Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Im Not Crazy


ragidyann

Recommended Posts

ragidyann Rookie

So I am going to a new Dr. He spends 2 hrs with you for a consultation. I had to write page long Bio on my self and as I did this I rememberd all theese things from my past . I have been having these problems for longer than I thought. Allthough I have not been positively diagnosed with Celiacs,because I had been on the diet for 6 months when they did the test. i still treat myself for It. i have lost 16 pounds this year. Hardley ever bloated unless I get constipated. IBS right? Yeah i have been diagnosed with that sence I was 16 Im 44. People and friends thought I was just suffering from anxiety attacks I wouldnt eat out cuz I always got sick.I stared to beleve them that I was having anxiety attack. But now im here to say im not CRAZY!!!!!! And to all the Dr.s that would just dissmiss me with a scrip for some stupid pill that did nothing for me and a new diagnosis. Spend some time with your patients do a history on them Do what your suposed to do. and when you find out your patient has vitamin dificences ,do something about It and if your not willing to take the time refer them to someone that will. I hope to God that this new guy will give me the answers that I need. But honestly this site has helped me more than anything else. Thanks to all of you out there that listen and learn. Its a blessing oh and IM NOT CRAZY!!! im sick. and zanex does not help constipation and nausea . Hello thats why im here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Black Sheep Apprentice

So I am going to a new Dr. He spends 2 hrs with you for a consultation. I had to write page long Bio on my self and as I did this I rememberd all theese things from my past . I have been having these problems for longer than I thought. Allthough I have not been positively diagnosed with Celiacs,because I had been on the diet for 6 months when they did the test. i still treat myself for It. i have lost 16 pounds this year. Hardley ever bloated unless I get constipated. IBS right? Yeah i have been diagnosed with that sence I was 16 Im 44. People and friends thought I was just suffering from anxiety attacks I wouldnt eat out cuz I always got sick.I stared to beleve them that I was having anxiety attack. But now im here to say im not CRAZY!!!!!! And to all the Dr.s that would just dissmiss me with a scrip for some stupid pill that did nothing for me and a new diagnosis. Spend some time with your patients do a history on them Do what your suposed to do. and when you find out your patient has vitamin dificences ,do something about It and if your not willing to take the time refer them to someone that will. I hope to God that this new guy will give me the answers that I need. But honestly this site has helped me more than anything else. Thanks to all of you out there that listen and learn. Its a blessing oh and IM NOT CRAZY!!! im sick. and zanex does not help constipation and nausea . Hello thats why im here.

Yuck, I've been there, with the Prozac and Celexa....mood swings to the point where people really thought I was crazy....but all the time I knew there was something physically wrong with me that was causing these mood swings, even if sometimes I acted pretty crazy! After taking lots of fish oil for 6 or 8 months, the mood swings went away, but I was still sick with more symptoms I think than I can count. And nobody really gets it, do they?

Until you find this place. It's great!

nutralady2001 Newbie

Oh I hear you ! Problems as a child in the '50's, OK I'll cut the doctors some slack back then not much was known. Diagnosed with "eczema" in the '60's, know now it was DH, then in 1969 with "mucous colitis" was so sick that year the Education Department refused to give me permanency til I'd been teaching a year and had another medical OK still cutting some slack.

Fast forward to when "IBS" became the buzzword.............basically "suck it up and learn to live with it"......yeah right !

An endoscopy showed villi damage at 12 months gluten free by then I'd figured out the problem and gone gluten free the scope was for something entirely different thank God the gastro took biopsies and enough of them.

Agreed to go back on gluten for the antibodies test, as the scope report said "early Coeliac" when I believe it was "late healing". Only lasted 2 and 1/2 weeks and couldn't go on was so sick could taste blood in my mouth. Had the Coeliac panel done scared I hadn't been on gluten long enough.......every antibodies test positive with a tTG of 300 (0-35) !!!!!!!!

So problems from about the age of 8 and officially diagnosed when I was 59 !!! I'm over the anger now and just glad I know what was wrong with me.

  • 5 weeks later...
Skylark Collaborator

Yuck, I've been there, with the Prozac and Celexa....mood swings to the point where people really thought I was crazy....but all the time I knew there was something physically wrong with me that was causing these mood swings, even if sometimes I acted pretty crazy! After taking lots of fish oil for 6 or 8 months, the mood swings went away, but I was still sick with more symptoms I think than I can count. And nobody really gets it, do they?

Until you find this place. It's great!

They stuck me on Prozac too! I thought I was the only person unlucky enough to have been treated for depression instead of celiac. My shrink never thought anything of all my GI symptoms and my GP who diagnosed "gastritis" never suspected that the fatigue and depression had anything to do with diet.

WheatChef Apprentice

They stuck me on Prozac too! I thought I was the only person unlucky enough to have been treated for depression instead of celiac. My shrink never thought anything of all my GI symptoms and my GP who diagnosed "gastritis" never suspected that the fatigue and depression had anything to do with diet.

Nope, add another onto that list. They stuck me on ritalin, then phased me through 3 different antidepressants intermixed with klonopins and xanax as each new doctor seemed to just through another chemical at me until my last psychiatrist just confessed "There's just too many different things wrong with you to figure out what's going on." Money well spent...

  • 4 weeks later...
GlutenFreeManna Rising Star

So I am going to a new Dr. He spends 2 hrs with you for a consultation. I had to write page long Bio on my self and as I did this I rememberd all theese things from my past . I have been having these problems for longer than I thought. Allthough I have not been positively diagnosed with Celiacs,because I had been on the diet for 6 months when they did the test. i still treat myself for It. i have lost 16 pounds this year. Hardley ever bloated unless I get constipated. IBS right? Yeah i have been diagnosed with that sence I was 16 Im 44. People and friends thought I was just suffering from anxiety attacks I wouldnt eat out cuz I always got sick.I stared to beleve them that I was having anxiety attack. But now im here to say im not CRAZY!!!!!! And to all the Dr.s that would just dissmiss me with a scrip for some stupid pill that did nothing for me and a new diagnosis. Spend some time with your patients do a history on them Do what your suposed to do. and when you find out your patient has vitamin dificences ,do something about It and if your not willing to take the time refer them to someone that will. I hope to God that this new guy will give me the answers that I need. But honestly this site has helped me more than anything else. Thanks to all of you out there that listen and learn. Its a blessing oh and IM NOT CRAZY!!! im sick. and zanex does not help constipation and nausea . Hello thats why im here.

Oh I totally understand! I used to think I was going crazy too. I broke down crying in a doctors office one time out of frustration and he suggested I get psychological help! Isn't it a great feeling though to be able to take your life back? It can only get better now that you know what's wrong.

chere1020 Newbie

Oh I totally understand! I used to think I was going crazy too. I broke down crying in a doctors office one time out of frustration and he suggested I get psychological help! Isn't it a great feeling though to be able to take your life back? It can only get better now that you know what's wrong.

Me too, all of the above, told I had "barnacles" on my butt (cleared up when I went gluten free) told I had chronic gastritis (cleared up when gluten-free) and everytime I have been glutened my mouth tastes just like blood. This started when I was around 6 years old and had horrible flair ups all my life. Right now I am on vacation in Maine and I have gotten glutened, feel like crap, have blood taste, hopefully it will clear up in a couple of days, am grateful I havent had diaherra like I usually do, last time I was here, I almost had to be hospitalized for dehydration. My drs never figured it out, I did all by myself and I am NOT going back on gluten so they can test me, too painful, my stomach feels like it is on fire when I am glutened. Glad to have found this site thou, misery loves company. :-)

Glad to be not "crazy" too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      9

      Celiac flare years after diagnosis

    3. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

    4. - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

    5. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...