusiast

It took me 10 months for my appetite to get back to normal. The answer my nd gave me was that when you eat gluten you actually press your body so much, the whole system is trying to kill the "intruder", and your metabolism is not working well...Now your metabolism is working back to normal, but your villy is not healed so you can't absorb any of the ingredients you are getting and your body needs huge amounts of food. Believe me, I had to eat every 2-3 hours, and I there was no food around I could burst in tears (and I am really really really skinny). I also lost 4 kilos when I started the gluten-free diet. Now that my villy is healed I can say that things are much better. I've put on some weight and I like it! And I am not eating so so so much anymore. Imagine I would have to eat apart from my 2-3 huge meals, 6-8 bananas, much much much peanut butter and many many many rice cakes just not to fall apart. My mom kept telling everyone that she was cooking for a whole family in the morning and in the afternoon there was nothing left to eat cuz of me. ............

This is very common, and it will get better. Enjoy it!!!

happygirl Collaborator

Apparently it is pretty common.

"Q: I feel hungry all the time. Is that normal?

Yes, it is very common. Your body is making up for the time it wasn't fully absorbing foods. Hunger levels tend to normalize within the first months after eliminating gluten and beginning a well balanced diet of gluten-free foods."

From: Open Original Shared Link

fedora Enthusiast

me too.

I was the type that gained weight easily, overnight even. I did not eat alot either. I think I was holding on to every bit of nourishment I got. I worked hard to not be overweight.

Then when I went gluten free I lost weight, 6 pounds, without trying and while eating alot of food. I was hungry too! But I stopped getting that awful low blood sugar feeling and naseaus feeling when I got hungry. I just felt hungry.

Things stabilized though. Now I feel normal hunger wise. My weight has stayed the same for several months.

006 Apprentice

I actually hope to gain some of my weight back. The only issue I have with my appetite is that it's expensive and I have to cook everything. I'm very afraid of restaurants; I do not trust them. I've seen too much that makes me prefer to prepare my own foods.

IMWalt Contributor
Is this a sign of healing? Or, was the gluten foods simply more filling. What does this mean!?

I too, experienced the same thing. I just could not seem to eat enough food to feel satisfied. I am still ravenous most of the time. I am a sponsored marathon runner, so I try to keep my weight down in order to perform at my peak, and I have been eating so much food that I was sure I would gain weight. However, that has not happened yet. For now, I just keep piling the food in because if I don't, I feel like I am starving.

Like you, I avoid eating out most of the time (I don't like other people touching my food), and I spend a LOT of money on food.

Walt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's article in Summer 2026 Issue
      1

      New Study Finds 1 in 10 Celiac Patients May Have Additional Autoimmune Disorders (+Video)

    2. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

    4. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,058
    • Most Online (within 30 mins)
      10,442

    Sandi Barnes
    Newest Member
    Sandi Barnes
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      makes sense. sometimes you learn one path and never question it until you see someone take a different path
    • xxnonamexx
      Interesting I read that toasted kasha groats have nutty flavor which I thought like oatmeal with banana and yogurt. Yes quinoa I have for dinner looking to switch oatmeal to buckwheat for breakfast. I have to look into amaranth 
    • Aretaeus Cappadocia
      I've never tried bananas or yogurt with kasha. It would probably work but in my mind I think of kasha as being on the savory side so I always add butter, peanut butter, or shredded cheddar cheese. Next time I make it I will try yogurt and banana to see for myself. Amaranth has a touch of sweet and I like to pair it with fruit. Quinoa is more neutral. I eat it plain, like rice, with chicken stock or other savory things, or with coconut milk. Since coconut milk works, I would think yogurt would work (with the quinoa). I went to the link you posted. I really don't know why they rinse the kasha. I've eaten it for decades and never rinsed it. Other than that, her recipe seems fine (that is, add the buckwheat with the water, rather than wait until the water is boiling). She does say something that I forgot: you want to get roasted/toasted buckwheat or you will need to toast it yourself. I've never tried buckwheat flakes. One potential issue with flakes is that there are more processing steps and as a rule of thumb, every processing step is another opportunity for cross-contamination. I have tried something that was a finer grind of the buckwheat than the whole/coarse and I didn't like it as much. But, maybe that was simply because it wasn't "normal" to me, I don't know.
    • xxnonamexx
      The basic seems more like oatmeal. You can also add yogurt banana to it like oatmeal right. I see rinsing as first step in basic recipes like this one https://busycooks.com/how-to-cook-toasted-buckwheat-groats-kasha/ I don't understand why since kasha is toasted and not raw. What about buckwheat flake cereal or is this better to go with. 
    • Scott Adams
      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
×
×
  • Create New...