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tmbarke

New Symptoms - I'm Concerned

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My reactions to CC and Gluten is mostly in the neck with a pressure/swelling/twisting pain.

Recently tho since Black Friday, I've been HOT! Over heated with a red face...and a smidge of attitude! (ballsy if ya know what I mean)

I've also had the sleep issues that if I have one cup of coffee at 6pm, I'm not sleeping!

Last nite, I had 2 rum and cokes....went to bed early and was up at midnite....had 2 more with some cottage cheese and went back to bed at 3am...mind you I have to be up at 5am.

I couldn't sleep....wide awake with my eyes closed (eyes wide shut!)

I layed on my back and then it hit me.....my pulse/heart rate was going crazy! I was pounding at about 140 beats per minute! normal for me is about 82 bpm.

What is your educated thoughts about this....it's crazy! I'm not overly tired because of this, but highly concerned.

Anything you can offer may be a light bulb.

Thanks in advance.....and I should mention I've been gluten-free since mid oct 2009.

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My reactions to CC and Gluten is mostly in the neck with a pressure/swelling/twisting pain.

Recently tho since Black Friday, I've been HOT! Over heated with a red face...and a smidge of attitude! (ballsy if ya know what I mean)

I've also had the sleep issues that if I have one cup of coffee at 6pm, I'm not sleeping!

Last nite, I had 2 rum and cokes....went to bed early and was up at midnite....had 2 more with some cottage cheese and went back to bed at 3am...mind you I have to be up at 5am.

I couldn't sleep....wide awake with my eyes closed (eyes wide shut!)

I layed on my back and then it hit me.....my pulse/heart rate was going crazy! I was pounding at about 140 beats per minute! normal for me is about 82 bpm.

What is your educated thoughts about this....it's crazy! I'm not overly tired because of this, but highly concerned.

Anything you can offer may be a light bulb.

Thanks in advance.....and I should mention I've been gluten-free since mid oct 2009.

You are describing what happens to me when I get soy. I developed a severe intolerance to it about six weeks going gluten-free but it took a while to figure out. Either that or I had it before but didn't notice because I was so sick from celiac disease/Gluten.

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Hey Tena, Soy does that to me too as well as gives me the itchies between the shoulder blades.

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Have you had your thyroid checked ? Not just the TSH but the FreeT-3 T-4 & so on.

My thyroid went crazy a few years ago, I ended up having it ablated but it caused my heart to go into A-fib.

Also liquor can cause some to sleep & others to get anxiety attacks causing no sleep patterns, irritable, & fatigue from no sleep.

The red face could be from the thyroid issues or from the rum & coke (allergy reaction) or are you developing Rosacea an another autoimmune disorder...

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Wow........all good points!

My symptoms are the Hashimoto's type symptoms as once brought to my attention when I first joined this forum.

It would attack the thyroid leaving the neck and left shoulder in constant pain/swelling/twisting.

Before my dx I was drinking RC and rum - and afterwards, I had that one time and knew right away that it was the RC causing the neck to react....now it's just pepsi to mix.

I have had the soy chips and crackers....and soy sauce (LaChoy) but hadn't noticed or even brought 2 and 2 together.

I'm curious about all the possibilities you've mentioned and wonder if now there is a process of elimination to consider....including the dairy if it was cottage cheese I ate prior.

The red face could in my opinion be from one of those HOT flashes. (food related? great question!)

There was only 1 re-gluten from ham which gave me the neck issue followed by attitude and then the stomach pain.

Mamaw - every physical the doc checks thyroid issues thru blood tests and it seems I keep mentioning that to him that something feels off...but with Hashimoto reactions, I figured that was my answer.....should prolly eliminate the after work drinks and try to cut that out and see if that is a possibility of reacting to the alcohol....(hecky darn)

Vicky and Korwyn......how do you do it? one thing after another! How have you been able to narrow additional intolerances after celiac? Allergy testing and doctors with my crappy insurance ($1200.00 deductible) is not an easy out of pocket cost for me.

GFinDC...you're prolly right - I'll have to check into the hyperthyroid too...ugh, more searching!

How do you suggest I begin this study?

Great insights to consider for me too! ty everyone.

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I'd guess thyroid too, especially since you have a throat sensation. Hashimoto's Thyroiditis is not real uncommon with celiacs. I'd ask my doctor to test for thyroid antibodies.

I have a problem with dairy that keeps me wide awake. But it doesn't make my heart race like you described. That really sounds more like thyroid to me. Hashimoto's can cause hyper-thyroid symptoms as well as hypo-thyroid symptoms. Sounds to me like you are experiencing hyper thyroid symptoms.

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Hyperthyroid......did the search and read this...

http://www.endocrineweb.com/hyper1.html

Symptoms are quite similar to what I've mentioned.

Just thought GFinDC and mamaw should be commended for their 'knowing' a little sumpin sumpin!

Thank you........guess I'll take it to the doctor if I can't resolve it myself.

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Shoot, tain''t nuthin. Little, little sumpin maybe. Another thing that makes me think hyper-thyroid is the 'tude. My mom had hyper-thyroid and she would get red in the face and get a little snippy at times. Which was totally unlike her normal personality. She also had the heart racing thing and excitability.

Hashimoto's destroys the thyroid. It is an autoimmune disease like celiac. It seems when the antibodies are attacking the thyroid that it can cause extra thyroid hormone to be released by the dying cells that are under attack. Eventually the thyroid is destroyed and then you end up hypo-thyroid. But you can have bouts of both hypo and hyper along the way. I am not sure there is anything to do about it except stay totally clear of gluten. Some of the other people here who have Hashimoto's may have other ideas about it, or even suggestions for medications. There are several threads on the board about Hashimoto's.

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Shoot, tain''t nuthin. Little, little sumpin maybe. Another thing that makes me think hyper-thyroid is the 'tude. My mom had hyper-thyroid and she would get red in the face and get a little snippy at times. Which was totally unlike her normal personality. She also had the heart racing thing and excitability.

Hashimoto's destroys the thyroid. It is an autoimmune disease like celiac. It seems when the antibodies are attacking the thyroid that it can cause extra thyroid hormone to be released by the dying cells that are under attack. Eventually the thyroid is destroyed and then you end up hypo-thyroid. But you can have bouts of both hypo and hyper along the way. I am not sure there is anything to do about it except stay totally clear of gluten. Some of the other people here who have Hashimoto's may have other ideas about it, or even suggestions for medications. There are several threads on the board about Hashimoto's.

Mr.Paul.......Oh puh...pfft! It twerr too sumpin! SHAH!

Although I am diligent about being gluten free...'almost anal infact'....I have to wonder if CC could react harsher than the real thing....although I notice my heart rate goes up with diary too...I ate cheese and grapes for lunch one day and the heart rate spiked....it did with a flavored tea too (knew that one right away 'flavored') So with that cottage cheese the other nite, I do have to wonder.

I am normally a kind and considerate person....everyone at works says I'm just so nice....but I do feel like a psycho-biatch-from-haites for no reason too....and I'm beginning to put that together with the thyroid.

My first gluten experience after quitting was less than pleasant.

I was at work...dealing with the pain and irritation and the change in me like a metamorphisus when my boss called to remind me to put some notices in the display case (something I would have done after my primary priority for the company) and I got stark raving mad!!! I felt sorry for the co worker in the office when I unloaded!

I ended up apologizing to my boss later....and the coworker. It could have been worse when I realized I was acting WAAAAAYYYYYYY out of character. Then warned them if it happens again, they'll know what happened and to leave me alone for a while (except in email to play it safe). If I would have blown up at him, turrets would have kicked in and I would have lost my job!

It matters to me to know what I'm losing control of and why......so to say 'shoot, tain't nuthin' is really a big sumpin!

Thank you.

Also, I notice you steer clear of the devils drink......is that by choice or because of something else?

What did you start eliminating to feel better with your thyroid issue?

BTW.....Your art page is great! VERY colorful....I miss the color and how it used to make me feel....well done!

Tena

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Those are all symptoms of HIGH BLOOD PRESSURE.

The one thing you did not mention is ringing ears. Is this why you are having the fiesty temperment?

By all means get your thyroid checked as you get yourself into the doctors.

Until you get in what is going on? Stressfull situation? New medication? Any changes?

I've never had high blood pressure. Seriously, it's been so low they can't even read it sometimes. I tried Clarinex for a sinus infection and ended up in the ER with not sure if I was having a heart attack. My resting pulse rate was over 116. I felt like I was on fire, even looked like I was on fire. B)

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Vicky and Korwyn......how do you do it? one thing after another! How have you been able to narrow additional intolerances after celiac? Allergy testing and doctors with my crappy insurance ($1200.00 deductible) is not an easy out of pocket cost for me.

I went on a strict whole/raw foods diet (a GAPS/Paleo type of diet), eating only a limited set of uncooked veggies, fruit, quinoa, brown rice, unprocessed meats (poultry, pork, beef, fish) and water and hypoallergenic vitamin supplements (D3, B-Complex, Zinc, Magnesium Citrate, C and adrenal supplements). After being on this for 6 weeks or so many of my other symptoms had noticeably improved. So after about three months (during which I also lost another 20lbs (YEAH!!!:) ) I started reintroducing foods following an elimination diet method. Eat a fairly large quantity of food 'X' over a period of two or three days (or until I noticed symptoms if sooner) and keep a diary of symptoms and when they go away. This also gave me a baseline for how intolerant I am of them. For example I can't eat broccoli at all. Uncooked peppers (jalepeno, habenaro, peppercini, etc) and tomatoes I can barely tolerate if I have a tiny amount once every few weeks. Cooked I can do them better.

Refined carbohydrates (sugars and grains) such as sucrose, HFCS (high fructose corn syrup - actually any corn syrup), refined white flours and starches (tapioca, corn, potato) I have big problems. Whole milled grains (sorghum, millet, flax, teff, corn, potato, etc) are ok. I can eat limited amounts of bread or cookies made with refined carbs.

However - I feel best when I'm on a paleo type diet. Physically and my digestive processes. So I pretty much stick with that most of the time.

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I hope you find the answer! Sometimes doctors don't get it when we feel off..... its like what do we know about our own body! Just keep on the doc until they get sick of you & questions & start doing all the testing..

I presented with both hyper & hypo thyroid symptoms which I understand is quite common...believe me I went kicking & screaming not to have to swallow the 131 pills to kill off my thyroid....but I did.... I almost died because of not swallowing the 131! I went into a thyroid storm & spent two weeks in ICU. Please don't do that! I was told I was very lucky to live to talk about it....

My blood pressure also gets high at times....

good luck

mamaw

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Hey Tena,

The devils drink, yep coffee. I started having keel-over spells last year. I would be sitting at the computer working along like always and boom, come back to reality half slumped over. Was kind of strange seeming because there was no warning, just boom out like a light. I also had sore joints at the time. Doc did an ekg on my brain and amazingly said it looked nurmal. :blink: Anyway, I decided to start eliminating foods again and got rid of the coffee and tea. That seemed to help. Then I got some glandular thyroid pills and tried those. My keeling over spells reduced to almost nothing, my joints stopped hurting. and I felt a lot more stable. Recently I eliminated soy from my diet and found that I can skip the thyroid pills for a few days now before my joints start getting sore again. When I was still doing soy (and not much of it either) I had tried stopping the thyroid pills also. But it only took a week for the joints to start hurting again, and pretty good too. First my right shoulder hurt, then my right knee, then my right wrist. When it got to my left knee I started taking the thyroid pills again. Cleared it right up.

So, my thinking is the soy was causing a lot of the symptoms I was having. Maybe affecting my thyroid too. Soy is a known iodine uptake inhibitor, so it can be problem in that way. But I always made sure to get plenty of iodized salt, after I got a cyst that is.

I have a thyroid cyst and 2 nodules so far. Had them for a couple years now. I want to hang on to my thyroid as long as seems reasonable to me. There is only 5% or less rate of thyroid nodules developing into cancer, and a large percentage of people have them and don't know it. So I don't consider nodules an automatic surgery indicator. There are different kinds of nodules though and I have the safer kind, so far. Got to hit the doctor for another thyroid ultra-sound soon though. The endo wants to monitor my thyroid every 6 months.

Anyhow, I take Natural Sources Raw Thyroid pills. That and staying clear of soy has made a big improvement in my well being, and my anti-tip over factor has improved too.

Glad you like the art. I need to update that page one of these days, been a couple years since I made it.

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Hashimoto's is actually hypo-thyroid. Grave's disease is hyper-thyroid.

Hyperthyroid symptoms are racing heart rate, insommia, sweating, mood swings, muscle pain, shortness of breath, and extreme hunger. Long term untreated can have lasting physical affects.

I would strongly suggest you have your thyroid levels checked. Hyperthyroid can be quite dangerous.

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OH MY! You guys are very knowledgeable!

this is what I've found

Symptoms of Hypothyroidism

Fatigue

Weakness

Weight gain or increased difficulty losing weight

Coarse, dry hair

Dry, rough pale skin

Hair loss

Cold intolerance (you can't tolerate cold temperatures like those around you)

Muscle cramps and frequent muscle aches

Constipation

Depression

Irritability

Memory loss

Abnormal menstrual cycles

Decreased libido

Common symptoms and signs of hyperthyroidism

Palpitations

Heat intolerance

Nervousness

Insomnia

Breathlessness

Increased bowel movements

Light or absent menstrual periods

Fatigue

Fast heart rate

Trembling hands

Weight loss

Muscle weakness

Warm moist skin

Hair loss

Staring gaze

Now, granted I have symptoms of both....fewer with hypo.........I'm wondering some other things and maybe you have the answers or input or even some facts based on your own experiences.

Has anyone experienced Welbutrin to increase or decrease any of these symptoms from either list or thyroid condition?

Do you know if smoking can affect the symptoms?

What part does alcohol play on these symptoms?

Did going gluten-free eliminate these symptoms?

If not, what other foods did you have to eliminate to get the symptoms to change?

Are there any other treatments you've had to forgo to fix or change them or to keep them at bay?

I'm reading surgery and iodine and betablockers and such....but I'd like to try to do a process of elimination aside from gluten-free.

I am curious tho.....after eating eggs and bacon and coffee at a restaurant, I've experienced hot flashes or an intolerance to heat right after an intolerance to cold....time frame within 30 min. after eating. But honestly - waiting outside on Nov 26th for the doors to open for Black Friday shopping could have been an intolerance to anybody...but once inside....I couldn't peel enough off to cool down.

I've also became agitated or pi$$ed after a second episode in a restaurant with the same breakfast as well as red in the face.

I know I should take the suggestion of start over with fresh foods only - then reintroduce dairy, then soy....and find my clues there.

But I'm also wondering if there is something more or important you'd suggest in this venture.

I am on 1000ui of VitD - B-complex with C - Multi vitamin that contains soy and Welbutrin in generic form.

I'm all ears! And very open to suggestions.

(questions asked are determined by my habits or current standings)

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I am curious tho.....after eating eggs and bacon and coffee at a restaurant, I've experienced hot flashes or an intolerance to heat right after an intolerance to cold....time frame within 30 min. after eating. But honestly - waiting outside on Nov 26th for the doors to open for Black Friday shopping could have been an intolerance to anybody...but once inside....I couldn't peel enough off to cool down.

I've also became agitated or pi$$ed after a second episode in a restaurant with the same breakfast as well as red in the face.

I'm all ears! And very open to suggestions.

(questions asked are determined by my habits or current standings)

You have got to stop eating at that restaurant or insist that your food be made in a seperate clean pan at the very least. You are IMHO getting CC from these meals. Skip the 'gluten free' restaurant meals as even though what you are ordering is gluten-free, or should be, it sounds like they're not. How are you getting your eggs? If you are getting them scrambled you need to know that some places add a bit of pancake batter to their eggs to make them fluffy and that may not be disclosed on the menu.

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You have got to stop eating at that restaurant or insist that your food be made in a seperate clean pan at the very least. You are IMHO getting CC from these meals. Skip the 'gluten free' restaurant meals as even though what you are ordering is gluten-free, or should be, it sounds like they're not. How are you getting your eggs? If you are getting them scrambled you need to know that some places add a bit of pancake batter to their eggs to make them fluffy and that may not be disclosed on the menu.

You're right! but I was in a pinch.

I have never had the problem with Cracker Barrel as they specify their grills due to allergies.

The Denny's was the black Friday and the next time was an independant that put toast on top of my eggs after specifically telling them about my preferences and clean grills...no flour products! They discounted my whole order after the complaint too since I had to reorder the eggs...always over easy to med.

I would have been fine that second time with just water but even that tasted nasty!

I don't make a habit out of eating out at all! but those came unexpected and I think you're right CC made me the psycho-biatch-from-haites for it.

Luckily CC only affects my thyroid - cuz if I had to run to the bathroom while waiting in line on Black Friday, I'd never live down having to poop in the bushes! lol

Hence the need for some changes.

Thanks for making me talk dirty Raven....lol

Love ya!

Tena

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Has anyone experienced Welbutrin to increase or decrease any of these symptoms from either list or thyroid condition?

Wellbutrin can cause jitters if you take them without food. This will add to any jitters you may have from hyperthyroid

Do you know if smoking can affect the symptoms?

smoking will increase ANY symptoms of ANYthing. You're robbing your body of all sorts of nutrients by smoking. It's time to quit!

What part does alcohol play on these symptoms?

alcohol can add to inflammation, it can also exacerbate any symptoms you have. If you have hypothryoid, it will add to your lethargy. If you have hyperthyroid, it really isn't going to help anything at all.

I'm reading surgery and iodine and betablockers and such....but I'd like to try to do a process of elimination aside from gluten-free.

iodine would be used to stimulate your thyroid. If you are HYPERthyroid, you REALLY DO NOT WANT TO STIMULATE IT FURTHER! Beta-blockers would be used if you have hyperthyroid so slow your heart rate. If you are HYPOthyroid though, using beta blockers could be rather detrimental unless you have a diagnosed heart disease that would otherwise require beta blockers. You REALLY need a proper diagnosis to determine what is causing your symptoms.

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All good points Reba32

Just trying to get a feel before I take this to the doctor - he's awesome with me about everything!

I did quit the welbutrin's second dose in the afternoon....the assistance to help quit smoking but was originally given for sleep apnea.

My insurance isn't that great but having it in case of a major something will assist in paying out the ying-yang for the rest of my life.

As it is, my FSA covers allergy meds and doctor visits......I put in 500 a year and the deductible is 1200 for my insurance before 80/20 kicks in.

at my age - everything matters for my future as a healthy woman that can still keep up....which has been diminishing in the passt couple years and I don't like it one bit!

so thank you for your input.....knowledge is power for me.

bland foods and physical activity sound like a good start for me.....and the doctor.

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Hi Tena,

I went thru the elimination diet. Soy really hits me bad the next day with depression and really really bad irrability plus the jitters. Heaven help everyone when it's that time of the month also. LOL. Dairy does it as well but not quite as bad. I try to avoid alcohol. Alcoholism runs in the family really bad so I don't drink. When I was younger, I was known as a mean drunk. I would blackout plus try to take on the biggest person I could find to fight with. After waking up with my face bashed in a couple of times I decided I needed to quit drinking. I haven't had a drink since I was 23.

I don't know if I have a problem with my thyroid or not. I tried Wellbutrin several years ago for depression and it gave me the jitters so bad I couldn't sleep so I quit it.

Just keep trying, you'll get to feeling better in time. Vicky

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I still suspect that Wellbutrin was what originally triggered celiac symptoms when I was a kid; unfortunately, I cannot compare my experience with yours because I was a) between the ages of 7 and 11, B) on it for depression and to medicate mood (it made me calm, and the shrink found it better than adding ritalin), and c) I was on staggering doses for a prolonged time.

But honestly? I don't trust any drug that attempts to alter one's mood. It really doesn't help matters even without one's system being screwed to hell and back.

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I still suspect that Wellbutrin was what originally triggered celiac symptoms when I was a kid; unfortunately, I cannot compare my experience with yours because I was a) between the ages of 7 and 11, B) on it for depression and to medicate mood (it made me calm, and the shrink found it better than adding ritalin), and c) I was on staggering doses for a prolonged time.

But honestly? I don't trust any drug that attempts to alter one's mood. It really doesn't help matters even without one's system being screwed to hell and back.

I do believe you're right.....in some aspects.

I was put on the welbutrin well before the Dr. took me off gluten in mid October 2009.....I originally got it because I couldn't pull myself out of depression and stress and also found it assisted with my sleep apnea issues. And it was working pretty good to keep focus after not going into a deep sleep each nite (snoring bad!)

In March of 2009 I quit the welbutrin because I first noticed symptoms of being anaphilactic (sp?) and thought at first I was approaching an asthma attack that is rare in such severity but had experienced in Oct of 2001 (nice anniversary) where I was in the hospital to have 2 breathing treatments and steroids to calm it down (not on welbutrin till 2005)

I went to the hospital to get emergency testing and they found NO inkling of any asthma. So thinking I was having a reaction to the welbutrin in the generic form - I stopped taking it.

My symptoms got worse....my neck and tongue would swell and my left shoulder pain started and increasingly got worse....I couldn't get enough sleep either as I was always lethargic.

I went all spring, summer and into the fall feeling this discomfort and decided to talk to the doctor during my yearly physical....On the verge of celiac.

After going gluten-free for about a month, realizing it was not the welbutrin that made me sick, I started it up again.

There is a big difference with the reactions of welbutrin with Gluten and without gluten.

I realize that while taking the 2 doses a day, I am very awake at nite or after I've woken and try to sleep again after a cup of coffee....can't be done.

So I stopped taking the welbutrin at nite and if I do have a cocktail - it's 1 after work and no more after that.

I am sleeping much better and without any speedracer heartbeats....so I now realize that my system many more things so much differently now.

I used to be able to drink a pot of coffee and take a welbutrin before bed and still fall asleep like a sack of potatoes.......now? One cup of coffee and I'm wide awake!

So by starting to drop one dose of welbutrin, limiting to one cocktail early in the evening, and no caffeine or heavy foods......My sleep is getting better.

I'm going to continue the welbutrin to quit smoking and then try to ween myself back off and let my healthy body and mind take back over...I'm really getting there too.

The food studies are in order as I've cut back on caffeine first....then I'm going to cut back or eliminate dairy....and so on.

Thanks for the feedback from you and all my Celiac forum friends!

Hugs to all!

Tena

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