Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Question About Cross Contamination After Going gluten-free


diane64

Recommended Posts

diane64 Apprentice

I have been gluten-free for about 5 weeks, following my endoscopy. I have a question about cross contamination:

I find myself washing my hands a lot. I worry that by closing a cabinet, touching the food bag, etc I will pick up some gluten. Is this possible?

Thanks!

Diane


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If your living in a house with gluten eaters then IMHO yes you could get CC'd by picking up crumbs etc from around the house. I think your doing the right thing by washing often but don't get obsessive about it. Just make sure you are washing before you eat or touch your nose, mouth or eyes. I do the same thing as soon as I return to my gluten free home.

Aphreal Contributor

Hmmm I better start being more diligent about that myself.

India Contributor

I've been wondering about this too. My home is gluten-free - but I work with the public, eat lunch in a staff room populated with sandwich munchers and travel by public transport frequented by some very messy eaters. I get this lip tingling thing that usually only happens away from home. It's hard to know how cautious to be.

SGWhiskers Collaborator

I've glutened myself a few times by touchng something and forgetting to wash my hands. I found that the first 6+ months of diagnosis, I needed to be extremely careful and a bit paranoid in order to cut out my cross contamination. Then when I had a reaction to something, I could say, "I know it wasn't the hand washing, and it wasn't the iffy glass from the dishwasher, and it wasn't that I didn't wash that potato that rolled on the grocery belt... It must be the chips from the shared facility or the garbage bag with birdfood poofing out the top." It just helped me find my CC points faster if I eliminated as many as I could control. Now, knowing my body better, I have kept some of those good habits, let some relax a little, and gotten almost all the gluten out of the house. Best wishes to you on your recovery.

anabananakins Explorer

I think somehow I got glutened by my little sister this morning. Not sure how though. I got her a regular pizza last night but we were careful with that but she must have touched something with her gluteny fingers that I've since touched. Or maybe we both used the glass in the bathroom sink. I have no idea. I'm going to have to be more careful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    2. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    3. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    4. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    5. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,187
    • Most Online (within 30 mins)
      10,442

    Dennis E. Schertz
    Newest Member
    Dennis E. Schertz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
    • trents
      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high.  Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity). 
×
×
  • Create New...