Depressed, Hungry, & Pain Back

[NE Mom]

Dx'd with Fibro 2 years ago. Blood tests were negative for celiac. Positive results with diet.

I went gluten-free the week before Christmas. My brain fog was gone immediately and shortly thereafter the exhaustion and joint pain went away as well. I felt great and thought I was on the right path. This last week it seems like all the symptoms have returned. My legs have been killing me and my head feels foggy again. The last two days the fatigue has returned.

I've been really careful and can't figure out where I'm getting the gluten. I haven't changed my makeup or shampoo yet. Is it possible that they didn't bother me at first but now I'm getting more sensitive to any gluten?

I feel horrible again and now I'm depressed because I thought I found the answer. I've been to scared to do a full blown gluten challenge and now that I'm feeling bad I'm not sure I could base the negative results on gluten.

I'm trying to remove white sugar from my diet-could I be going through withdrawals from the sugar addiction?

I don't know what to do next? Any thoughts or helpful ideas??

[Lynayah]

Dx'd with Fibro 2 years ago. Blood tests were negative for celiac. Positive results with diet.

I went gluten-free the week before Christmas. My brain fog was gone immediately and shortly thereafter the exhaustion and joint pain went away as well. I felt great and thought I was on the right path. This last week it seems like all the symptoms have returned. My legs have been killing me and my head feels foggy again. The last two days the fatigue has returned.

I've been really careful and can't figure out where I'm getting the gluten. I haven't changed my makeup or shampoo yet. Is it possible that they didn't bother me at first but now I'm getting more sensitive to any gluten?

I feel horrible again and now I'm depressed because I thought I found the answer. I've been to scared to do a full blown gluten challenge and now that I'm feeling bad I'm not sure I could base the negative results on gluten.

I'm trying to remove white sugar from my diet-could I be going through withdrawals from the sugar addiction?

I don't know what to do next? Any thoughts or helpful ideas??

Gluten is everywhere, and it takes some time to get to the other side of it. You are not alone.

When I get glutened, my pain is much the same as yours -- horrible.

I'm still in the processes, trying to figure it all out.

Things as simple as using a face cream that has gluten without knowing it, and then touching something with your fingers that goes into your mouth (for me it was a piece of banana), or putting your hands into your mouth (for me it was licking a finger to help turn a page), can cause a reaction.

For weeks, I was using the same can opener as my family -- wrong!

Licking an envelope can really cause damage (you probably already know this), but so can handling the glued area of an envelope and not washing your hands.

The list goes on and on and on, including a pet eating food with gluten . . . who then licks you.

Bottom line is to check everything. I know you know this already, and I knew it, too, but even though I knew it, it is amazing how easily things can happen.

At my work, we have a toaster in the kitchen. CRUMBS ARE EVERYWHERE. When I make something for myself, I clean the counter then put paper towel down on my work space.

This week, I watched as a co-worker moved my silverware off of the paper towel and onto the counter so she could make space for herself -- she didn't realize, of course, what she was doing.

If I had not been right there, I never would have known, and if I had gotten glutened, I would have blamed it on what I ate or goodness knows what else.

My favorite story to date: I was working a fundraiser, cutting pie for a bake sale table. I was careful to put on surgical gloves to keep myself gluten free. As a dear friend left the fundraiser, she blew me a kiss . . . and -- you guessed it -- I blew her a kiss back. GLUTENED!!!!! Augh.

It's CRAZY out there trying to manage it all. Really nuts, especially for those of us who are very sensitive. Hang in there.

[jackay]

You could be getting glutened but I wouldn't rule out the sugar withdrawal.