Out Of Body Sensation

[OptimisticMom42 9]

Hello everyone,

Is there a vitamin or something of that nature that would explain an out of body sensation? This is during awake time not associated with sleeping.

Thanks RA

[ravenwoodglass 1,350]

Can you explain more fully what you are experiencing? What supplements are you taking? Are you on any script meds?

[gfp 0]

Hello everyone,

Is there a vitamin or something of that nature that would explain an out of body sensation? This is during awake time not associated with sleeping.

Thanks RA

Depending on how you define 'out of body' I get a certain amount of this when glutened.

It's not like the TV/film 'experience' so much as a feeling I am watching myself and steering by a remote control with flaky batteries!

I often say things I don't mean, or more accurately things I do mean but shouldn't say ... and I know I shouldn't and try and stop myself but I just don't respond ...

When in this state, especially within group I often feel like I am almost sitting beside myself and almost watching myself.

Hope that helps?

[TrillumHunter 17]

I had that before gluten-free until I started getting b12 shots. I still get it as a precursor to a migraine.

[OptimisticMom42 9]

Thank you everyone.

My son says he has been experiencing this since age 8. Most recently at dinner yesterday. He felt that he watched himself get up and leave the table. He does not want to believe that gluten is causing this.

I will share your answers with him and ask him to begin taking B12 if it is available to him.

RA

[dmurth01 0]

I think my biggest gluten-ing symptom falls somewhere between this "out of body" sensation and brain fog. It is like I cannot control my normal functions. It was the worst when I started work this fall and would go to business meetings and nearly FALL ASLEEP or barely form coherent sentences (at least that's what it felt like to me!)

So far on gluten-free I haven't gotten this as badly as when I was still on gluten. Of course I've been CC'ed here and there, but cutting out major gluten items has made a world of a difference. I assume you are already gluten-free though since you are asking about vitamins.

Good Luck!

[OptimisticMom42 9]

Yes, I'm gluten free, my son was diagnosed last summer but refuses to follow a gluten free diet. So when he tells me these things I say, "Stop eating gluten" He says nope and I look for some other answer. But it always comes back to gluten. He's 18 and doesn't live at home so........

[ianm 6]

That is what would happen to me when I would get very severe gluten induced brain fog. I haven't had any brain fog out-of-body experiences since quitting gluten. Some of the brain fog episodes were truly terrifying, especially while driving. It is a miracle that I didn't kill anybody.

[hermitgirl 0]

I had that frequently before I was diagnosed. I never knew when to expect it. I just remember the worst incident being when I couldn't wake myself up. It was really creepy. Kept looking at the clock screaming for help. My body wouldn't move yet I felt like I was moving. Not something I care to have occur again. Maybe a deficiency? Is he under a lot of stress? Maybe need to have some bloodwork checked?

[bellis 2]

Thank you everyone.

My son says he has been experiencing this since age 8. Most recently at dinner yesterday. He felt that he watched himself get up and leave the table. He does not want to believe that gluten is causing this.

I will share your answers with him and ask him to begin taking B12 if it is available to him.

RA

Possibly caused by something called wishful thinking. What was for dinner? Brussel sprouts and liver?

Please excuse me! just trying to lighten things up! Sounds strange to me, but i believe gluten can cause nearly any and every condition known to man.

[Guest sueward]

OptimisticMom42 Hello! I am new here myself and not sure quite how to navigate yet. lol Have suffered all my life and just now getting the MD and Rheumatologist to send me to the Gastrointerologist. He wants to do a endoscopy even though he said my blood work indicates celiac.

I was told that if we eat gluten when we are gluten intolerant that it can cause Osteoporosis, and other autoimmune diseases also. Don't know if that is correct but I do not want Osteoporosis. Have to quit being in denial and learn to eat right. Much better to be well and eat right. I hope your son decides to eat healthy. sueward

[cmom 0]

Yes, Sue, the part about causing osteoporosis is true. I have confirmed osteopenia due to not absorbing calcium caused by damaged intestines. I have not had a recent bone scan, but hope that things have improved since being gluten-free.