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Lisa

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Hi :)

My son (9) has just had a positive blood test for coeliac and is waiting for the biopsy. In the mean time I've been reading everything I can. It's been quite a shock, but this forum has been a real help. Reading peoples posts, and realising we're not alone in this and we'll get the hang of it has really helped. My daughter and I are being tested tomorrow, but I'm not worried anymore - we'll deal with this as a family anyway.

Thanks for being such a friendly supportive community :)

Welcome, Alex & his sister's mom!


 

 

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Hi :)

My son (9) has just had a positive blood test for coeliac and is waiting for the biopsy. In the mean time I've been reading everything I can. It's been quite a shock, but this forum has been a real help. Reading peoples posts, and realising we're not alone in this and we'll get the hang of it has really helped. My daughter and I are being tested tomorrow, but I'm not worried anymore - we'll deal with this as a family anyway.

Thanks for being such a friendly supportive community :)

Welcome to the group. :) There are a lot of great people here with a lot of great information.

Keep in mind that a positive blood test is positive, whatever the biopsy says. If by chance the biopsy is negative, just be glad that the damage hasn't progressed too far, and start teaching your son to eat gluten-free.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Kareng - thank you :)

Jestgar - , I've been reading up on that - is there no such thing as a flase positive on the blood test then? The paediatrician has referred him to the dietitian already, so as soon as the biopsy is out the way we can start the gluten-free diet.

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There's such a thing, but it's incredibly incredibly rare and usually points to Crohn's disease. It also depends on which test.

EMA really equals no such thing as a false positive

TTG, very rare false positive, usually pointing to Crohn's, and there's occasionally both diseases present

AGA, it happens

DGP, very very rare false positive

The course of the disease also tends to be quite slow to show up in testing (my metaphor is to say our tests, especially the biopsy, look for stage three cancer instead of stage one), so it's very typical for people to have a negative that eventually turns positive. Kids at high risk often start showing abnormal bloodwork two or three years before they would have a postive bloodwork, and low positives often align with less intestinal damage. Patchy damage is harder to capture in the 8 mm from the size of a tennis court that is examined via biopsies.

Hope that helps.


2/2010 Malabsorption becomes dramatically noticable

3/2010 Negative IgA EMA; negative IgA TTG

4/2010 Negative biopsy

5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)

5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

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Welcome Alex's Mum....so glad you found us. :)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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