Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Out Of Body Sensation


OptimisticMom42

Recommended Posts

OptimisticMom42 Apprentice

Hello everyone,

Is there a vitamin or something of that nature that would explain an out of body sensation? This is during awake time not associated with sleeping.

Thanks RA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Can you explain more fully what you are experiencing? What supplements are you taking? Are you on any script meds?

gfp Enthusiast
Hello everyone,

Is there a vitamin or something of that nature that would explain an out of body sensation? This is during awake time not associated with sleeping.

Thanks RA

Depending on how you define 'out of body' I get a certain amount of this when glutened.

It's not like the TV/film 'experience' so much as a feeling I am watching myself and steering by a remote control with flaky batteries!

I often say things I don't mean, or more accurately things I do mean but shouldn't say ... and I know I shouldn't and try and stop myself but I just don't respond ...

When in this state, especially within group I often feel like I am almost sitting beside myself and almost watching myself.

Hope that helps?

TrillumHunter Enthusiast

I had that before gluten-free until I started getting b12 shots. I still get it as a precursor to a migraine.

OptimisticMom42 Apprentice

Thank you everyone.

My son says he has been experiencing this since age 8. Most recently at dinner yesterday. He felt that he watched himself get up and leave the table. He does not want to believe that gluten is causing this.

I will share your answers with him and ask him to begin taking B12 if it is available to him.

RA

dmurth01 Newbie

I think my biggest gluten-ing symptom falls somewhere between this "out of body" sensation and brain fog. It is like I cannot control my normal functions. It was the worst when I started work this fall and would go to business meetings and nearly FALL ASLEEP or barely form coherent sentences (at least that's what it felt like to me!)

So far on gluten-free I haven't gotten this as badly as when I was still on gluten. Of course I've been CC'ed here and there, but cutting out major gluten items has made a world of a difference. I assume you are already gluten-free though since you are asking about vitamins.

Good Luck!

OptimisticMom42 Apprentice

Yes, I'm gluten free, my son was diagnosed last summer but refuses to follow a gluten free diet. So when he tells me these things I say, "Stop eating gluten" He says nope and I look for some other answer. But it always comes back to gluten. He's 18 and doesn't live at home so........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

That is what would happen to me when I would get very severe gluten induced brain fog. I haven't had any brain fog out-of-body experiences since quitting gluten. Some of the brain fog episodes were truly terrifying, especially while driving. It is a miracle that I didn't kill anybody.

hermitgirl Contributor

I had that frequently before I was diagnosed. I never knew when to expect it. I just remember the worst incident being when I couldn't wake myself up. It was really creepy. Kept looking at the clock screaming for help. My body wouldn't move yet I felt like I was moving. Not something I care to have occur again. Maybe a deficiency? Is he under a lot of stress? Maybe need to have some bloodwork checked?

bellis Rookie
Thank you everyone.

My son says he has been experiencing this since age 8. Most recently at dinner yesterday. He felt that he watched himself get up and leave the table. He does not want to believe that gluten is causing this.

I will share your answers with him and ask him to begin taking B12 if it is available to him.

RA

Possibly caused by something called wishful thinking. What was for dinner? Brussel sprouts and liver?

Please excuse me! just trying to lighten things up! Sounds strange to me, but i believe gluten can cause nearly any and every condition known to man.

Guest sueward

OptimisticMom42 Hello! I am new here myself and not sure quite how to navigate yet. lol Have suffered all my life and just now getting the MD and Rheumatologist to send me to the Gastrointerologist. He wants to do a endoscopy even though he said my blood work indicates celiac.

I was told that if we eat gluten when we are gluten intolerant that it can cause Osteoporosis, and other autoimmune diseases also. Don't know if that is correct but I do not want Osteoporosis. Have to quit being in denial and learn to eat right. Much better to be well and eat right. I hope your son decides to eat healthy. sueward

cmom Contributor

Yes, Sue, the part about causing osteoporosis is true. I have confirmed osteopenia due to not absorbing calcium caused by damaged intestines. I have not had a recent bone scan, but hope that things have improved since being gluten-free. :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,996
    • Most Online (within 30 mins)
      7,748

    Anne Skipp
    Newest Member
    Anne Skipp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • The Logician
      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
×
×
  • Create New...