Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New & Struggling.... Celiac?

Guest Pcphipps

By Guest Pcphipps
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest Pcphipps
Guest Pcphipps
Posted

I have been struggling with GI symptoms and other symptoms for over 15 years. I have been diagnosed with the following.... Yeah - these ALL apply.

Fibromyalgia - Hashimotos - Major Depression - Brain Lesions (showed up 2 yrs ago) - Asthma - IBS (severe - had adenoma polups in '00) - Chronic Migraines - Hietal Herna / GERD - Insomnia - PTSD (domestic violence) - Carpal Tunnel - Cervical Disc Disease and others... yes there are more!

I am 39 and have been on medication for ALL of the above for years. I applied for SSI-DI and was turned down. I went to a pain clinic and the Dr. told me he thought I had MS or Celiac. I explained that I had blood test for celiac (10 yrs ago) and spinal tap for MS. He stated that bloodwork very rarely picks up on Celiac IF it is even done correctly ?????

I am going back for bloodwork again - and allergy testing - which has shown yeast anitbodies (that is the only one they test for at the Fibro Clinic)..... Anyone have an opionon on my medical issues?

I dont want to be sick. I have 5 children, and right now no income. I am thinkging of trying for SSI again. ANY HELP NEEDED AND APPRECIATED!

Recommended test? Opinion from Celiac Pros? Thanks!!! :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Your symptoms could be Celiac. At this point, you have nothing to lose by trying the gluten-free diet to see if it helps. Give it a strict try for 3 months. If it improves your symptoms, then you have your answer. I hope you feel better soon!

mushroom Proficient
mushroom
Posted

Your symptoms certainly sound like they could be attributable to celiac. If you are intending to have the blood panel run again anyway, here is what should be ordered:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The total Serum IGA is important because if this is low it can invalidate all the other tests. If you intend having the blood work done again, don't stop eating gluten until you are tested. Do let us know the results together with the lab's reference ranges..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,119
    • Most Online (within 30 mins)
      10,442
    coeliacmamma
    Newest Member
    coeliacmamma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      New diagnosis

      By Russ H · Posted

      Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ
    • Ginarwebb
      Test interpretations

      By Ginarwebb · Posted

      thank you so much for this information .. if I'm reading the results correctly I believe the range was  <15.0 Antibody not detected > or = 15.0 Antibody detected
    • coeliacmamma
      New diagnosis

      By coeliacmamma · Posted

      My 16 year old has just been diagnosed with coeliac, she loves food and is now struggling with the diet. She has a variety of different co editions and thos one just tops the list, she is a musical theatre student at college and loves what she does but fatigue gets in way alot of the time, are there any good amd tasty meals I can k make that will help?  Thanks for reading.
    • BelleDeJour
      Dermatitis Herpetiformis - follow up dermatology appointment coming up

      By BelleDeJour · Posted

      Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play it very much on the very safe side with food for the next few days.  My derm appointment is less than a week away. I will update on here because I do feel it important to help others. 
    • Scott Adams
      Skin issues

      By Scott Adams · Posted

      I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
×
×
  • Create New...